coming to terms, given my self a few slaps.. lol

tillypink
tillypink Member Posts: 212
edited 31. Aug 2010, 03:17 in Living with Arthritis archive
Hey Everyone

Just a quick message, its been a 1 week since I was told I have severe osteoarthritis at the age of 33 :( ! not the best news to have at my age!But got my MRI scan in 9wks to see how far it is and where to go next.

However have given my self a few slaps this week and thinking there are so many people worse off than me, and that its a good thing that I now know what's been causing the pain for the last 5months :) !

I know the pain isn't gonna go away over night and its more-likely to get worse before it gets better :roll: ! But gonna start to try and stay positive and not shut my self off and hide away, like I have been this week.. and let people help me and not be so stubborn and be independent Annie..lol.

Anyhow enough of me muttering on, just wanna say thanks to everyone's kind messages and help, in my previous post's ! :D

xx

Lisa(tillypink)

Comments

  • Rainbow77
    Rainbow77 Member Posts: 275
    edited 30. Nov -1, 00:00
    Hi Lisa

    You have had a big shock, so it is ok to feel down and a week is a very short time. So don't be so hard on yourself as acceptance of any disease or illness takes time and to be honest sometimes we can learn to live with it but not accept it ever.

    You will need to just take one day at a time, if you have a good GP and hospital team that will really help to make the most of what you have. The MRI scan will help the docs to put a plan together for you.

    Sometimes people are relieved to have a diagnosis as it is an explanation for the pain.

    I would get as much information about your condition as you can, I don't mean just surfing the net but get information from reputable charities and organisation about your condition, treatment and other advice. If you contact Arthritis care they will send you a pack.

    Keep posting as that can really help also.

    Well done for picking yourself up.

    Fayann xx
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -1, 00:00
    Hi Lisa :D

    Great to read how positive you're being. :wink: but as Fayann has said don't be too hard on yourself for needing some time out to come to terms with your shock diagnosis.

    Hopefully in 9 weeks the docs will have all the information they need to decide on a treatment plan. :D

    Hope you're not in too much pain 'til then and your doc being supportive.

    Keep posting Lisa. Being on the forum has helped so many of us through difficult times... but has also created lots of opportunity to relax and have fun too. So remember to have a look and join in the CC forum :wink:

    Hope you're having a good weekend.

    Iris x
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    dorcas wrote:
    Hi Lisa :D

    Great to read how positive you're being. :wink: but as Fayann has said don't be too hard on yourself for needing some time out to come to terms with your shock diagnosis.

    Hopefully in 9 weeks the docs will have all the information they need to decide on a treatment plan. :D

    Hope you're not in too much pain 'til then and your doc being supportive.

    Keep posting Lisa. Being on the forum has helped so many of us through difficult times... but has also created lots of opportunity to relax and have fun too. So remember to have a look and join in the CC forum :wink:

    Hope you're having a good weekend.

    Iris x

    thanks Iris, sorry to ask but wot is the CC forum?

    x

    Lisa
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    Rainbow77 wrote:
    Hi Lisa

    You have had a big shock, so it is ok to feel down and a week is a very short time. So don't be so hard on yourself as acceptance of any disease or illness takes time and to be honest sometimes we can learn to live with it but not accept it ever.

    You will need to just take one day at a time, if you have a good GP and hospital team that will really help to make the most of what you have. The MRI scan will help the docs to put a plan together for you.

    Sometimes people are relieved to have a diagnosis as it is an explanation for the pain.

    I would get as much information about your condition as you can, I don't mean just surfing the net but get information from reputable charities and organisation about your condition, treatment and other advice. If you contact Arthritis care they will send you a pack.

    Keep posting as that can really help also.

    Well done for picking yourself up.

    Fayann xx


    Thanks Fayann for ur advice, I have been doing loads of surfing on the net, also got some stuff in the post coming too. Gonna get a few books from the libray too, but not being able to drive at the min I have to wait for someone to take me :cry: .

    I also need to talk more bout how I'm feeling so I'm gonna bore everyone also..lol.


    How u doing this week.
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Tilly
    CC is chit chat, you come and join in, post something of your own if you like, or come in the cafe...calorie free food :lol: I am so glad you are feeling more positive, we all have our ups and downs, so don't worry about that, hopefully you will get the right pain relief very soon, that will make a difference.
    Love and hugs (((((())))
    Barbara xx
    Love
    Barbara
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    barbara12 wrote:
    Hi Tilly
    CC is chit chat, you come and join in, post something of your own if you like, or come in the cafe...calorie free food :lol: I am so glad you are feeling more positive, we all have our ups and downs, so don't worry about that, hopefully you will get the right pain relief very soon, that will make a difference.
    Love and hugs (((((())))
    Barbara xx

    Thanks Barbara, was starting to wonder than what CC was.. having a blonde day me thinks, excuse the pun :) !

    I'm sure I'll get my down days too, but gonna try and stay positive too.

    x :lol:
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Hi Lisa :):D

    What an uplifting posting to read from you, one week, on. Bless you. That's our girl! Don't worry if you go two steps forward and one back, brush yourself down, call in on here and we will get you on the up and up again. We all have our bad days and weeks as most people do in all walks of life. At least we have this forum to use as often or as little as we please.

    The CC forum is the ChitChat zone, you will find it on here along with the Living with Arthritis zone which is this one, there is the Young People's zone, the Hello zone and the Helpline zone and the Working Matters Zone. The CC zone is like it says, chatting about anything and everything generally "non-arthur" related and there is the cafe which is immensely popular, the bar and other things to join in with should you please. :)

    You look after yourself,

    Luv
    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi
    Good to hear you being positive...sorry I havent been on line for a little while.
    You wont bore us....of course you have to talk and who better to talk to than people that are in the same boat.
    No matter how caringn our hubbys/parents/partners are....if they havent gone through it they cant really understand. So you come on and talk or rant or whatever you want to do

    Love
    Hileena
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    hileena111 wrote:
    Hi
    Good to hear you being positive...sorry I havent been on line for a little while.
    You wont bore us....of course you have to talk and who better to talk to than people that are in the same boat.
    No matter how caringn our hubbys/parents/partners are....if they havent gone through it they cant really understand. So you come on and talk or rant or whatever you want to do

    Love
    Hileena

    Aw thanks Hileena, :) , gettin there! My partners been great fairplay, my parents have too! so thats great!

    Hope ur ok

    :)
  • speedalong
    speedalong Member Posts: 3,315
    edited 30. Nov -1, 00:00
    Hi Tillypink, have just posted on your other thread.

    You are sounding more positive - wow, well done you. Keep reading and posting, won't you...

    Speedy
    I have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    speedalong wrote:
    Hi Tillypink, have just posted on your other thread.

    You are sounding more positive - wow, well done you. Keep reading and posting, won't you...

    Speedy

    lol.. just replyed to u now funny enough speedy :wink: x
  • dippydoodah
    dippydoodah Member Posts: 350
    edited 30. Nov -1, 00:00
    Hi Tillypink

    Its good to hear your starting to feel a bit more positive. You are entitled to feel all sorts of emotions and we're all hear to listen. We're all going through the same things, one way or another and here to support you.

    Its great that your OH and your family are so supportive. Mine are too and it makes a lot of difference to how you cope. Without my husband and my family, I don't know how Id be today.

    Considering you only found out 1 week ago, I think you're doing brilliantly. The hardest part is accepting help when you need it. There's nothing wrong with that, I welcome it these days, gives me chance to rest now and then :)

    Keep smiling as much as you can and if you do ever have down days, we are here for you x
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    Hi Tillypink

    Its good to hear your starting to feel a bit more positive. You are entitled to feel all sorts of emotions and we're all hear to listen. We're all going through the same things, one way or another and here to support you.

    Its great that your OH and your family are so supportive. Mine are too and it makes a lot of difference to how you cope. Without my husband and my family, I don't know how Id be today.

    Considering you only found out 1 week ago, I think you're doing brilliantly. The hardest part is accepting help when you need it. There's nothing wrong with that, I welcome it these days, gives me chance to rest now and then :)

    Keep smiling as much as you can and if you do ever have down days, we are here for you x

    Thanks Dippydoodah :) means alot! I'm sure I'll still have my down days too, but gonna try and stay postive too! I think this web site is amazing :o:D ! so informative too.

    Hope ur well and painfree today at least :P

    x

    tillypink
  • dippydoodah
    dippydoodah Member Posts: 350
    edited 30. Nov -1, 00:00
    I don't know what Id do without this website really. It's been so great for me, even if I havent posted its been a great source of information from people who are actually going through the same things.

    Everyone is entitled to a down day. Ive had a fair few of them myself over the last 6 months, the odd days spent on the sofa in my comfies with a blankets, a brew and the tv, had a little sob but always felt better afterwards and ready to fight another day.

    But for every 'off' day Ive had, Ive also had some fantastic days where Ive been ready to face everything.

    Recently, my wonderful sister~in~law sent me a bunch of flowers to cheer me up by courier which really brightened my day.

    You're among friends here thats for sure x
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    I dont know what I would have done without the peeps on here.....Once I found out I was having a hip replacement...I bombarded everyone with silly questions {they wern't silly to me} like how do you sleep on your back afterwards.....my answer ....you dont LOL...I havent asked any questions this time 'cause I think it wont be much different 8 months on but no doubt something will come up and I'll ask.

    Love
    Hileena
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    I don't know what Id do without this website really. It's been so great for me, even if I havent posted its been a great source of information from people who are actually going through the same things.

    Everyone is entitled to a down day. Ive had a fair few of them myself over the last 6 months, the odd days spent on the sofa in my comfies with a blankets, a brew and the tv, had a little sob but always felt better afterwards and ready to fight another day.

    But for every 'off' day Ive had, Ive also had some fantastic days where Ive been ready to face everything.

    Recently, my wonderful sister~in~law sent me a bunch of flowers to cheer me up by courier which really brightened my day.



    You're among friends here thats for sure x

    Aw dippydoorah that was so nice of ur sister in law to do for u :D !!

    I know wot u mean wiv ur comfy clothes on slippers and cwtching on the couch all comfy!

    8)

    x
  • dippydoodah
    dippydoodah Member Posts: 350
    edited 30. Nov -1, 00:00
    and that is what i shall be doing today :D
    raining outside, so i shall be comfy on my sofa with the weeks corrie and emmerdale omnibuses :D
    ...and my little dog 'dave' by my side x
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    and that is what i shall be doing today :D
    raining outside, so i shall be comfy on my sofa with the weeks corrie and emmerdale omnibuses :D
    ...and my little dog 'dave' by my side x

    Snap me too, got my feet up and my dog tilly next to me sleeping and my partner on the other side too, good sunday morning, just need another coffee now and the papers and all set :wink:


    Lisa(tillypink) :mrgreen:
  • dippydoodah
    dippydoodah Member Posts: 350
    edited 30. Nov -1, 00:00
    arnt days like these the best...

    hubby's just made us some toast and jam and another cuppa ~ sharnt be moving today lol im very settled :D

    Enjoy your sunday!

    Caroline x
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi
    I've been to church....its a 44 mile round trip!!!!!!
    I'm now shattered....had lunch and having another cup of coffee to try and waken me up a bit LOL
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi Lisa,
    Have a restful day tomorrow. There's not much you can do until the scan is done although 9 weeks is a long time to wait when you are worried.

    You have done really well coming to terms with things but be kind to yourself and take things easy.
    Love the attitude girl :D

    Lv, Ix
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    ironic wrote:
    Hi Lisa,
    Have a restful day tomorrow. There's not much you can do until the scan is done although 9 weeks is a long time to wait when you are worried.

    You have done really well coming to terms with things but be kind to yourself and take things easy.
    Love the attitude girl :D

    Lv, Ix

    Hi thanks Ironic :)

    Just gonna try and stay positive, and take it day by day!

    Its 9 wks cause we live in a rural area and loads of waiting list's worse luck! :cry:

    Hope ur well

    x
  • chris7
    chris7 Bots Posts: 2,696
    edited 30. Nov -1, 00:00
    Hi Lisa

    Just calling in to check on you. Hope you having a restful day there and seeing some sunshine? We all know the ups and downs that come with OA and its' siblings so do keep posting and know we are all here to support you, each other when we can. Sending some hang in there vibes and a hug or two. ((( )))
    Chris
  • angie1973
    angie1973 Member Posts: 248
    edited 30. Nov -1, 00:00
    tillypink wrote:
    Hey Everyone

    Just a quick message, its been a 1 week since I was told I have severe osteoarthritis at the age of 33 :( ! not the best news to have at my age!But got my MRI scan in 9wks to see how far it is and where to go next.

    However have given my self a few slaps this week and thinking there are so many people worse off than me, and that its a good thing that I now know what's been causing the pain for the last 5months :) !

    I know the pain isn't gonna go away over night and its more-likely to get worse before it gets better :roll: ! But gonna start to try and stay positive and not shut my self off and hide away, like I have been this week.. and let people help me and not be so stubborn and be independent Annie..lol.

    Anyhow enough of me muttering on, just wanna say thanks to everyone's kind messages and help, in my previous post's ! :D

    xx

    Lisa(tillypink)

    Lisa,

    Like you I'm only 36 and have Fibro and OA, and it's a bit of a shock isn't it? But staying positive is a good thing to do.

    That is what I admire most about the people on here. EVen though there must be days when they could quite happily donate themselves to medical science, they keep on smiling and being supportive and have a massive sense of humour to go with it.

    I hope your scan goes well. At least knowing what you are dealing with gives you some power over managing it.

    Gentle hugs!
    Ange..xx
    _______________________

    Only 99.9% possessed by the giggle monster.........the other 0.01 % just eats chocolate..