SORRY AGAIN

joyful164

I need to apologise for neglecting everyone just lately. Blame Facebook. Because of my son, I got hooked.
Now, I have definitely come to the same conclusion as a lot of others, that it can cause a lot of harm.
So I have deactivated it for now, and then, after our holiday to Norway, I shall deal with it then. You get pulled into the games , e.g. I was hooked on Cafe World and you have to win points, cafe money etc. which you use to buy things. run a cafe and in order to keep making more money you invite friends to become neighbours, the more neighbours the more money you get, but then people you don't know want to join you and they seem genuine, I thenstarted getting a lot of warning messages from Bulldog our antivirus system.
So, I thought, this is wasting all my time and I should be painting.
So please accept my apologies, it was fun for awhile, but I have now seen the light.

Joy

joyful164

Hi Delboy

Yes it did. I could see the PC going down if I wasn't careful. I'm just hoping that we haven't got too many viruses in the system.
Just shows how careful you need to be.

There were two friends on facebook who had actually bought these extra Cafe Points because they were impatient to get their game moving faster. As soon as you have put your bank details into the system, you have got to be so careful.
I shall get Jim to do a fragmentation on the system today

Hows the car. We made £850 for Air Ambulance. Next year's Stilton Cheese run will be on 18th or 19th April, a bit earlier, because Drive It day falls on Easter Sunday.

Nice to be back

Joy

tkachev

Hi Joyful,

I am enjoying facebook. Have not added everybody i know otherwise it would overload. I have been able to look at old /new photos, chat about the old days, find a few missing friends etc. And see what my children are upto!

But yes it does stop you getting things done. Also i prefer to come on here to talk about arthritis related subjects because I know my friends dont understand the pain involved and although peeps might say they cant be real friends if they dont support you I do think you have got to experience it to understand it so i make allowances.

Glad to see you back to painting!

Elizabeth

frogmorton

Hi Joy

Welcome back

I agree it is so addictive isnt it?

I dont play any of the games just add teh odd message to my friends and they are all of them real.

Good to have you back

Love

Toni xx

livinglegend

joyful164 wrote:

Hi Delboy

Yes it did. I could see the PC going down if I wasn't careful. I'm just hoping that we haven't got too many viruses in the system.

I shall get Jim to do a fragmentation on the system today

He needs to update then run the anti-virus as defragmenting just puts things on the disk in order.

Defrag won't clean up viruses.

Joseph 8)

dreamdaisy

You make a good point, tkachev. I have friends who are thoughtful and supportive but they have no grasp of the reality of this disease that affects us. How can they? Here everyone knows what it's like, everyone understands the ups and downs, and the support one receives from total strangers is tremendous. I hope I offer support to people, I sure have received it.

Meanwhile, hello again joyful! You were around when I first joined, then you disappeared - now I know why. Facebook does have its good points but one has to be very computer savvy to negotiate its privacy settings to ensure that you are private. I have no intention of joining it, I prefer real people to cyber friends - oh, just realised, that's what you lot are! Oooooops! Anyway, its lovely to have you back and I hope you can clean up your computer OK. Dreamdaisy

joyful164

frogmorton wrote:

Hi Joy

Welcome back

I agree it is so addictive isnt it?

I dont play any of the games just add teh odd message to my friends and they are all of them real.

Good to have you back

Love

Toni xx

That's what I shall do when I get back from holiday. It was useful to put my pictures on. Got to find out how to get rid of the games then

barbara12

Hi Joy
Its lovely to have you back In the real world :? I have been on face book was put off by all the invites,you stay with us and have a laugh.
Take care
Love Barbara xx

annie_mial

Lovely to see you back, Joy. Do hope all your aches and pains disappear in time for your holiday. You do seem to overdo it at times, perhaps some r and r would be in order?

Good to see you are off the Pred, too - if I ever get there, I will mega-celebrate!

Annie

joanlawson

Hi Joy

So, I thought, this is wasting all my time and I should be painting.

I think you hit the nail on the head there. Your painting is far more important than Facebook. Anyway, we missed you on here, so it's nice to see you back.

Joan

trisher

dreamdaisy wrote:

You make a good point, tkachev. I have friends who are thoughtful and supportive but they have no grasp of the reality of this disease that affects us. How can they? Here everyone knows what it's like, everyone understands the ups and downs, and the support one receives from total strangers is tremendous. I hope I offer support to people, I sure have received it.

Meanwhile, hello again joyful! You were around when I first joined, then you disappeared - now I know why. Facebook does have its good points but one has to be very computer savvy to negotiate its privacy settings to ensure that you are private. I have no intention of joining it, I prefer real people to cyber friends - oh, just realised, that's what you lot are! Oooooops! Anyway, its lovely to have you back and I hope you can clean up your computer OK. Dreamdaisy

DD

I would just like to say something to you about this post you did.

We are not total strangers you talk to. We are friends and one big happy family I like to think.

So don't feel on the out side, come in and be a friend.

Love Trish xx

joyful164

Thanks for all the messages.
I do know that I have a lot of friends both on here and it was lovely putting faces to names, if you know what I mean.
It was my son who pulled me into the games and to begin with they are quite amusing, then before you know it you are addicted and you can spend hours on it sometimes.
My friend in Australia was into Cafe World too and got so impatient to get her game bigger and better, she paid to do it. I wasn't going to do this, but as you go along, they make it more and more difficult to getany further without paying money, so that was what decided me. Also the fact that I was getting too many strangers trying to 'Be a friend'. In a nutshell, it was all getting very suspicious.
When I get back from my holiday, I shall only go into it to catch up with some of my special friends and family on there.
I felt that I had to put all this down as a warning to others. There are some arguments in the media about FB, so I think my case is a lesson to all.

Love to you all. Thanks for your support

Joy

dreamdaisy

My apologies for upsetting you trish, that was not my intention, but I don't share your view. We are not one, big, happy family, we're a disparate group of human beings linked by one appalling thing: we all suffer (in varying degrees) from arthritis in its various forms. We have a great deal to offer one another in the way of support, encouragement, explanations, tips, hints and ideas, but that is all we really share. We don't 'know' each other, (although I know that some have met and that is a good thing), we are aware of each other's existence but at best these relationships are fragile, unstable things. We don't talk face-to-face, words do not capture the tone of voice, the nuances that actual speech conveys.

Different people use these forums in different ways, that's one thing I've learned since I joined. There are many who cajole, encourage, show an interest in others, respond to those in need, there are those who watch from a distance, posting only occasionally, there are those who come on to whine, get support then disappear, there are those who perhaps use the forums as a distraction from what they are feeling and trying to cope with.

We're all different, we're a fabulous resource of experience and information, and the forums are a good place to be. It's better than my family, who don't have a clue, but the people here are not my family. The people here are much more fun!

Finally, it's so good to see you posting again. I truly hope you are really on the mend. DD

abbie41

Thats a great post dreamdaisy, totally agree with it. I dont know any of you and what your lives are like. I do however realise we are all experiencing life with Arthur and if we have tips and can give help to people who are having problems, its a great thing.

I go on Facebook but haven't disclosed to my friends I have RA. I also go on a car forum and belong to a car club and I'm yet to tell them I have it too. I have only told immediate family and best friends. I'm not sure how this will affect my life yet so I will wait and see.

I was real worried and felt alone - So glad I found this forum!

dreamdaisy

A hint abbie. No-one will truly understand. They may make the right noises and say the right things but they won't have a clue about the reality of it all, unless they have experienced it themselves. You are right to be reticent: when you are comfortable with it then let people know. When you are reasonably sure about what you are facing, tell others so that you can deal with the insensitive and ridiculous comments that will surely come your way. Friends don't mean to be either of those things but they can't help it, they just don't have a clue. Lucky them. And they sure as hell don't appreciate that fact.

I don't fudge, I don't wrap things up in a nice, sugary-sweet coating, it doesn't do anyone any favours. You will have to dig deep and find a strength you didn't know was there. And I am sure you will do just that. DD

abbie41

I had a really tearful day yesterday, I was a mess, tired, sore, and totally fed up. tried to go shopping but couldnt cope on my own and just got so depressed and fed up.

I realised that wasn't me and to pull myself together and wait and see what the RA nurses say tomorrow at my appointment.
I realise I'm gonna have to ask for more help and to try an stay positive and opitimistic.

its bloody hard though!

joyful164

abbie41 wrote:

I had a really tearful day yesterday, I was a mess, tired, sore, and totally fed up. tried to go shopping but couldnt cope on my own and just got so depressed and fed up.

I realised that wasn't me and to pull myself together and wait and see what the RA nurses say tomorrow at my appointment.
I realise I'm gonna have to ask for more help and to try an stay positive and opitimistic.
its bloody hard though!

Some days are really hard arn't they? I sometimes gets so tired and then maybe weepy. Not so bad these days. I just tell myself that crying isn't goingto help me.

Do you have a husband who is supportive?
I would really like to know what your RA Nurse says. Have you made a list of what questions you want to ask. Is anyone going with you? You anyone going with you?
I shall be away from next Monday for awhile. Have a chat with the Cafe team or if really worried about anything, the Helpline Team can help you. It's very hard to find the motivation some days.
I usually write a list of the things I would like to do in a week, doesn't matter if you don't do them all but by the side make another list of the things you have done.

Goodluck with your appointment.

Joy