chest clinic appointment next week
Wonkylegs
Member Posts: 3,504
Well the post today brought a Chest Clinic appointment for Wednesday morning next week. I knew it was coming cos the rheumy nurse mentioned that I would have to go to the BCG clinic.
I know they are checking the chances of my having latent TB before they give me one of the Anti-TNF treatments, but the letter makes it unclear whether I will definitely have the Mantoux test or not. :? :? :? Apparently if I do have it, then I have to go back again on Friday :shock: to have the results checked. What a fun week!
Have looked at what the test involves and I'm not keen .... but needs must ...... just wondered if others could advise me if there are likely to be any more hidden surprises when I go!!
thanks
WOnky
I know they are checking the chances of my having latent TB before they give me one of the Anti-TNF treatments, but the letter makes it unclear whether I will definitely have the Mantoux test or not. :? :? :? Apparently if I do have it, then I have to go back again on Friday :shock: to have the results checked. What a fun week!
Have looked at what the test involves and I'm not keen .... but needs must ...... just wondered if others could advise me if there are likely to be any more hidden surprises when I go!!
thanks
WOnky
0
Comments
-
Hi wonky
Yes, you will have the Mantoux test as well as chest x rays..to test for latent TB and yep you will have to go back to let them measure the results! they will also do more blood tests so they have a baseline before starting the anti tnf.
what fun indeed!!! but good luck Wonky...hope it works well for you. Do you know which of the ant tnf's you're starting on?
lol
Iris x0 -
I am on anti-tnf and I did not have this manwotsit test before I started. I had a chest x-ray already from when I started mtx. What is this test for?
Janie0 -
Hi Wonky
Glad you have your letter to get the chest xray done
and hopefully go forward to get the anti-tnf treatment.
I had the TB test done same day as my chest xray.
They injected under the skin of the forearm and a
week later nothing had happened to that area so
they declared me clear of TB, so its quite a simple
procedure.
Other than that, there was just the blood test results
which with me showed a very high RF of 287 and the
ANA testing (antinuclear antibody test) I havent heard
about that yet as it had to be sent away apparantly.
I have my next appointment in 2 weeks time to see
how I am going with the Humira.
so.................
Hope it works well for you Wonky.
Let us know
Love Kath0 -
Thanks Iris, Janie & Kath
Well I have had the chest x-ray (and hand and feet x-rays) in the last few weeks, so shouldn't have to have them again I hope!!
The rheumy nurse also did RF and ANA bloods, and also one for chickenpox, so that should be covered too.
So .... sounds like just the Mantoux test!
They are going for the Infusion for me - Infliximab (I think it is - all the names get a bit confusing!)
so .... busy week of appointments ahead ... have already had to rearrange my MTX injection to THursday cos that was to be Weds am too :roll: and may need to see my GP on Monday for something else ..... so wonder what I can find to do on Tuesday to give me a full house
hugs
WOnky0 -
janie68 wrote:I am on anti-tnf and I did not have this manwotsit test before I started. I had a chest x-ray already from when I started mtx. What is this test for?
Janie
Janie,
MY Rheumy nurse said that they test you for latent TB because the Anti-tnf treatment can 'wake up' any TB that is in hiding. :shock: but maybe they did something different for you that they didn't explain.
I wouldn't worry about it!
hugs
Wonky xxxx0 -
Hi I went through all this 2 years ago. It was okay. i had to do some breathing into a machine stuff too. I found it difficult myself as have a very dry throat and not a lot of puff!
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Wonkylegs wrote:Thanks Iris, Janie & Kath
Well I have had the chest x-ray (and hand and feet x-rays) in the last few weeks, so shouldn't have to have them again I hope!!
The rheumy nurse also did RF and ANA bloods, and also one for chickenpox, so that should be covered too.
So .... sounds like just the Mantoux test!
They are going for the Infusion for me - Infliximab (I think it is - all the names get a bit confusing!)
so .... busy week of appointments ahead ... have already had to rearrange my MTX injection to THursday cos that was to be Weds am too :roll: and may need to see my GP on Monday for something else ..... so wonder what I can find to do on Tuesday to give me a full house
hugs
WOnky
PHEW Wonky
you are going to be busy
Are you sure theres not a dishy doc you fancy at the hospital,
you seem to be going there plenty.
Only joking of course,
Hope all goes well and you get the Infliximab.
Love Kath x0 -
Hi Wonky,
Hope it all goes well and the tests are all good so you can get the infusions started. Slurps and ((( ))) Cris xx
Hi Kath,
reckonon you are right there you know xx0 -
Hi Wonky
Not any help to you....just a note to send {{{{ }}}} and wish you luck
Love
Hileena0 -
Hi, I have had the TB test, Mantioux test that is, at school with all the rest. Its just a scratch on the arm thats nothing & you hardly feel anything. They check it after a few days, and if its negative, they give you the vacination. In those days all children had it at 13, but I don't think they do it as a a matter of routine anymore.
Love Sue0 -
thanks for all your replies
Elizabeth - thanks for that info .... I'll be prepared in case they ask me to do similar tests .... don't have much puff myself at the moment so could be fun
Kath - well I think I'll let you know on that one once I have met all the staff Did I mention that I'm getting a new consultant? maybe you're onto something and I'll get a really dishy doc this time
Cris - thanks for the hugs, slurps and good wishes .... you know I'll be leaning on you for your advice when the time comes!
Hileena - when I was at junior school they did the 6-needle test rather than this newer one and then we had the BCG jab before moving to senior school. I don't think they give it to everyone these days .... but I def had it cos I remember vividly having a lecture on why we shouldn't faint ... oh and the teacher gave us all a huge gobstopper when we had had the jab ..... she wasn't daft ... we hadn't any way of telling any tall tales to the ones still waiting cos our mouths were otherwise occupied!
I'll let you know how it goes
hugs
Wonky0 -
Hi Wonky,
My friend lean away cus I can do infusions Mind we will all be helping you so...... You will be fine! Slurps and ((( )))'s and a pocket riffle from some very oddly dressed sheeps Cris xxx0 -
Hi Wonky.
i hope things go well for you.
try not to worry and take care.
hugs ((((((((to you and little legs))))))).
joan xxtake care
joan xx0 -
Hi
The Mantoux test is used all the time sin schools. I remember having this done before I had the BCG vaccination. It is nothing to worry about at all. From what i remember they out a pen type device against your forearm, tiny scartch and then I'm sure it it is visible / not. cant rememebr which, then you get the BCG vaccination.0 -
Hi Wonkey
just wanted to wish you the best of luck with it.
Sharon0 -
thanks again folks
all these new experiences .... just think what fun the 'normal' people miss out on Mind I think I might have been glad to miss out on Arthur, but well he brought me lots of new friends here .... so may no t be all bad :?
hugs
Wonky0 -
hi Wonky
This is interesting - I didn't know you had to have this done before going on anti-tnfs...
Hope all goes well ..
Best wishes
Marion0
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