Please make it stop

2»

Comments

  • chris7
    chris7 Bots Posts: 2,696
    edited 30. Nov -1, 00:00
    Hi stlucia

    Glad you have called in again today and that you have been given some good advise here. Pleased the support has helped a little and hope all goes well at the next appointment for you. Just leaving a hug. ((( )))
    Chris
  • stlucia
    stlucia Member Posts: 392
    edited 30. Nov -1, 00:00
    You are all so kind, thanks for the hugs!

    I think I might have a cup of tea and a rest 8) and I am being cooked a roast dinner tonight by the mother in law - my day is getting better and better :D

    Any one for a cuppa?
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    stlucia wrote:
    Ooh we sound like shapes....circle, pentagon, rheumatoid, parallelogram...!

    Thank you for the encouragement with the paracetamol. I will keep taking it over the weekend and hopefully that will bash it all on the head.

    How are you today?
    x

    I'm good today thanks and I've just had a cuppa with you and I also stole a couple of my hubby's chocolate truffles out of the fridge, :oops: YUM. :D

    I like rheumatoid because it sounds like android and I walk like a robot (or penguin) with my RA.

    Have you got a Tens machine - I find mine very helpful with my larger joints when I'm feeling grim?

    Luv Legs
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • whitey44
    whitey44 Member Posts: 36
    edited 30. Nov -1, 00:00
    stlucia wrote:
    Dear all, thank you so much for your replies. I've managed to sort myself out this morning and get some breakfast - even if it has taken me until 10.15!

    To be honest, I'm almost scared to say that the medication isn't really helping as we are hoping to try for a baby next year and I am aware that I will have to come off all meds about 6 months before we start trying...and if I start off on new medication then they might want me to try it for a while...ugh! I just don't know what to do.

    I'm on 15 mg of Mtx (having been on 7.5mg for 10 years, and then upped to 10mg and then 15mg in the last year), and I have been on Diclofenac but don't feel that really helps either!! I'm not sure what my options are anymore. I've been on Sulphasalazine with no effect, in the past.

    Thanks so so so much for your help and support.

    Lucia x

    Hello Lucia

    Sorry to hear you're in a quandary at present :!:

    I'm somewhat surprised to learn that you are on such a low dose of MTX considering the length of time you've been taking it and the fact that you're clearly suffering.
    I started MTX approx. eight weeks ago (10mg) with increments of 2.5mg weekly. I am now on 20mg pw plus Naproxen and paracetmol. In the event that this combination fails, the Rheumy will add Sulphasalazine.

    As for trying for baby; no one can force you to take medication if you don't want to, it's your choice. Good news - I came off my meds 9 months before I tried for my baby; managed with paracetomal (when pain got too much) and lots of rest :!: :!: You can do it too :!: :!: :!: :!:

    Good luck

    Pure wishes & love

    Whitey :D XX
  • donnas
    donnas Member Posts: 119
    edited 30. Nov -1, 00:00
    Hey stlucia

    I'm RA (+) too and have had the evil vile life limiting disease since I was a child, but not diagnosed til I was 19. I'm 42.

    I'm glad you're feeling a little brighter, hope you feel better soon.

    I'd second contacting your consultant's secretary immediately. My hospital is hopeless at emergencies, but that seems to be the quickest way to be seen. I have "good" blood too, it's so frustrating when you feel like ****.
  • frogmorton
    frogmorton Member Posts: 30,087
    edited 30. Nov -1, 00:00
    Hi Stlucia

    hoping you are feeling a wee bit better?

    I agree with you all paracetamol helps!! It reduces your temp - which you might have if you are so very very tired at the mo. People poo-poo it dont they?

    Hoping you enjoyed your roast and it has restored some of your vigour - missed my cuppa and it's gone cold now :(:wink:

    Love

    Toni xx
  • cebeem
    cebeem Bots Posts: 472
    edited 30. Nov -1, 00:00
    Hi Stlucia
    Glad to see you sounding brighter! :D
    This forum really is encouraging and the reply from Whitey even more encouraging! Good luck with it all! CB :)
  • whitey44
    whitey44 Member Posts: 36
    edited 30. Nov -1, 00:00
    Hello StLucia

    How are you feeling today :?: Much better I hope.

    We've all sent lots of loving care which I would like to think combined with meds have taken the sharpest edge off the pain.

    I was so amazed & surprised to learn that you are experiencing similar symptoms to mines at this present time. "Its all over my body and my muscles hurt too;" Arthur is giving special treatment to Sternum, lumbar and every inch of right leg.

    In twenty years this has been the first occasion that muscles have been affected. Arthur likes to play with us; always attention seeking. ( Naughty, naughty) :!: :) Don't give in, never give up. REMEMBER lean on our forum family :!:

    Take good care and lots of rest.

    Pure wishes & love

    Whitey :D XX
  • whitey44
    whitey44 Member Posts: 36
    edited 30. Nov -1, 00:00
    cebeem wrote:
    Hi Stlucia
    Glad to see you sounding brighter! :D
    This forum really is encouraging and the reply from Whitey even more encouraging! Good luck with it all! CB :)

    Bless you Cebeem :!:

    Pure wishes & love

    Whitey :D X
  • marion1952
    marion1952 Member Posts: 963
    edited 30. Nov -1, 00:00
    Hello Lucia

    Sorry - I've only just caught up with your posts...

    Sorry that you are feeling so rough at the moment.. Hope the rheumy can help you next week..

    There are some RA drugs that you can take through pregnancy by the way, and you can also take steriods.. you should raise this with the rheumy too..

    Let us know how you get on..

    Marion x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Hi stlucia, I hope things are picking up for you. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • speedalong
    speedalong Member Posts: 3,315
    edited 30. Nov -1, 00:00
    Hi Stlucia -

    You have been given lots of good advice already.

    How is that list coming along? I love lists...

    Good luck with your appointment, let us know how you get on.

    SPeedy
    I have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.

Categories