Radio 4 appeal this morning - Lysette Anthony

marion1952
marion1952 Member Posts: 963
edited 10. Oct 2010, 12:40 in Living with Arthritis archive
Hi Folks

Just wanted to say that the actress Lysette Anthony, whose young son developed juvenile arthritis at age3, was on Radio 4 this morning appealing for funding for Arthritis Research UK.. I found it very moving listening to her description of her son..

We need more publicity like this, on radio and TV..

Marion

Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I remember reading an article in the Sunday papers at least 18 months ago now about her boy, and the difference steroid injections had made to his joints. This disease is a foul and merciless master/mistress (delete as applicable). I think the problem with arthritis is it isn't fashionable, never has been and never will be. People do need to be better informed - perhaps there will be some good press stuff on Tuesday.

    How are you getting on marion? Still coping with work? DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Thanks for that, Marion. :)

    You can listen to the appeal on Sunday, 10 October 2010 again at 9.27pm or on Thursday, 14 October at 3.27pm.

    I googled to find out more and saw a lovely picture of her beautiful little boy, Jimi.

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Thanks elna, I was just about to go and find that out! I like people that save me work! DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • marion1952
    marion1952 Member Posts: 963
    edited 30. Nov -1, 00:00
    Thanks Elna - I'll tell me family to listen to the repeats..

    Thanks DD - my new hip is excellent now - just using my walking stick occasionally (ie at the end of the day). My RA is not good at the moment though - especially my fingers (hence I've not been posting much). Have had 2 injections of increased meth (17.5) and have been nauseous this week and also got the dry cough now!! oh, the joys...

    Marion
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Oh marion, what a mixed bag to deal with. I am sorry. The stick thing is good news, but the cough not - when is your next dose due, and should you tell your rheumatology/GP about the cough? My meth nurse always asks me about whether I have had a cough/sore throat as that might affect whether she uses me as a dartboard or not! If in doubt, seek clarification, that's what I tell myself, anyway. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • marion1952
    marion1952 Member Posts: 963
    edited 30. Nov -1, 00:00
    Thanks DD

    It's the dry 'methotrexate side-effect cough' - not an infection-type cough.. I've had it once before, in 2009, and it just came and went after about a week ... I'm not due to inject until next Wed, so I'll see how I am then...

    It's that old chestnut - the increased methotrexate has brought my inflammatory markers down to normal(ish) again, but my fingers/ joints are no better and now I've got this blooming cough!!

    Marion xx
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