Shakes

simon123
simon123 Member Posts: 9
edited 14. Sep 2010, 04:29 in Living with Arthritis archive
Hi guys!

I have used this forum from time to time, not as much as I should perhaps because I was diagnosed with PA late last year and since then have had/am having a pretty hard time coming to terms with it. I'm 32, a bloke and just struggling full stop at the moment. I was started on steroid jabs that didn't work long term, I was then put on MTX and now my Rheumy has added sulfasalazine to the MTX to try and get it under control. I've been on this combination since June and have had a sore throat (sorted out with antibiotics), a few mouth ulcers, but more worryingly I seem to be getting the shakes in my hands quite a lot, and it's only getting worse. I see my rheumy in a couple of weeks, but I was wondering if anyone else has had this issue with the shakes?

Thanks for reading my stresses!

Si

Comments

  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Si,

    Your allowed to come and post your stresses! Its hard to take it in when your told you have something and I think we all struggle with it from time o time.

    The shakes.... I do get them but when you see your rumo please make sure you tell them. It could be some form of nerve irritation/damage depending on where the pa is.

    I rally hope things will improve for you and leaving you a cyber ((( ))) and hope you have a decent day. Cris x
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    with chris on this had trapped nerve in neck and this gave me the shakes not a nice feeling mention it they might be able to help good luck where else would you come to mention these worries glad to have you as often or little as you wish val
    val
  • frogmorton
    frogmorton Member Posts: 30,086
    edited 30. Nov -1, 00:00
    hi good to see you :)

    you are welcome to pop in and out of the forums :)

    The shakes....def mention them - my youngest is on epilim and she got teh shakes on them and her meds (not the same of course) had to be reduced a bit.

    I agree with the others yours COULD be nerves being trapped arthritis can do that :(


    If rheumy apt is not iminent - then ask doc or pharmacist.


    Love

    Toni xx
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -1, 00:00
    Hi Si :D

    It is so hard coming to terms with what is likely to be a long term condition..... and some of us (me included) continue to revisit the 'denial, anger, acceptance, frustration' emotional stages for a long time.
    Post when you feel you want to, read as much as helps you, and know that whenever you want support...we are here, ready and willing.:wink:

    I don't know if you've looked at the Psoriasis and Psoriatic Alliance website? I have PA and I found it really helpful for information on PA and it's links to aspects of the condition and the available treatments. I've posted a link for you which I hope helps.
    http://www.papaa.org/tiki-custom_home.php

    With regard to the trembling hands you're experiencing.... I haven't had that. Perhaps it's the meds, or pressure on the nerves... such as carpel tunnel syndrome ...BUT I am guessing and you need your doc or rheummy to investigate these symptoms and advise on the cause...so it's good you don't have long to wait before seeing them!

    Let us know please how you get on. :wink: nice to see you back :D

    Iris xx
  • marion1952
    marion1952 Member Posts: 963
    edited 30. Nov -1, 00:00
    Hi Si

    Funny you should raise this, because my hands always shake when I wake up in the morning and have a stretch.. I am not aware of it happening any other time.

    I have been on methotrxate (alone) for two and a half years now and have been aware of the shaking for about 4 months now.

    I intend to mention this to my rheumy when I see her in a couple of week's time.

    Marion
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Oh poor you. I too have PA and am on meth and sulph. And a shed-load of other things too, none of which have really changed anything re the arthritis. I have not had the shakes though, or ulcers. I do have tiinitus, thanks to the sulph. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    I'm sorry I cant really help...I've got OA....justsending ((())))
    I know its hard gettinbg to grips with a chrinic illness so please come on and chat/moan/vent whatever

    Love
    Hileena
  • simon123
    simon123 Member Posts: 9
    edited 30. Nov -1, 00:00
    Hi Guys,

    Thanks for the support and help, I'm seeing my rheumy in a couple of weeks (he's really great, and very honest about what the next steps are, at my last appointment in June, he told me that if MTX and Sul don't work then he will put me on Imfliximab, so he's thinking ahead)

    Also, I think and know it's going to take time for me to get my head round all this. It's put a huge strain on my relationships, especially with my girlfriend, and every time we think we have got an idea of when I'll be able to get back to work, up pops another obstacle which pushes it all back.

    So thanks again guys, and if anyone wants a chat, please pm message me, as I have a lot of 'empty' days still ahead!
  • frogmorton
    frogmorton Member Posts: 30,086
    edited 30. Nov -1, 00:00
    Hi Simon

    sounds as though you do have a plan B at least.

    I am so sorry that it feels abit like one step forward and one back at the moment.

    Not working is very isolating and not good for relationships is it? I take it you and your girlfriend live together. I feel for her and you both - it is so hard.

    Once the meds get sorted properly I hope things will be better - not as they were before of course - but WAY better than now.

    If you have time on your hands you must get over on chit chat and join in there too.

    and dont forget to let us know how you get on at rheumy's :)

    Love

    Toni xx

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