knee pain started.

tkachev

I have had NO trouble from my knees for many years, although they were the first sign of R.A when it started 11 years ago. Anyway my right knee is in agony at the moment. For a few days it was just when using the stairs but now it is any weight bearing and is getting worse. It is at its worst when I have had a long rest and then weight bear.
I am not sure if it is connected to my left hip(which was replaced last year) because my thigh is also hurting- like a giant bruise

Luckily I see my nurse tomorrow .

I havent done anything different except not take my MTX for a couple of weeks, maybe 3(I have lost count)- because children were home from school and I couldnt face staying in bed when they need me so much.
Surely that short time wouldnt have caused such an increase in pain in a previously sound joint?

Elizabeth

dorcas

Hi Elizabeth

I don't know how soon joints would flare when Mtx is withdrawn :roll: I suppose it would be different for each of us and would also depend on how sensitive you are to it and what other meds you're on...?
I've had flares since coming off Humira and it is shocking how active and damaging arther can become in a very short period of time. (I'm now on another anti tnf so hoping it will work)

The other thing is that you have had RA in your knees for 11 yrs..... maybe dormant, yes, but 'there' all the same so the sudden knee pain might be arther doing his worst and switching the RA on again in your knees. :roll:

Sorry that's not a very positive response but perhaps the rheummy nurse will be able to give you better advice and also review what meds your on and get arther back under control.

please try and rest and let us know what happens when you see her tomorrow?

Iris x

barbara12

Hi Elizabeth
I am so sorry you are having more pain, I have OA so I wont be much help, just to say that I need a THR , and most of the pain I have is in my knee, I couldn't believe it was coming from my hip.
Maybe you have overdone things with the children being off school, I hope you can get some rest now.
Good luck tomorrow, let us know how you get on.
Love
Barbara xx

elnafinn

Dear Elizabeth

I am so sorry to read your posting. I do not have any answers but wanted to send you hugs. I know about knee pain and it is horrid and debilitating. Perhaps it is a flare or you have been doing too much. We always try to find an excuse don't we? Sometimes these things just start up and with a bit of luck it will go again. You do not need this, do you? Hopefully the nurse can help you tomorrow.

Love and hugs
Elna x

dreamdaisy

How foul. I have both knees constantly twanging away and I know well the misery. It could well be the lack of meth for you, apparently it does work quite well at suppressing pain for some and maybe you are one of those lucky ones. I guess the proof of the pudding will be when you re-start it. Rest it whenever you can, support it with a pillow - my knees do not straighten anymore, I always have to have something underneath them when sitting with my feet up, and take your painkillers. It is amazing how suddenly one's arthritis can start up, one day fine, the next foul. It's a sly disease. DD

tkachev

Thankyou for your lovely replies. It so helps to hear from you.

I have taken my MTX and son has been sent home from school on his first day due to being sick. I will try to rest but that is up to my son!

The pain is less at the moment but is awful at other times. Thankfully I still have my crutches.
I feel it is connected to my hip so maybe I have been overdoing things.

I had to stop Humira last year for my op but suffered no ill effects and am used to missing MTX as difficult to fit into my schedule.


E x

frogmorton

Hi elizabeth

Poor you I am so sorry you feel so bad.

I thinkm you could be right about the mtx - but what can you do? You have kids and responsibilities?

I hope your son is ok soon and that you are too.

Love and hugs

Toni xx

tkachev

Just to update(son is waiting for laptop) that I will be having an x-ray on knee as could be OA or could be due to reduction in MTX.
I got prescribed anti-sickness pills as have suffered terribly from MTX side-effects.
Apparently hormones can play a part in sickness symptoms as It has got worse this past few months. In other words I am getting old!

Nurse kindly finished off my DLA form-final section so that goes in the post tomorrow morning.

All the best
Elizabeth

chris7

Hi Elizabeth

Hope you are hanging in there and that the knee pain is just the lack of meds and not OA. Though my OA is in hips the knees are often more painful because of the mobility issue. At least they are looking into things so hope you do feel better soon.

Well done with the DLA forms, I keep giving mine a coat of looking at but don't get much further. :? Might try to get to CAB again.
I send some hugs, stamina and healing your way. ((( )))
take care
love
Chris

dreamdaisy

You can look all you want chris7 - that won't fill 'em in! Go on, take the plunge, start off in pencil. Get the feel for it. If you no like, then ring the CAB. DD

marion1952

Hi Elizabeth

Sorry that you are having new problems in your hip and particularly your knee. Glad that you are having x-rays done.

It might be a combination of both RA and OA (I have mild OA in both my knees, but also get RA flares in them, so sometimes it's hard to tell which arthur is causing the pain!!)

I can miss one dose of MTx without any problems, but a few years ago I stopped it completely and within 3 weeks I could barely move again - so it does seem to vary from person to person..

Take care

Marion

tkachev

Hi Chris,
I looked at them for a long time too but I would contact CAB and get them started asap just because of the difficulty getting an appointment and then the nasty weather will set in and you wont feel like it.
Marion, I havent had problems going without MTX or Humira although last time I had MTX reduced it showed in my bloods and it was increased again.I would have had the X-ray today but I wasnt feeling very well.Nurse didnt push it as she could see I wasnt up to it.
I am hoping the anti-sickness pills work as I cannot afford to sit in bed as I get so behind with everything.

Elizabeth

frogmorton

Hi Elizabeth

I hope the antisicky pills help too and I am suprised they didn't try them for you before. Hope you can get your xray done soon

Chris - Elizabeth is right......and DD I would photocopy the bits that are harder and have a go in pencil myself, then get off to CAB for help.

LOve

Toni xx

tkachev

Hi Toni

I never knew about anti-sickness pills until I read on here so I asked about them. Other option is to go back on MTX injections but that didnt work last year when I tried.Apparently they are slightly different now.It would be difficult to have the MTX around with the children so young so prefer tablets which get locked away in a drawyer.

Chris fill in the address and N.I details phone, birthdate and docs address as a start just to get you going. Then leave the rest to CAB and then you just sit down and talk to them and they do the hard bit for you.

Best wishes
Elizabeth

chris7

Hi Elizabeth

Hope you are feeling better today and not so nauseous there. Sorry to see the x ray was postponed hope you don't have to wait too long. Thanks to you DD, and Toni. for the push I have got me pencil out but gee it is so depressing trying to fill these forms. The care bit is bugging me big time. :x Do I need help with stuff? yeah, but when there is only me here and I don't drive, the questions are nonsense. Hey ho. Guess my covering letter will have to be a long one. :?
Hang in there Elizabeth.
take care
love
Chris

dreamdaisy

Don't let it bug you. If it says 'do you need help' say yes, but there is no-one to give it. Tell it how it is chris7. Get them done and dusted, and photocopied. The sooner you do, the sooner you may recieve very useful help. DD

skezier

Hi Elizabeth,

Hope the anti-emetics will help and sorry you have both the pain and the delay in the xrays. I really hope that you get some relief and that the dla people do whats right by you. Some people do still get it first time, it depends on if they read it i think?!

Hope the mtx soon gets to work and you start to feel much better. ((( ))) and a bucket of hopes Cris xx

Hi Chris,

The answer to do your need help is YES! No explanation there isn't anyone there to help the answer is just YES! That's what I am told anyway and as you know I have no help either but that doesn't mean I don't need it ((( ))) xxx

speedalong

Hi Elizabeth, I have OA in my knees and they were MUCH worse when I had problems with my hip ... if your hip is aching and you are using it differently to try and make it hurt less ... then that could easily be triggering your knee to be painful.

Hope the anti sickness meds work. Is your son feeling better? have they rescheduled your X rays for you?

Chris7 - you have answered your own question,

Do I need help with stuff? yeah

Whether there is someone there to help you or not is immaterial ... if you were awarded the DLA you could use it to ensure help was there when you most needed it ... The questions often have a clarifying statement to this affect. Probably best to fill the form in or make notes for the answers on a bad day ... or the day after a bad day when it is still fresh in your mind.

Speedy

ironic

Hi Elizabeth,

Hope today has been better for you. Cannot believe they did not offer the anti sickie tables sooner.

Do hope they work for you.


Take care,

Lv, Ix

marion1952

Hi Elizabeth

How are you?

Is your son OK now??

Marion

tkachev

Hello all,

I woke up Fri morning feeling fine apart from joint pains. As we were going away for the night I had to iron and pack and the mental stress and physical effort made me very tired.
I had a lovely time but my left foot and right knee were worse than ever and I had to give up and to go to bed at 2 a.m. and sleep in a tent which was awful. But still I enjoyed the break from the usual.And yes the hip pain started up and I think this is all connected but I was worried I had overdone it- dislocation is always a fear.

I will try the anti-sickness pills next week for the first time and I so hope they work. I dont know why they have never offered them to me before but this time I made the point that 2-3 days a week lost is just too much to cope with. Even in bed you dont get rest as you feel so awful.

They are going send X-ray appointment in the post because she could see I couldnt have waited for an X-ray that day.Nurse said I should have cancelled appointment as she had spare ones in September and could have rescheduled but I didnt know that at the time.Anyway I needed her to fill final part of DLA form for me and also wanted her to see me when not too well so she would undersatnd my needs.

My son is fine-just he refuses breakfast before school. He is autistic and wont change this routine. So I think all that happened was empty stomach and a longish journey to school.

Chris leave all that to the CAB as they will know how to answer for you. Just get an appointment and leave that all to them. You can sit as you talk. Leave all your other problems and focus on the DLA forms only as it requires a lot of thought.

Best wishes
Elizabeth x