any help please

marooned
marooned Member Posts: 68
edited 5. Oct 2010, 12:22 in Living with Arthritis archive
well ime off tommorow with my daughter to see her consultant, she was diagnosed in febuary and started on methtrexate and just recently on the sulpha one, she is not in as much pain as she was before taking the medecation, but is still not up to the mark her knee and hands are the worse she is 23, she struggles opening doors jars ect and lifting kettle ect, can she get any help with anything or is she to young or not bad enough i just dont now, also any suggestions on what to ask consultant she should have gone bk in august but the hospital put the appointement bk till tommorow we go to the kingsmill hospital and are starting to hear bad reports can you ask for a second oppinion, they never seem to follow things up ie blood tests ect. sorry to go on but any advise would be great
thanks :)

Comments

  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    H Marooned,

    Sorry to hear about your daughter. If you're not happy with the consultant/hospital have a chat with your GP.

    Your GP or the hospital should be able to refer your daughter to an Occupational Therapist for assessment to see if they can help.

    Hope this helps.

    Luv Legs :)
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    It takes time for meds to show if they are going to work or not: I guess she has started the sulpha to support the meth, but more time may be needed to assess how effective the two drugs are. You yourselves may need to be more pro-active in chasing up blood test results etc, systems and routines for these things seem to vary so widely! Discuss any concerns you have regarding side effects with the consultant, let him know what practical difficulties your daughter is facing, he may be able to suggest a referral to OT, or perhaps social services: they installed new hand rails on the stairs for me. I hope it goes well - don't forget you may need to take an early morning urine specimen! DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • katekelly
    katekelly Member Posts: 975
    edited 30. Nov -1, 00:00
    dreamdaisy wrote:
    It takes time for meds to show if they are going to work or not: I guess she has started the sulpha to support the meth, but more time may be needed to assess how effective the two drugs are. You yourselves may need to be more pro-active in chasing up blood test results etc, systems and routines for these things seem to vary so widely! Discuss any concerns you have regarding side effects with the consultant, let him know what practical difficulties your daughter is facing, he may be able to suggest a referral to OT, or perhaps social services: they installed new hand rails on the stairs for me. I hope it goes well - don't forget you may need to take an early morning urine specimen! DD

    Sound advice definitely ask for a visit to the occupational therapist. They may even come out to the house and assess what needs to be done to help make life a bit easier and manageable.

    Kate xx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Marooned
    I really do hope your daughter has a good appointment tomorrow, if you are happy when the results come through, you ask for a second opinion, there are lots of people on here that have.
    Has for any help, put a post on the young peoples forum, hopefully someone on there will be able to help.
    Good Luck
    Let us know how she gets on.
    Love
    Barbara xx
    Love
    Barbara

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