Our consultant seems to think that Bristol are going to say for Kayleigh to start etanercept. I've had to sign all the forms and additional blood tests today for it, so kinda a safe bet it will be given. I was asked how the swelling was from Saturday when she had the steroid injections and although I think they have worked she said today not good enough
she's also had a systemic reaction I think that's what she called it. Basically even though she was injected in her wrists it's spread to her hands and helped there as well but not well enough as she's still swollen.
I think that was the purpose of today really, for someone medical to look at her and see what she looks like since having the injections and whether they have done any good, if not plan of what to do next. From the way she was talking sounded like it will def be etanercept, along with continuing methatrexate (she aint gonna like that more injections every week).
I think now it's just a case of go on holiday enjoy ourselves and get back into it all after that. Hopefully I'll know before going away what the plan is going to be but as we're still waiitng for her shoes I can't see that happening.