Dorcas and infliximab

dreamdaisy
dreamdaisy Member Posts: 31,520
edited 15. Sep 2010, 05:31 in Living with Arthritis archive
dorcas has had her mouse-based infusion today - I hope, my lovely, that it went OK and that you are feeling OK. Dandelion leaves are on their way. Oh, go on then, as it's you - have a chew as well. (()) DD
Have you got the despatches? No, I always walk like this. Eddie Braben
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Comments

  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -0001, 00:00
    Hi Dorcass

    Hope your infusion went well today and that it hasn't left you feeling poorly.

    My eyes are crossed for you as they are the only things i can cross

    Hugs ((((((()))))
    juliepf x
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi DD and Julie,

    She has just escaped and on her way home. Said she is feeling wished but not as bad as last time yet and I so hope she doesn't get the nausea as well this time. xx

    Hi Iris

    When you get in Hope is going to put your feet up for a bit and fingers crossed you feel so much better than last time. ((((( ))))), a cuppa and a nerve calmer as the trip to the station with Hope just wasn't good :lol::lol: xxx
  • lululu
    lululu Member Posts: 486
    edited 30. Nov -0001, 00:00
    Don't know what it is but I wish you well Iris
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -0001, 00:00
    Hi DD, Julie, Cris and Lululu

    Cris, really good news that she's on the way home - I have been thinking of her. Iris, hope you don't feel so rough after this one - and that you start to see some benefit really soon.

    Thinking of you.

    Love and ((())))s Tilly xxx
  • annie_mial
    annie_mial Member Posts: 5,614
    edited 30. Nov -0001, 00:00
    So glad it's been better this time - and Cris, is Hope putting all her feet up as well?

    Annie
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi Annie,

    Oh she very well might :wink: xx

    Hi All,

    Iris said she will try and get on site after but just for now she needs to have a rest up as these infusions don't half make you feel wished eh? So far she isn't feeling as ill as last time so that's good and fingers crossed it will soon wok eh?

    You all take care and anyone bored come help with evening duties please...... Cris xx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Tell her we don't want to hear from her until tomorrow! We want her rested and recovered.

    Was it lululu who didn't know what infliximab was? It's an anti TNF treatment, given by infusion in hospital. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • speedalong
    speedalong Member Posts: 3,315
    edited 30. Nov -0001, 00:00
    Hi Iris, hope the new meds don't make you feel too sick, the washed out feeling wears off and most importantly they WORK!

    Speedy
    I have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.
  • trisher
    trisher Member Posts: 9,263
    edited 30. Nov -0001, 00:00
    Glad It went better this time Iris

    Hope it makes you feel better too.

    Love Trish xxx
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -0001, 00:00
    Hi Iris,
    Do hope you are having a rest and have a better nights sleep.
    Fingers crossed for you that the sickness is mild this time.

    008.GIF

    Lv, Ix
  • Wonkylegs
    Wonkylegs Member Posts: 3,504
    edited 30. Nov -0001, 00:00
    HI IRis,

    hope you are resting now and that you have escaped feeling better than you did last time.

    I have been thinking about you lots today. I found littlelegs ironing her very best nurses outfit, so I think she has plans to come and visit you :shock: but so far I've managed to persuade her you need your rest :wink: Hope you don't need her (not so gentle) ministrations :wink:

    take care to rest loads won't you?

    love and hugs
    WOnky
  • marion1952
    marion1952 Member Posts: 963
    edited 30. Nov -0001, 00:00
    Hello Iris

    Hope you feel better after a night's rest..

    Marion
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -0001, 00:00
    Dear Iris,

    I do hope that it all went better this time round and you will feel much better tomorrow.

    Love
    Elna x(())
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • frogmorton
    frogmorton Member Posts: 30,412
    edited 30. Nov -0001, 00:00
    Morning Iris (or Cris if she's not able to get on)

    I hope you are feeling ok and that you had a good night's slep last night :D Had everything crossed for you and hope it helped.

    No dandelions here - I don't like em :shock:

    LOve

    Toni xx
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -0001, 00:00
    Morning Iris (or it may now be afternoon this comp is so slow at moment)

    Hope you had a goodnights sleep and that you feel well today

    love juliepf x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Morning dorcas, diabolic here popping in to say I hope things are OK with you today. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • lululu
    lululu Member Posts: 486
    edited 30. Nov -0001, 00:00
    Morning Iris, how's your'e fettle this morning hope you have and a goog night.

    lulu x
  • dorcas
    dorcas Member Posts: 3,516
    edited 4. Sep 2010, 06:27
    Hi Lulu, DD, Toni, Cris, Trish, Marion, Elna, Tilly, Wonky, Annie, Ironic, Speedy and Julie PF... :D

    Thanks damsel for the thread and thank you all so much for your doing pocket duties again and for all your kind wishes ...and flowers. :wink:

    I don't feel as bad with the infliximab as I did last time.... still the same overwhelming tiredness but so far no headache or nausea.

    the rheummys' were a bit concerned when I told them about the headaches and nausea after the 1st infusion.... said I should've phoned in as it may be an indicator of intolerance or adverse reaction.... but as I have another autoimmune condition that affects my liver it could be that 'complaining' and hopefully will settle.
    The tiredness is a common after effect so didn't worry them.

    After lots of questions; did I have a rash, feel hot, itchy ears (?), cough, feel dizzy, tightness in the chest or breathlessness...
    they decided to go ahead with the 2nd infusion but kept such a close eye on me and even when I shut my eyes the nurse came over to make sure I was ok! so no sleeping allowed.
    I also had to stay in a bit longer when the infusion was finished.... but can't complain as they were really looking after me. They gave me a 'Biologic Therapy' Alert card to carry so's anyone treating me will know what treatment I'm on; the card also has the ward's contact number and consultant's details. (I had this card when on Humira too)

    the tiredness is hard to describe...it's like someone drained every ounce of energy out and poured lead in instead. weird, but if that's all I have to put up with for 24hrs or so...then that's fine by me.

    Cris and 'Hope' kept me company in the hossie and as usual hope got up to high jinks...but she did let me sit on her back on the way to the train and tucked me up in bed when we got home. :lol:
    I see too that 'little legs is getting her nurse uniform on so I'd better get back to normal quickly! :lol:

    you know, we are mad as hatters....but the fun texts and laughter kept me going ...thanks Cris....you are a wee angel so you are. a020.gif

    Iris xxxx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    It's lovely to hear from you: I am so sorry about the tiredness etc, I had none of that but then it didn't work for very long with me - I will stick to my theory that side FX = meds working somehow! I was interested to hear of your alert card, that must be a Scottish thing 'cos I have never been given one, or a blue steroid card either. Ho hum, I guess I'll just have to remember to tell people! (tho I do have my drugs listed on my phone, in a folder thingy under the heading of ICE. Oooh, that could be a tip, I'll go and post it now.) DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • chris7
    chris7 Bots Posts: 2,696
    edited 30. Nov -0001, 00:00
    Hi Iris

    Just checking up on everyone. Hope you are having a rest today and that the infusions do help and get easier for you. Just leaving a hug and some of our sunshine. (((( )))))
    (Thanks DD and Cris for the updates.)
    take care Iris, love to Wally.
    love
    Chris
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -0001, 00:00
    DD you should ask about the 'Biological Alert' Cards...they are printed by ARC (now called Arthritis Research UK) which is a nation wide organisation... so must be available in every hospital.

    The card is the size of a credit card and made of plastic.
    On one side it advises the patient what symptoms/ effects to look out for and when to report; also to show the card to anyone treating you...including, nurses, pharmacists, podiatrists.
    (has lots of other useful info for patients on it too)

    On the other side it advises health professionals that you are on biological treatment and that this therapy can increase the risk of infection and mask symptoms of fever and pain.
    It lists, patient name, current biological therapy, consultant's name, hospital and hospital phone number.

    Ask the rheummy nurse next time you see her DD.... she should know about them..or phone ARUK?

    Iris x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Thank you dorcas, I shall do that next Wednesday and I will report back. You are a mine of useful information! DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi Iris,

    I still think its the amount of saline :wink: You rest up and take it easy and with little legs and her ladyship to nurse you as well as your own loons in their best white coats just watch out for those thermometers :lol::lol: If Stampy turns up be very afraid... she has more thermometer training than the rest :lol:

    Leaving you some eggy toast, a cuppa, a bit of saffron and some very nice experimental dandelions I have secretly been growing on Toni's lawn :wink: ((((( ))))) xxx
  • frogmorton
    frogmorton Member Posts: 30,412
    edited 30. Nov -0001, 00:00
    Oh Iris

    it IS good to see you :)

    I am glad that the 24 hours has gone and with it the 'lead'.

    You please take care - I miss your homour when you are awol.

    Love and hugs

    Toni xx and Daisycat who is 1!!!!!!!!!!!!!!!!!
  • ritwren
    ritwren Member Posts: 928
    edited 30. Nov -0001, 00:00
    Hi Iris, I'm glad to hear you're well on your way with your treatment, I've been thinking about you. I hope the severe fatigue does'nt make things too difficult for you. Hopefully you'll have a ready meal or something just to pop in the oven to eat and can rest up until you start to get more energy again. It certainly seems like they're looking after you and the alert card sounds like a good idea.
    Hope things are good for you this coming week and you soon start to really see some benifit of the treatment.
    big hugs always, rita :)

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