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Somethings Bubbling!!!!!

saggyoldbagpusssaggyoldbagpuss Posts: 55
edited 26. Sep 2010, 11:58 in Living with Arthritis archive
Hi everyone :?

Well I've seen the Rheumy consultant and still have no idea why I'm experiencing pain :? . I know that my Rheumatoid Factor is high (571) and that I have painfull hands feet and right knee but why is still a mystery. I have days when I'm completed shattered :| and others when I'm just sore or in pain :| but I don't know why

When I asked what my previous tests showed the consultant responded I;m not sure this is interesting theres something bubbling there!!! well what can I say!!

He now wants more blood tests and also an isotape scan (hope I've spelt that right)....

Has anyone else had one of these? what's it for? what's he looking for? am confused. :? Told him about foot (GP thinks Morton neuroma) but he made no attempt to check so am still limping.......

Is it normal to have sooo many tests :? ?

Now not seeing him again until 3rd November :cry: more waiting!!!!!!


  • tjc123tjc123 Posts: 139
    edited 30. Nov -1, 00:00
    Hi :)

    Sorry I cant help with this but I just wanted to send you a (((hug)))
    I hope you get some answers at your next rhuemmy appointment.
  • elnafinnelnafinn Posts: 8,043
    edited 30. Nov -1, 00:00
    Hi there

    I am sorry to hear you are in pain and are not seeing your rheumy consultant again until early November.

    An isotope bone scan shows your doctor how quickly your bone tissues are working. Bones continually remodel themselves to help repair any damage.This scan shows how quickly your ‘osteoblasts’ (bone cells) are working.

    If you would like to know more about this google isotope scan, which is what I just did. :)

    I wish you well,

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • sharmainesharmaine Posts: 1,638
    edited 30. Nov -1, 00:00

    I'm sorry I can't help. These medical specialists automatically assume that we know what the devil they're talking about. No wonder you're confused.

    November seems a long way away. If you're really worried can you see you GP? They're supposedly kept in the picture about what's going on. My GP seems to have a copy of everything the consultant has done.

    Take care.

  • racheljrachelj Posts: 121
    edited 30. Nov -1, 00:00
    Hi Saggy,

    I also have my GP baffled so currently diagnosed as sero negative RA, I had a bone scan a few weeks ago, totally painless. Only difficult part is drinking so much liquid between the injection and the scan to encourage the die to permeate your body. They get the images back straight away and can see areas of abnormally high bone growth/change. Sometimes they ask you to go for extra xrays after your scan, so you need to leave plenty of time for your appointment. For some reason at my hospital it then takes them 4 - 6 weeks for them to write a report on the scan and send it off to the doc :(

    I hope they get to the bottom of your ailments soon, there is nothing worse than being left in limbo!

  • dorcasdorcas Posts: 3,538
    edited 30. Nov -1, 00:00
    Hi bagpuss :D

    Can't help with your question.... but others have given you such good information and advice. :wink:

    just wanted to say I hope you don't have to wait too long for the scan and results.
    good thing is your rheummy is supportive and wants to find out about what's causing the high RF reading.... just a pity he didn't explain it all!

    please let us know how you get on.

  • hileena111hileena111 Posts: 7,099
    edited 30. Nov -1, 00:00
    Sorry cant help.was going to google it but elna got there before me :lol: .
    It seems a long time to wait to see your consultant.
    Nag your GP
  • dreamdaisydreamdaisy Posts: 31,567 ✭✭✭
    edited 30. Nov -1, 00:00
    Arthritis is a painful condition. You have a high RF figure, so obviously some form of arthritis is present in your body, hence pain. What pain meds are you on? I have yet to find any that actually take it all away - apart from general anaesthetic, that works a treat. Active arthritis also makes one tired, very, very tired. In-active arthritis also has the same effect, in my experience! I have been in pain and tired since 1997, apart from three wallops of general anaesthetic, which were lovely. One learns to adjust, over time, and to tailor one's activities in accordance with the available energy funds. It is a steep learning curve. You may need stronger pain relief so talk to your GP and see if he can help. I wish you well. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
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