Going to disappear

queenfan · 13. Sep 2010, 10:28

I have posted quite a lot over the past few days, which a lot of you know is not like me,
But I need to shut myself away now, because I am in so much pain, all over, just broke down to hubby, I am so ashamed of what I am putting him through some thing always wrong with me, I've just got over yet another infection,now with all this pain I've started with what I think is another boil under my arm,I've waited nearly three years to see my rheumy, since finding out about my kidney, I know I have OA in spine, hips, shoulders & neck & OP in left hip because of xrays, but I'm not allowed any anti inflammatory because of kidney, just morphine patches, & paracetamol for pain
I'm sorry to moan but, feel so upset, trying to hang on until seeing him Friday. I haven't a clue what to say to him because I get all tongue tied like a fool, he's new so never seen him before.
thank you for listening to me moaning :roll:
Love Sue xx

Wonkylegs · 13. Sep 2010, 10:33

queenfan wrote:

But I need to shut myself away now, because I am in so much pain, all over, just broke down to hubby, I am so ashamed of what I am putting him through some thing always wrong with me

I'm sorry to moan but, feel so upset, trying to hang on until seeing him Friday. I haven't a clue what to say to him because I get all tongue tied like a fool, he's new so never seen him before.
thank you for listening to me moaning :roll:
Love Sue xx

OH Sue love, you moan away as much as you feel you need to - after all if you can't moan to us who can you moan to?!

I'm so sorry that you have been hanging on for so long for answers, and that there are other problems preventing you from getting the meds that you need.

please don't hide away if you are hurting this much - we are here to support you and we'll be here for you whenever you need us.

PM me if you like rather than posting in 'public' if that helps.

As for the new consultant - I can only tell you that from my recent experience, sometimes when a consultant retires (as mine has) and a new face appears, it can lead to positive outcomes .... a new face may be just what you need.

if you find it hard to tell them in person how things are for you then why not write them down .... I did and it really helped me and them

not to mention it is quicker and you can't forget what you want to say

loads of hugs
WOnky

nanasue · 13. Sep 2010, 10:41

From one Sue to another, please don't do that, we are all here for you,I know what it's like I've been there myself. I just wanted to say I agree with everything Wonky said.

Sending love and gentle ((())) hugs,
Sue xxx

hileena111 · 13. Sep 2010, 11:03

Aww Sue,
I'm sorry ...try not to shut yourself away....I know its not easy to come on line when you are feeling miserable and sore but I find once i get onto this site I perk up a bit......please try not to shut yourself away. As for moaning ...well if you cant to us who can you moan to....even our nearest and dearest dont understand unless they have arthur as well

Love
Hileena

julie47 · 13. Sep 2010, 11:11

Hi sue

just to say hope your appointment goes well on friday and that you soon start to feel ok again soon.

I am not good with words but others on here are fab. Try not to shut yourself away keep posting if you can

sending hugs to you ((((((())))))

juliepf x

coco67 · 13. Sep 2010, 11:41

thinking of you and sending you {{{hugs}}}, i hope this new rummy is good and helps you out. try not to shut yourself away, we are here and understand, scream if you want to hun.

coco xxx

dreamdaisy · 13. Sep 2010, 11:56

Oh queenfan, I am so sorry. It's been rough for you for ages now, and good for you for letting it all out. Don't feel you have to go because you really don't. Use us to support you - we know what it is all like, we know how hard it can be to manage sometimes, we understand the frustrations and setbacks. Don't feel you have to go, because you really don't, but you have to do what is best for you. Please look after yourself, and be kind to yourself. DD

dorcas · 13. Sep 2010, 11:57

Hi Sue,

please don't shut yourself away flower...we are here for you and want to support you through this rough patch.

your hubby will see and understand how you are feeling ...so don't feel 'guilty' for saying how it is for you just now.

you've a lot to cope with and sometimes we need to 'let it all out'... where better than here with peeps who care about you?

I do hope your rheummy appointment on Friday goes well..... we will help you prepare.... and be with you too in your pockets

love and gentle ((((hugs))))

Iris x

valval · 13. Sep 2010, 12:50

come and go as you need we all have times when we need space but we are here when you need us again do not worry just look out for your self val

dippydoodah · 13. Sep 2010, 13:25

im sure you know everyone will be here should you decide to pop in now and then, theyre a fab bunch of people and we're here for you to moan at, we all understand.

hope your appointment goes well and your new doctor is a decent one.

sending you gentle hugs x

speedalong · 13. Sep 2010, 13:33

Hi Queenfan sorry you are still feeling so terrible. You do what is right for you, if you want/need to post don't worry about us we can take it!! Sit down with OH and start to make notes for your appointment so that you remember to say everything you want to say so you don't feel like you wasted/had an unsatisfactory appointment.

Speedy

marion1952 · 13. Sep 2010, 14:23

Hi Sue

Sorry that things are getting you down at the moment... hope the appointment goes well this Friday and the consultant can offer you something to help.

As others have said - take someone with you if at all possible.

Marion x

barbara12 · 13. Sep 2010, 14:33

Hi queenfan
I really do feel for you, I have OA in my hips , back and knees, my GP has just taken me of anti inflammatories because of my kidneys...so I do know what you are going through.
I am on gabapentin for my back, it helps nerve pain,and co codamol..plus amitriptyline at night.
I do hope you get some more help off your GP, have you been referred to a pain clinic at all.
When you feel like it you know where we are, it really does help to talk to people that are going through the same.
Sending you loads of very gentle hugs (((((((())))))
Love
Barbara xx

cebeem · 13. Sep 2010, 15:30

Hi queenfan!

Stay with us....we will keep you going!
Think of all those Freddy inspiring lyrics! (play a few)

Good luck with the appointment!
Let us know how it goes.....(there you are you have to come back and see us!)

Much love *CB*

chris7 · 13. Sep 2010, 16:08

Sue

Sorry you are having such a bad time there. Just wanted to acknowledge your post and hope things improve for you soon. Tell it like it is on Friday and do let us know how you are if you feel you can. You are entitled to have a moan so please don't shut yourself away. I am sending hugs and wishing you better days. (((( ))))
love
Chris

elnafinn · 13. Sep 2010, 16:22

Dear Sue

I have noticed that you have been posting lately and it has been good to see.

I am sure hubby is devastated to see you so unwell and you should not feel ashamed. You have been and are going through so much with health issues. You call in, dear Sue, whenever you want or are able and you will always get a welcome from many on here.

Seeing a new medic, can sometimes bring rewards, Sue. He may have some new/fresh ideas of how best to go about things. I sincerely wish you well with your appointment on Friday. You so deserve to hear some better news on your health. I am sure hubby is going with you on Friday, if at all possible. Make a few notes if you can, but I am sure hubby will be able to say all that is necessary, if need be.

Love and gentle hugs
Elna x

lindah · 13. Sep 2010, 16:28

Just adding my 2 pennorth of good vibes.I hope everything looks better for you soon.
Linda H 8)

lindalegs · 13. Sep 2010, 18:22

Hi Sue,

So sorry you're feeling so ill.

Don't be ashamed, hubby knows you don't mean to be poorly.

Don't stay away too long it's been nice to have you around.

Hope all goes well on Friday and get well soon.

Luv Legs

bambi59 · 13. Sep 2010, 18:51

Hi queenfan
the ups and the downs, i had a bad patch when i joined the fourum i was feeling much like you are now. it was hard to look forward pain seems neverending, and pain was bringing me low down!!

i have pain in all the same places you have. over the last few weeks iv eased my self up in spirit, and reading on here how others feel i relised i am not alone.

neither are you

i went to see my gp who did not seem to understand a word i was saying due to the fact that i probobly bombarded her with too much, she can only deal with one joint at a time!!! where as i am in pain in too many joints at a time for her to comprehend!! how does she think that feels??? :? she sent me for x rays said its OA i said YES I KNOW!! (i was diagnosed 20 years ago it in my notes!!)WHAT ABOUT THE PAIN?? she doesent really want to know. due to heart problems andasthma i can not take anti inflamators ect.
its not you its there peception of what you say, i belive unless you have the same you will never understand, and thats why they dont. lucky them. good luck hope you get a doc who has arthritis!! and you may get a good result

iv just read through my post. :? i am suposed to cheer you up!! sorry :oops: never the less i hope you feel your spirit lifted soon

bambi59 · 13. Sep 2010, 19:24

:oops:

:?

go through the emotions hope u get there soon

bambi59 · 13. Sep 2010, 19:32

hi queen fan to cheer u up
http://www.queenonfire.co.uk/
queen on fire freddie is my cousin scott

if this doesent lift you a bit i dont know what will
i particully like WE are the champions!!

frogmorton · 14. Sep 2010, 04:32

Hi Sue

only me just checking in to see how you are doing?

Thank you for warning us that you will be off-line for a bit. We do worry dont we about each other

Even so I hope you will come back on soon and let us support you - this is SO what we are here for - to help each other when times are so very rough.

Missing you and wishing you all the very best

Love

Toni xx

skezier · 14. Sep 2010, 08:18

hi Sue,

sorry i am ate to this. please don't go too long as we will worry about you i know this forum and the people in it are so good at supporting and helping you through a bad patch so if you need to please post and keep in touch please. love and a cyber hug Cris who has to type one handed just now xx

angel1 · 14. Sep 2010, 08:32

Thinking of you, with much love, Sue.

Do what you need to do. Sometimes hearing - and feeling - other people`s pain can become too much, in addition to your own. I know this from my own work. You`ll come back stronger for a little break.....Ange.x.

ironic · 14. Sep 2010, 15:39

Hi Sue,

Good luck on Friday and I hope you get some answers and they find a way of easing your pain. I know you are run down flower, and when things have settled a bit for you maybe you could pop in now and then. No pressure, it would just be nice to hear from you.

Take one day at a time,

Hugs,

Ix

stlucia · 14. Sep 2010, 15:47

Oh you poor thing, I just want to send you a big hug. Please let us know how Friday goes. What I do is write a note of the things I want to mention and any questions I want to ask - that helps when you get tongue tied. Can you take someone with you?

xxxxxxxx

Going to disappear

Comments

Categories