My names charlotte and i am 19 years old i have had systemic onset juvinile idiopathic arthriis for 6 years , i am on high doses of prednisilone and methetrextate and have tried every medication possible and all the tricks in the book. I have had both hips replaced , metal plate in my knee and am due to have both wrists fused.
I have recently been apply for funding for a drug for toliximab (IL6) unforntunatly it has been declined twice , after trying one more time they have finally allowed me to have a chance at having the drug BUT ...
Yes theres always a but.. I have to trial Entracept for 3 months and then apply again..
What are peoples experiences with the drug?
Any information would be much appreciated ?
Charlotte x x