Hi everyone, new member. I have been diagnosed with PA. I have been on Metho and now currently on Leflunomide with Naproxen. My right hand is very sore and swollen and the joints on my left hand are going the same way. Various other joints v sore, but the hands are the worst. My consultant even took photos! He has suggested biological treatment might be a better solution, but I have to have an assessment, and if I don't score high enough I might not be elegible for the treatment? Anyone been thru this and can tell me what to expect. Also Naproxen not working any other suggestions :?: Thanks Matt
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The assessment is nothing to worry about. Just be honest and don't try to be tough about it. Your rheumy nurse isn't trying to catch you out, s/he simply has to fill out the paperwork for NICE.
Sorry to hear your having a bad day, I must admit looking at this forum, makes you realise a lot of people are worse off and that I should stop moping and moaning! I hope you feel better tomorrow.
Matt
Just wanted to say welcome to the forum.....sorry not much help
I have OA but there weill be plenty that will help
Love Hieena
Hello!
From
Toni x
Toni xxx
just seen your post and wanted to wish you luck with your appointment.
I have been assessed for Anti-TNF treatment, having had Methotrexate for many years, and having added in Leflunomide which unfortunately I seem to have had an allergic reaction to :roll: Mind you, mine is RA rather than PA, so the system is a little different I believe.
I had to have two different assessments in May, and then the nurse had to go away and apply for funding. IN the meantime I had to be tested for latent TB, which these treatments can apparently 'wake up. so if you are positive then they treat you so you don't get ill. Fortunately it seems that I won't have to be treated, though it was looking likely for a while :roll:
I am seeing my consultant again on 20th October, so it must be the week for anti-tnf decisions
HOpe you get a helpful PCT who agree that you need the funding.
Oh, and if Naproxen isn't working well enough for you, has your GP suggested changing to another NSAID? just asking because I had taken several different ones, most recently on Ibuprofen for a long time, and have just begun taking Naproxen myself. My GP said that sometimes just changing from one NSAID to another appears to help out at times.
anyway, good luck!
WONky