Sorry, I don't normally resort to using this forum for a good old rant but have had a rubbish day and just wanted to sound off to someone who understands. I'll apologise now as I know many of you are in a much worse situation but after the last few weeks, I have just about reached saturation point on Freya's behalf.
Brief history: 4 and a half year old, daignosed JIA age 2.
7 joints injected since then, last one middle June, ten days later, diagnosed with bilateral Uveitis , treated with Prednislone drops, since identified another joint which needs injected, started MTX 4 weeks ago, had physio clinic and Uveitis clinic today, still active in both eyes, so they want her to increase MTX dose as soon as bloods come back and go back in a month, and continue drops and then to top it off, her joint injection planned for tomorrow has just been cancelled cause there are no beds available.! So , the ongoing stress of the last few weeks and all the arrrangements and psychological preperation for tomorrow - you know how stressful that is - and now back on the waiting list with loads of appointmetns due the same week as she starts school - oh and I'm six months pregnant, knackered and really need a drink but can't have one!!!
Freya copes brilliantly, puts me to shame actually - feel better now. Thanks for listening Hope you and all your small people are doing well today. If not, I hope I can help by being a supportive contact for you anytime you need it.