Fibromyalgia

nanasue

Hello to all,
Yesterday I was so happy about getting transferred to different doc and hospital and getting a bone scan I didn't really stop to think about the fibro, but now after doing some reading in a book I have (Taking charge of arthritis) my bubble has been well and truly burst. I did know a bit about it before but after reading I now can relate to some of the symptoms being what I've been going through, especially the fibro fog. I would be grateful if any of you who have fibro could give me any info: or advice as I don't really know where to go from here.

Sue x

dippydoodah

im sorry to hear you have been diagnosed with fibro. i was recently diagnosed with it myself. have been suffering from so much muscle pains since last year im glad its been diagnosed.

im still learning about it all myself but from little bits ive been told, its best to do some gentle exercises when you can to keep your muscles strong. a friend of mine was almost in a wheelchair due to fibro but she fought back, starting using her muscles, despite the pain, to keep herself strong. it kills her but she says at least she isnt just sitting around letting them waste away. i have yet to find out if what she's doing is right or wrong but i am doing some gentle exercises and as long as i dont do too much or be silly pushing myself too far, i seem to losen up a bit.

i have terrible trouble sleeping at night. turning over is complete agony and once im awake, i find it very difficult to get back to sleep. my doctor has put me on anitriptyline, which i take about 8pm each night along with my painkillers for the OA i have. ive only been taking them for about 3-4 nights but they do seem to give me a good few hours, i presume the longer i take them, they'll have chance to work.

has your gp offer any medication? ive been offered some physio to show me a few things to do each day to keep me moving around.

looking back, ive not really been much help have i?? :?

i just hope you arent suffering too badly, i wouldnt wish this pain upon anyone. i hope you get the support you need or maybe someone will come along who has been through this for alot longer than i have...

gentle hugs x

barbara12

Hi Sue
Sorry I cant help with the fibro, but there are a few people on here with it, so I am sure they will be along soon.
Just want to send you some hugs ((((((())))))
Love
Barbara xx

frogmorton

Hiya

got this today:

http://www.thirdage.com/news/fibromyalgi....mpact_10-6-2010

Hope it a) works and helps

Toni xx

hileena111

Hi Sue
Sorry I cant help with the fibro.....sending you hugs ((((((()))))))

One suggestion.....Try and get onto a Challenging arthritis course
They cover Fibro as well
If there is none in your area at the minute.....write to them and get them to take your name and they will contact you when there is one.
Arthritis Care isnt Government funded so they have to try and get some funding for each one they do. Thats why there arent loads of them.

Love
Hileena

minky67

Hi Sue, I got diagnosed wih fibro last oct but been suffering symptoms a lot longer.
Gentle excersise is the best way to keep your muscles strong,swimming is a great way but please be careful not to over do things.A Physiotherapist might be worth seeing before you start excersising.
Pacing your everyday activities,housework,work etc you need plenty of rest breaks & you'll soon get to know how much you can or cant do.
Amptripyline help to relax the muscles & aid sleep. I take upto 50mg at night & again as said taken early evening is best. takes a while to work properly but my sleep is so much better with these.
Ive got a bed turner as i also struggle with turning over at night,i get stuck.
If you need help at home social services or the OT at hospital are great.Ive had rails fitted,perching stool for kitchen,bed turner,2nd bannister rail,bathlift & im in process of getting a downstairs toilet built or a stairlift (Depends on funding & permission)
My tiredness turns into exhaustion if im not careful & some days i can hardly walk,others i look like nothing is wrong with me. No 2 days are the same which makes planning anything a nightmare.
I take pregabalins for the Fibro & its great for the stiffness & nerve pain,takes a bit of getting used to but worth it. I also have slow release Tramadols with normal tramadols to top up with. Oramorph is for really bad pain days & i take Mebeverine for IBS which is also associated with Fibro.
pain clinic are brilliant so if you can get a referal to them as well they seem to know more about Fibro & coping, medications & alternative treatments for you.
Fibro seems to go hand in hand with other conditions & little is known about the cause of it :roll: But it can be managed.
Sorry that was a bit long winded, I hope you can find something in there that helps.
Anything else you know where i am
debs

frogmorton

pixyandfaries wrote:

frogmorton wrote:

Hiya

got this today:

http://www.thirdage.com/news/fibromyalgi....mpact_10-6-2010

Hope it a) works and helps

Toni xx

toni that link dont work hun :shock:

will try again :shock: :?

frogmorton

http://www.thirdage.com/news/fibromyalgia-stigmatization-and-its-impact_10-6-2010

tryin again - gonna test it myself first

frogmorton

Think it's working now