low white cell count

caprica

Hey has anyone had something similar happen,
I've been on sulfasalazine for 3 weeks, all seemed well, not had any side effects that I could see and I've generally been feeling well from the arthritis, no flare ups. But went to get bloods done the other day and my white blood cell count's dropped, not massively but they're taking me off the med for 2 weeks and then checking my blood again before they decide if I should go on something else.

I feel like I'm back at square one, really down about it. Blah. I guess I just have to get used to it as I'll have to keep changing medications my whole life.

speedalong

That's a blow isn't it.

Sorry I can't say more ... I have OA and so this is something I know little about.

Hope you don't suffer too much on your meds-holiday.

Speedy

wibberley

Hi Caprica,

I am so sorry to hear they've taken you off the sulpha for now - it must be extra frustrating when you feel so well.

I hope they get to the bottom of it soon and you can resume the meds.

Do keep us updated and I hope this is just a temporary blip.

Lois x

skezier

Hi Capricia,

That's not fair is it? With luck it was a quick blip and the next test will be fine and you will be able to start again. It should stay in your system for a min so hopefully you will stay feeling ok for the 2 weeks and then with luck it will resolve its self. Bloods do have a variation on them sometimes and hopefully that's all this will be. A ((( ))) and a hope Cris x

Hi Lois,

I know I am late getting back to you but loved the names Will be using one for sure..... and fairly soon I think..... ((( ))) xx

dreamdaisy

Hi, I'm with skezier here, it is probably just a blip and they are sensibly being cautious. These meds are trial and error (mostly error!) and we just have to roll with the punches. On the pkus side, it does seem to have been working well, but after three weeks you should still be on quiet a small dose: it is probably your body reacting in its own way. Good luck, try to keep well and let us know what the outcome is. Dreamdaisy

lynnemarie

i am on Sulfa and it took about 4 months before i felt any effect at all, the other comments are right, it may not be the drug for you, or they might have introduced to you too quickly.

not to worry there are other combinations out there and until they find the right one it will be hard, but hang on in there you will get there eventually x

caprica

Thanks guys!

I knew it was too good to be true - I wasn't having any side effects at all, not even yellow pee. It was all too easy lol

The other options are hydoxy or mtx. I worry whether hydroxy will be too mild but at the same time I dont want to take mtx as I feel quite well and I like to drink and I'm generally scared of it. Ugh. We'll see.

Thanks for the support!

dreamdaisy

Don't think about meth yet. You may well be put back on sulpha, you really hadn't had it long enough for it to be of any benefit, and certainly not enough for the reward of fluorescent wee! DD