fibromyalgia

winniethepooh

anyone out here i can talk to that has fibromyalgia please please please ?

frogmorton

Hi pooh-bear!!

good to meet you

sorry i dont have fibro ( my ex MIL does so i may still be able to help)

Lots of people on here do have it though and I am sure they will be on before long to support you in any way they can

Love

Toni xx

toptottie

hello, I have fibromyalgia, how can i help?

winniethepooh

toptottie wrote:

hello, I have fibromyalgia, how can i help?

i am so very down.i feel so low .i have worked hard all my life (49years old) and had a good record history of attendance and now have fibromyalgia and i feel the world is about to end .that sounds quite pathetic really im sorry .my work is extremely demanding (child protection amd domestic violence).i have coped very well phisically but mentally caved in as my memory is no longer reliable .My manager as asked for me to be redeployed with my consent or for me to take redundancy.i just dont know what to do .im the main breadwinner as my husband has chrones disease and is only able to manage a light job.would anyone else employ me , knowing my memory /concentration is very poor and unreliabe ?

dreamdaisy

No it doesn't sound pathetic. Firstly, well done on doing such a valuable and difficult job for so long: that work must be so emotionally draining. Secondly, you have received the diagnosis of a disease that does affect and change one's life and that is a lot to take on board. It takes time to come to terms with such a thing, and to discover what one is going to do about it. Are you working at the moment, despite everything? What form would redeployment take, and when ? DD

winniethepooh

i have just been gien a sicknote for a month.never been in this situation before i can only go on what others have told me re;redeployment and that is i will be given 3mnths by the council to choose another job from a list of vacancies ,after that if there are none i like or feel able to do then i will be finished due t my illness and given 3mnths salary.That dosnt bother me to be truthful as i would welcome a change .What really upsets me is would i get another job , them knowing that my memory /concentration span is almost zero and if not what are my other options for bringing money in .

angie1973

I really feel for you having to cope with Fibromyalgia. I have been lucky, I've had it for over 8 years but always managed to work. It's a very fine balancing act making sure I use my reserves carefully and wisely and it doesn't always pan out, but I have been managing it as best I can.

Read about it lots, and get lots of advice off fellow sufferers on tips to cope or things they have found to help. Get support off as many people as you can, including your GP to help you in whatever way you need it.

Look at all your options about work, or part time, whatever you can so you can still manage but not have additional worries about money etc.

I'm a season ticket holder so you can always ask and I can give my own answers. You are not alone for sure.

Gentle hugs
Ange..xx

dippydoodah

im so sorry to hear your going through such a rough time. i cant really help with the work side of things as i dont work and im not very good at knowing what people can and cant claim for but i wanted to offer my support too.

i have just recently been diagnosed with fibromyalgia too, yesterday in fact so im quite a newby myself. you are in no way pathetic at all, its a lot to come to terms with and i hope you find some answers x

winniethepooh

thankyou so much for everyones replys.i was only dignosed 2 weeks ago so i too am a newby .could i ask and answer only if you wish to .how old are you ?i live in west yorkshire and have contacted a loal group who have invited me to a fun get together on thurs evening in a well known dept store to meet and chat informerly to others with fibromyalgia.group stuff is not really me but after talking to someone i really wanted to meet up, even if i decide not to return( im sure i will though).

angie1973

winniethepooh wrote:

thankyou so much for everyones replys.i was only dignosed 2 weeks ago so i too am a newby .could i ask and answer only if you wish to .how old are you ?i live in west yorkshire and have contacted a loal group who have invited me to a fun get together on thurs evening in a well known dept store to meet and chat informerly to others with fibromyalgia.group stuff is not really me but after talking to someone i really wanted to meet up, even if i decide not to return( im sure i will though).

Well, I'm 36 now, and have had since was in my late 20's. I've not long had Osteoarthritis diagnosed although I suspect I've had it in my neck and knee and long time which also confused symptoms.

I'd join a group if you can. There is one near me, and I don't get to go often but they are fantastic support and you get some good advice and information, and you end up making lots of good freinds.

It's such a shock when you first get diagnosed. I was in relieved first having a name for what I was going through, then I was angry at having it anyway, went through a bit of denial then accepted it and got reading and finding out anything I could to manage it.

Not easy but with the right support, it's a heck of a lot better!

Hope you enjoy the meeting.
Ange..xx

dippydoodah

winniethepooh wrote:

thankyou so much for everyones replys.i was only dignosed 2 weeks ago so i too am a newby .could i ask and answer only if you wish to .how old are you ?i live in west yorkshire and have contacted a loal group who have invited me to a fun get together on thurs evening in a well known dept store to meet and chat informerly to others with fibromyalgia.group stuff is not really me but after talking to someone i really wanted to meet up, even if i decide not to return( im sure i will though).

that sounds lovely, i dont think we have anything like that around where i live, im in wigan. that might be something you could look into, like you say even if you just go to the one meeting to find out what it's like. it really does help talking to other people who are going through the same thing, i have found this site to be absolutely brilliant for me as im sure others will agree

im 32. i'll be 33 in a few months. i also suffer from full body OA which came as a bit of a shock plus other ailments such as underactive thyroid. i was perfectly healthy last year :shock:
you can always pop in here for support too, a great bunch of people and always someone who will be going through something similar x

frogmorton

winniethepooh wrote:

toptottie wrote:

hello, I have fibromyalgia, how can i help?

i am so very down.i feel so low .i have worked hard all my life (49years old) and had a good record history of attendance and now have fibromyalgia and i feel the world is about to end .that sounds quite pathetic really im sorry .my work is extremely demanding (child protection amd domestic violence

Hi poobear

I totally understand what you are worrying about was a social worker myself - children and families.

Have you checked whether you are entitkled to any benefits - DLA etc? CAB is the place to check that one out. Its not easy to get these days, but is a non-contributionary benefit so you can get it if you are earning too.

Check what income you will get if they pension you off early.

I would also look at the vacancy list and see what they have that yo could do. I take it you will get pension rights tranferred to the new job?

At least they may well be OBLIGED to take you - just a thought before you step out of the local authority umbrella.

The other thing is I would give yourself a bit of time too - you might do way better than you think once the doc has your meds sorted.

Hope you find us helpful and supportive.

Love

Toni xx

dreamdaisy

It is always daunting, joining a support group - could you take someone with you for a morale boost? The plus points of joining would inlcude being able to talk to people who know what it is like, and how to live with having fibro. Perhaps wait a little while until you feel more in control with everything. One small step at a time, that is always a good plan. DD

roses1

Hi Winniethepooh,

I have recently been diagnosed with fibro (july) i dont know how you stand work wise but i will be happy to chat and help with anything i can. I am still trying to find out things myself so we can help each other. i'm 48 feel like 98! got OA aswell

This site is a Godsend and so helpful with lots of lovely people on it who give great advice and lots of support! Welcome!

If you go to the fibro meeting i'm sure you will find lots of support and useful info , it will be good for you to talk to ppl with the same condition.

Take care

Rose x

minky67

Hi, I too have Fibro plus OA & a few more just to add to the fun :roll:
Take it steady for a while & try not to make any decissions just yet.
You will get loads of help & advice here & theres the working matters forum for work issues. Theres also the helpline they can send you out all the information you need or just give them a ring for advice.
Your intitled to 26 (I think) weeks sick on ssp, I know that doesnt help with the finances but you need time to adjust,find out about meds & benfits etc or a way back into work. Gather up as much info as you can to find out about your condition too,it helps.NHS choices is a good place for info on Fibro.
If you need any advice on the Fibro side of things just ask away or send me a private message & i'll do all i can to help.
Its all a shock to the system when you first get diagnosed but your not alone,this is a great site with loads of great people to help you.
Keep your chin up
debs

dreamdaisy

Morning winniethepooh, just popping in to say I hope you are feeling a little better today. DD

dreamdaisy

Morning - the same message as yesterday really! I hope you are feeling OK. DD

angie1973

dreamdaisy wrote:

Morning - the same message as yesterday really! I hope you are feeling OK. DD

I echo that. I know how you must be feeling in shock with everything. I'm here as a seasoned pro at Fibro if you need to sound out.

Ange..xx

noodles

hello all
i have fibromyalgia and oa in neck and spine i was diagnosed in august
i am still trying to get my head round it
its so hard knowing what to do for the best

sending hugs