my 6 year old grandaughter has zero negative arthritis

lavenderlady

shes been getting pains in her legs knee and hips and mum has been having to carry her everywhere when shes bad, i feel so sorry for ehr as she also has kidney problems, shes being referred to Great Ormond street, we all live on the Isle of wight so its a away from family and friends,
my arthritis has shown up on xrays rather then blood test and I was too told I had zero negative arthritis, but now told is OA chronic degenerative OA which is far advanced for my age, I'm worrying about my 15 year old daughter now ,this damn diease is affecting the women/girls in my family bad, I feel so sorry for Kassidy being 6 and having to cope with this

dorcas

Oh lavenderlady ...I am so sorry to hear about your little granddaughter this is such a worry for you I'm sure.

I don't have the right words to say that will make this time any easier for you and your family but will be around to support you any time, and in any way I can.

there are other mums and grans around the forum who have experience and knowledge of coping with juvenile arthritis who I'm sure will be along to offer you advice.

our helpline peeps are also around Mon-Fri so you could phone them for advice and support ...and information on this form of arthritis. Or post a question on the helpline forum.

gentle (((hugs))) for you, your daughter and granddaughter.

keep in touch and let us know how you all are..
Iris x

dreamdaisy

Oh lavenderlady, I am so sorry. Try posting on the young person's forum too - many parents and grandparents check in there from time to time, and someone might be able to offer some help or advice. OA does show on Xrays, RA can be diagnosed by blood tests, but as you have found, sero-negative cannot as it doesn't show up. Thinking of you. DD

skezier

Hi Lavenderlady,

I am sorry to read your news and hope they will soon be able to help her and get her more comfortable as well. Its a very good hospital she is going to and well I know its a distance away but she will get very good care there. I hope your daughter will be ok and not have any kind of bone trouble. Is she saying she has bones that hurt? I am so sorry I can't be of any help but thinking of you. Cris x

shiningstar

Hi Lavender Lady

My heart goes out to you as a mother of two and a grandmother to be I cannot imagine how hard it must be to watch those you love suffering. I think this disease is particularly cruel when it attacks children.....to be robbed of their childhood is just unbearable. I just hope that they can find the right meds for her ..please let us know how she gets on.

Love and hugs SS

lavenderlady

thankyou all so much I am going to give her mum Lisa this web site so she can get some up to date information about what Kassidys going through and what to expect, it will help us all, right now Arther just seems to be a big part of our life, with practically all my joints affected and TWR due to be done shortly plus knee and hip in the not too distant future worrying maybe unnecesary about my 15 year old daughter and now Kassidy as well, if I could have one wish it would be to find a complete cure for all types of arthritis Kassidy was delighted to find we both use the same cream for our joints telling everyone she uses nannys cream bless her its just not fair

bluelobster

lavenderlady wrote:

shes been getting pains in her legs knee and hips and mum has been having to carry her everywhere when shes bad, i feel so sorry for ehr as she also has kidney problems, shes being referred to Great Ormond street, we all live on the Isle of wight so its a away from family and friends,
my arthritis has shown up on xrays rather then blood test and I was too told I had zero negative arthritis, but now told is OA chronic degenerative OA which is far advanced for my age, I'm worrying about my 15 year old daughter now ,this damn diease is affecting the women/girls in my family bad, I feel so sorry for Kassidy being 6 and having to cope with this

Hi,

All i can say is try to be positive and try to always think how it could be much worse! I too have seronegative arthritis and it is good that they have picked up on the fact it is seronegative. It took them over a year to diagnose me due to the fact that it wasn't showing in my bloods and i got to a point whereby they were even insinuating that there was nothing wrong with me! Also, starting treatment at an ealry age could work for the best as she will grow up thinking it is the norm and hopefully it will be controlled to the point where it will minimise the risk of joint damage in later life.

Keep smiling.

barbara12

Hi Lavender lady
I am so sorry that your granddaughter has arthur, I do hope that your daughter will come on to the forum.
There are so many on here with children, I am sure it will help to know she is not alone.
And also get some answers to the questions she must have.
Sending you all loads of hugs (((((((())))))
Love
Barbara xx

marion1952

Hello Lavenderlady

I'm really, really sorry to hear about Kassidy. I do hope the hospital will be able to sort her out quickly.

You have an awful lot on your plate at the moment..

Take care

Marion

tillytop

Oh Lavenderlady, I am so sorry to hear this news. The only thing I can think of to say is that at least it has been picked up quickly and hopefully early treatment wil get it under control and give Kassidy some much needed relief. Thinking of you all. Love Tilly x