LETTER FROM HOSPITAL - I AM SCARED

dreamdaisy

Hi carola, I hope you are feeling OK today, not so shaken up. DD

carola

Toni, Cris, DD, Caprica, ARna, Annie, Speedy, Chris, Marion, Abbi41 & Joy .......
Thankyou so much for posting your support and tips. You have no idea how much it means to me and helps me.
Got nowhere getting an emergency Rheumy appointment so said I would just turn up and sit and wait until someone saw me so the woman said she will get back to me on Monday!! :?
Saw a different GP today and he was fully of empathy and just dead nice which is sometimes all we need and he told me keep on at Rheumy appointment.
Went on Amazon yesterday and ordered x4 books on Lupus as I always feel better with some knowledge - a bit more in control.
They arrived this morning and the 1st one I read is AMAZING! Apparently I'll live - woo hoo! (or likely to anyway!) and the lupus diagnosis makes much more sense as talked about childhood migraines and lots of other stuff.
So, I feel like my usual self today and ready to kick this Loopy Lupus up it's backside (I'll boot Arthur too for old time's sake and yours!).
Many many thanks to you all once again. You are fab for taking the time to support me and I know the good Karma will visit you.
Much positivity and KEEP SMILING cAROL XX

dreamdaisy

This is the carola I know - full of attitude and strength. Nice to have you back! Keep fighting girl, you are allowed off days 'cos gawd knows we all have them, fighting takes energy and sometimes we run out. Keep us posted on any developments, you know we are here and we are interested. DD

annie_mial

Yes, Carol, definitely interested - you may be doing my research for me!

Keep going, chucky.

Annie

hileena111

What an awful way to find out......sorry I'm no help with this....just to send you {{{{{{{{{}}}}}}}}}}}

Love
Hileena

carola

hileena111 wrote:

What an awful way to find out......sorry I'm no help with this....just to send you {{{{{{{{{}}}}}}}}}}}

Love
Hileena

Many thanks Hileena ..... I am feeling sane again and full of fight!

Have a good day today xx

carola

dreamdaisy wrote:

This is the carola I know - full of attitude and strength. Nice to have you back! Keep fighting girl, you are allowed off days 'cos gawd knows we all have them, fighting takes energy and sometimes we run out. Keep us posted on any developments, you know we are here and we are interested. DD

Many thanks DD !!
Yep, I am battling on again so feel back in control again!
I really appreciate your support.
Hope you have a decent day today DD!!
Carol x

carola

annie_mial wrote:

Yes, Carol, definitely interested - you may be doing my research for me!

Keep going, chucky.

Annie

Many thanks Annie.

I have started a new topic about food intake as I stumbled across some success stories whilst researching my new diagnosis so will keep you posted on that.

Have a great day today, Carol x

woodbon

Hi
It must have been a shock and the internet, although good at some things, can frighten you to death. I know, I've often looked something up and got a shock.

You need to talk to someone, its a shame they didn't ask you to come in and tell and explain. I'm sure that would have been much better. The internet always seems to look at worst case sinarios. #

I'm sure you'll feel better when you've talked to someone. As was suggested, the helpline here is very good. Also maybe your GP?

Love Sue

lindalegs

Hi Carol,

As I've said on your other thread my sister has Lupus. She was diagnosed with it about 8 years ago at a guess.

She is 48 and leads a more or less normal life, goes to work, has her grandchildren to stay etc. She does have the butterfly stain across her face and the main problem she has is with her feet sometimes being painful.

She is treated with a form of malaria tablet. I know you don't get the deformities you have with RA/PA and you mustn't sit in the sun because you get a very itchy rash on exposed skin and you must also protect your eyes - you will get sun block on prescription.

Please don't believe all you read and glad to see you're keeping us informed of what happens.

Take care.

Luv Legs

frogmorton

Hi Carol

Good news! You feel way more in control - I can 'hear' it

Will be crossing my fingers that you get the emergency rheumy apt.

As you say - you will live and you will fight

Onwards and upwards eh?

LOve

Toni xx

sharmaine

Hi Carola

Sorry that you're so upset. I'm sure someone will come along with some advice for you.

In the meantime I'm sending you cyber hugs and best wishes. ((((()))).
Sharmaine

carola wrote:

Hello I hope you are all having a good day.

Just had a letter from Rheumy saying they think it is not RA I have but Polyarthritis caused by Systematic Lupus Erythematosus.

Don't know what the feck this is but a quick glance on a website has dissovled me into tears.

Sorry, I am sitting here by myself and freaking out.

carola

lindalegs wrote:

Hi Carol,

As I've said on your other thread my sister has Lupus. She was diagnosed with it about 8 years ago at a guess.

She is 48 and leads a more or less normal life, goes to work, has her grandchildren to stay etc. She does have the butterfly stain across her face and the main problem she has is with her feet sometimes being painful.

She is treated with a form of malaria tablet. I know you don't get the deformities you have with RA/PA and you mustn't sit in the sun because you get a very itchy rash on exposed skin and you must also protect your eyes - you will get sun block on prescription.

Please don't believe all you read and glad to see you're keeping us informed of what happens.

Take care.

Luv Legs

Many thanks Legs for the tips xx

carola

woodbon wrote:

Hi
It must have been a shock and the internet, although good at some things, can frighten you to death. I know, I've often looked something up and got a shock.

You need to talk to someone, its a shame they didn't ask you to come in and tell and explain. I'm sure that would have been much better. The internet always seems to look at worst case sinarios. #

I'm sure you'll feel better when you've talked to someone. As was suggested, the helpline here is very good. Also maybe your GP?

Love Sue

Thanks Sue. I went to see my GP the next day and although he was very sympathetic and provided me with lovely soft hankies (I burst into a flood of tears!) he admitted he didn't know much about Lupus so couldn't tell me much :roll:

Anyway, feeling back in control and more positive so weh hey! xx

carola

Sharmaine - many thanks for your hugs

sharmaine wrote:

Hi Carola

Sorry that you're so upset. I'm sure someone will come along with some advice for you.

In the meantime I'm sending you cyber hugs and best wishes. ((((()))).
Sharmaine

carola wrote:

Hello I hope you are all having a good day.

Just had a letter from Rheumy saying they think it is not RA I have but Polyarthritis caused by Systematic Lupus Erythematosus.

Don't know what the feck this is but a quick glance on a website has dissovled me into tears.

Sorry, I am sitting here by myself and freaking out.

carola

frogmorton wrote:

Hi Carol

Good news! You feel way more in control - I can 'hear' it

Will be crossing my fingers that you get the emergency rheumy apt.

As you say - you will live and you will fight

Onwards and upwards eh?

LOve

Toni xx

Hi Toni!
Aye, my fight and positivity is back
Thanks again and have a grrrrrreat day! Carol x