New plan....

robertls
robertls Member Posts: 2,304
edited 19. Aug 2010, 12:25 in Living with Arthritis archive
I managed to get an emergency appointment with Rhummy Consultant today...........much needed

Been struggling bigtime with pain...

Stopping Sulphasalazine..
Starting Leflunomide..

Stopping Ibruprofen..
Starting Celebrex..

Keeping Methotrexate..
Keeping Dihydrocodeine..
Keeping Folic Acid..

Adding Amitriptyline..at nightime..

Got bursistis in both hips, so a jab in each thigh, steriod and local anethetic.

And a depo in my bum

I know lots of people are critical of their Medical team, but for me....
the team I have supporting me are first class...I cannot praise them enough..

All I need is for the medication to start working.......ALL.....HAHAHA

Hope everyone has a peaceful nights sleep...

Rob x
Roba045.gif
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Comments

  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Oh Rob you poor thing, we never hear you moan, so we know you must have been suffering.
    How good that you have such a good team round you, what a difference that must make,my rheumy didn't want to know, and I waited 10 months to see him.
    I really hope the new meds start working very soon for you, the amitriptyline is really good at night, but be aware that when you first take it , It can be lunch time when you appear.
    But you do get used to it after a couple of weeks.
    You let us know how you get on .
    Love
    Barbara x
    Love
    Barbara
  • annie_mial
    annie_mial Member Posts: 5,614
    edited 30. Nov -1, 00:00
    Sounds a good plan to me, Rob.

    Missed having you around here........although I've been missing myself in fits and starts as I can't seem to keep out of trouble.

    I rather think I am going to be praising my new Rheumy.....he's given me the amytrip, too.

    Hope it all works for you and you get some much-needed relief.

    Love
    Annie
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    This sounds more positive. I would like to use CC spelling but won't. Good on yer Rob: it's time to fight back. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • Wonkylegs
    Wonkylegs Member Posts: 3,504
    edited 30. Nov -1, 00:00
    That sounds like a good plan Rob :D
    I have my fingers crossed
    that the Leflunomide works for you like it has done for me.

    Just be warned that the body can take a while to get used to it .. my first two weeks were awful with tummy upsets etc, but that soon cleared up.

    great to know your team are good .... they are not all bad out there :wink::wink::wink:

    wonky
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    great plan rob hoping it works for you fingers are crossed good luck val
    val
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Only just seen this Rob.

    Glad your Rheummy team have come to your aid. I must say mine have always been good to me when I have really needed them.

    I hope things start to improve for you soon.
    Let us know,
    Regards
    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • frogmorton
    frogmorton Member Posts: 30,086
    edited 30. Nov -1, 00:00
    Hi Rob

    good to see you and sounds very positive.

    Nothing like having a plan to make you feel more in control.

    Would you let me know if your bursitis jabs work?? I ahve had two lots (three altogether) and so far no good :(

    Love

    Toni xx
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Hi Rob

    So pleased that you got your emergency appointment and a consultant that listened to you!

    If you can just hang on in there to give the new meds chance to work, hopefully you will start to feel much better.

    Please do keep us updated on progress.

    Love Tilly x
  • chris7
    chris7 Bots Posts: 2,696
    edited 30. Nov -1, 00:00
    Rob

    Jeepers Rob, only just catching up so sorry love. You have been having it bad but glad you do have faith in your team. Really hope you start to feel better and in much less pain soon.
    Sending oodles of hugs your way. (((( ))))
    We will make room for your supportive team on the island eh?
    Hang in there, take care
    Chris
  • robertls
    robertls Member Posts: 2,304
    edited 30. Nov -1, 00:00
    chris7 wrote:
    Rob

    Jeepers Rob, only just catching up so sorry love. You have been having it bad but glad you do have faith in your team. Really hope you start to feel better and in much less pain soon.
    Sending oodles of hugs your way. (((( ))))
    We will make room for your supportive team on the island eh?
    Hang in there, take care
    Chris

    Island is only big enough for 2.....plus 5 dogs of course......

    But they can have a 'day pass'..........

    Rob x
    Roba045.gif
  • chris7
    chris7 Bots Posts: 2,696
    edited 30. Nov -1, 00:00
    Rob

    An excellent plan, yes day passes will suffice for the team. You see you are thinking clearly inspite of it all. :D Well done you.

    Chris x
  • robertls
    robertls Member Posts: 2,304
    edited 30. Nov -1, 00:00
    chris7 wrote:
    Rob

    An excellent plan, yes day passes will suffice for the team. You see you are thinking clearly inspite of it all. :D Well done you.

    Chris x

    Anyway Chris........Our Island will be an Arther free zone

    Rob x
    Roba045.gif
  • chris7
    chris7 Bots Posts: 2,696
    edited 30. Nov -1, 00:00
    Jeepers Rob

    I forgot that bit too!!! :? Really has been a bad brain dead week for me, think I had better start duvet day early.
    you take care
    Chris x

    robertls wrote:
    chris7 wrote:
    Rob

    An excellent plan, yes day passes will suffice for the team. You see you are thinking clearly inspite of it all. :D Well done you.

    Chris x

    Anyway Chris........Our Island will be an Arther free zone

    Rob x
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -1, 00:00
    Hi Rob :D

    ....now that's what I call a rheummy appointment :!:

    Wow....great when docs listen and take action. :wink:

    hope the new meds work wonders and the combo jabs give you some relief. If you take the amatriptyline earlyish (about 8pm) then you don't get the 'hung over' effects trailing on til lunchtime next day.:D

    Iris x
  • speedalong
    speedalong Member Posts: 3,315
    edited 30. Nov -1, 00:00
    Wow Rob,

    that was a productive appointment!!! Blimey!!

    Hope the med changes work out for you.

    Speedy
    I have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi Rob,
    Really good that you have had such a positive appointment.
    I do hope the new meds make all the difference for you.

    Good Luck and best wishes.

    Lv, Ix
  • carola
    carola Member Posts: 786
    edited 30. Nov -1, 00:00
    Hi Rob

    Just wondering how your new plan is doing for you or is it too early to tell yet?

    Hope you have a decent weekend with much pain relief.
    Carol :lol:
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Seconded by DD.
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • joanlawson
    joanlawson Member Posts: 8,681
    edited 30. Nov -1, 00:00
    Hi Rob

    I've only just read this, and I do hope your new meds work well for you. I've had the injections for bursitis, and they were a success for me.

    Good luck, and all the best

    Joan
    c1b3ebebbad638aa28ad5ab6d40cfe9c.gif
  • robertls
    robertls Member Posts: 2,304
    edited 30. Nov -1, 00:00
    Yesterday was no different to the last few weeks........

    Today...................Pain in hips is gone.......well its still there...............but I can't feel it....

    Its a strange feeling................not winceing everytime I make the slightest move......

    Long may it last.

    And sleeping for more than 20 minutes at a time........

    My GP wants be to have a good check-up before I start on Leflunomide..........Got appointment for Friday 20th....

    So........................looking promising.....at present.....

    Thanks for support from you all.......

    Luv and hugs.............Rob x c030.gif
    Roba045.gif
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I am so pleased to hear that you are feeling the difference already Rob. Long may it continue. You deserve a streak of good fortune now - I hope this is the beginning of a long one! DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    So pleased to hear that things are starting to improve for you already Rob!. And starting to get some proper sleep will, I'm sure, make the world of difference to you. Fingers crossed that it continues and that you can get started on the Leflunomide sooner rather than later.

    Love Tilly x
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Who are you shooting at rob?


    Elizabeth x
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • robertls
    robertls Member Posts: 2,304
    edited 30. Nov -1, 00:00
    tkachev wrote:
    Who are you shooting at rob?


    Elizabeth x

    h015.gifh015.gifh015.gifh015.gif Ephilumps of course...........Doh!!!!!!!!

    ROb x c030.gifc030.gif
    Roba045.gif
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Rob
    I am so glad the appointment went so well, and most of all you are seeing some improvement, keep up the good work.
    Barbara x
    Love
    Barbara

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