Bad day

juliea

Hi all,
Woke up this morning to yet another day of pain, which meant that walking, dressing etc would be very difficult until about 11ish when pills would kick in. Normaly I can cope, and put a brave face on, today I took my son to school and came home and cried my eyes out.............. I have so had enough now. My youngest is six, has downs syndrome and the poor little chap had to help me get dressed this morning, sooooooooooooo not right. I feel I am letting him down so badly. I just feel that as time goes on, it's going to get worse, the future is not very bright.... I am so not a person who feels like this usualy, I guess today is a bad day.... Hopefully it's a one off.....................................................

dreamdaisy

It all comes and goes. Strong days are followed by weak days are followed by strong days and so it goes on. You'll cope, but do let yourself feel down from time to time, it's an essential pressure valve. Why shouldn't your child help you? Parenthood is not a one-way thing, children have to learn about the needs of others and how to help, what to do and what not. This is your second post in eight months - hopefully things have been better during that time - and they will be again. Take care. Dreamdaisy

only49

juliea wrote:

Hi all,
Woke up this morning to yet another day of pain, which meant that walking, dressing etc would be very difficult until about 11ish when pills would kick in. Normaly I can cope, and put a brave face on, today I took my son to school and came home and cried my eyes out.............. I have so had enough now. My youngest is six, has downs syndrome and the poor little chap had to help me get dressed this morning, sooooooooooooo not right. I feel I am letting him down so badly. I just feel that as time goes on, it's going to get worse, the future is not very bright.... I am so not a person who feels like this usualy, I guess today is a bad day.... Hopefully it's a one off.....................................................

hi i know how you feel we are all here for you, i got a son who 14 who got specail needs he is only too willing to help, dont worry about asking for help i'm sure he does it because he loves you and wants to help, we do have bad days but when you have a bad day it can only get better i always think tomorrow is another day and will be better, and some how it usally i find is, the most important thing is you found your way here to this forum we will help as much as we can.

take care, ((((( hugs ))))

sharmaine

Hi Juliea
So sorry to hear that you're not doing so well. Have you seen your GP lately? You may need a change of meds. Where do you have arthur. Try and rest as and when you can. With two little ones it must be hard. You're not letting anyone down - we can't help having arthur and it does make you very tired. A good cry will make you feel better. I often have a weep when the pain is just too much. Thankfully, when I have those spells I have a supply of Tramadol (from my GP) and this helps to keep me on the path of sanity.

Here's hoping you feel better soon. Lots of cyber hugs and best wishes ((((())))).
Sharmaine
X

juliea wrote:

Hi all,
Woke up this morning to yet another day of pain, which meant that walking, dressing etc would be very difficult until about 11ish when pills would kick in. Normaly I can cope, and put a brave face on, today I took my son to school and came home and cried my eyes out.............. I have so had enough now. My youngest is six, has downs syndrome and the poor little chap had to help me get dressed this morning, sooooooooooooo not right. I feel I am letting him down so badly. I just feel that as time goes on, it's going to get worse, the future is not very bright.... I am so not a person who feels like this usualy, I guess today is a bad day.... Hopefully it's a one off.....................................................

speedalong

Hi Juliea and welcome to the forum - sorry we have caught you on a bad day - but that is what we are here for to share the bad and good times.

How fab your young lad helped you this morning. Dont feel bad - he is used to people helping him and was most likely very proud to help you. My S has autism, he is now 18 years old and he helps me and I help him ... that is the way of the world. When I take him to Special Olympics all the athletes want to help me - push my wheelchair, carry my sticks etc - they love the fact that they can help me - role reversal.

Your lad will grow up a kind and considerate young man. Make sure you tell people in his hearing how great he is at helping his Mum, his self esteem will grow.

Has he been on half term hols? Now he is back at school - instead of rushing about for a few days catching up and doing "Mumsy" things - take time out to rest, sleep and be kind to your body. Then when he comes home in the evenings you will have enough energy to be more fun mummy - it is the time you share together that is important - reading stories, watching his antics, talking about a TV programme, sharing in his interests.

You are having a tough time, it will improve again, hang in there and keep reading and posting ...

Speedy

barbara12

Hi Julia
You are having a bad time you poor thing,go back to your gp and tell him, sometimes finding the right meds can be so drawn out.
Has for your little man having to help,then I am sure it will make him grow up into a lovely young man,responsibility never did anybody any harm.
We are always here when you want to talk,dont ever apologise for being down.
You take care and lots of gentle hugs (((((((())))))
Love
Barbara xx

tillytop

Hi Julia - Please don't add guilt to your diet of pain! (Easier said than done I know). I don't have children so I know I can't understand exactly how you are feeling but what I do know for sure is that living with arthur everyday is enough of a struggle for anyone - and in my eyes anyone who manages to do that and be a parent is absolutely amazing! Things may not get worse - this may be a particularly bad patch in the rollercoaster ride of arthritis. So hang on in there - and we're all here to listen whenever you need us. Thinking of you. Love Tilly xxx