still ill and stopping Mtx

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  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I thought when I started humira (my third anti TNF) that if it proved to be successful I would be able to drop some of the other stuff, like my consultant said (fair play to her, she didn't promise but she did drop an almighty hint). No such luck. It has been effective, but I am still on meth, naproxen, sulpha and steroids. Anti TNFs are not silver bullets: around here (where I live) you have to have tried and failed everything else before they put you on one. The time that wastes. Grrrrrrrr. Oh for a few hundred thousand in the bank! DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -1, 00:00
    Hi Sally :D

    Hopefully your consultant rheummy and the biologics nurse will together discuss what the next treatment is for you.

    Success or failure of ant tnfs varies considerably and I had a good 4yrs on Humira before it stopped being effective.... not because the drug failed but because my body started producing antibodies that halted it in it's tracks . (how wonderful the human immune system is :wink:)

    I've just started on Infliximab and am hoping for a good result from this ant tnf.

    I think that's all any of us can do.... think positive and hope for the right treatment and be prepared to move onto the next one! arther is a very slippery customer!

    It's maybe worth you knowing (and thinking about) that the rheummy's like the anti tnfs to be taken in combination with Mtx as it's proven to be more effective when taken together.

    Fingers are still crossed for you Sally that you soon feel well again.

    Iris xxx
  • marion1952
    marion1952 Member Posts: 963
    edited 30. Nov -1, 00:00
    Hi Sally

    Hope you are continuing to improve with regards to the infection..

    This drug issue is a real dilemma - I am haivng to think about increasing mtx or going on to something else too - I'm really 'dithering' about what to do..

    Best wishes

    Marion
  • wibberley
    wibberley Member Posts: 421
    edited 30. Nov -1, 00:00
    Hi Sally,

    You really are going through a rough time! Fingers crossed whatever they put you on next works better than the mtx.

    Lois x
  • salamander
    salamander Member Posts: 1,906
    edited 30. Nov -1, 00:00
    thanks again everyone, am having a bit of a rough ride but hope to get back on form again soon :) It's tipping it down here so going to tuck myself up in bed with a hottie and a cuppa and hope tomorrow is a better day.
    xx
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Nite Sally,

    Hope it's a good one for a change.

    Thinking of you,


    Lv, Ix

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