Tocilizumab..... anyone on it, or heard of it ?

carola
carola Member Posts: 786
edited 18. Oct 2010, 15:47 in Living with Arthritis archive
There is info on it on arthritits researchuk.org

Good luck and let us know how you get on.

Carol

Comments

  • bevman
    bevman Member Posts: 107
    edited 30. Nov -1, 00:00
    alanmancunian wrote:
    Got told today that I might be going on Tocilizumab, which I think is quite new to the market. I, for one had not heard of it, and apparantly the health authority has just got the go ahead ( after waiting 18 months ).
    It's going to be a month or so before I start on this because they have to do blood tests etc before you get the go ahead.., and I think it's back to the drips. Alanmancunian

    hi alanmancunian i was going to be put on Tocilizumab last month as a trail but when i went into it and the rummy nurse took my medical history because i have other medical problems it was no good for me but i believe that the results are really good hope it works for you good luck.

    Laurence
  • frogmorton
    frogmorton Member Posts: 29,789
    edited 30. Nov -1, 00:00
    Oh Alan

    good luck

    I am hopeful for you - please do let us know how you get on.

    Love

    toni xx
  • colinone
    colinone Member Posts: 1,039
    edited 30. Nov -1, 00:00
    Hi Alan, I assume you have done the anti TNFs and rituximab i wish you luck with the Tocilizumab. I too have done the rounds and at the moment getting some great results from the Rituximab.
    Take care and i hope all goes well for you
    Colin
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Alan
    Sorry I have not heard of it, but good luck with it, they really are moving on with some of these meds.
    Barbara x
    Love
    Barbara
  • marion1952
    marion1952 Member Posts: 963
    edited 30. Nov -1, 00:00
    Hi Alan

    I have heard good things about this drug too.. The Arthritis Research UK centre at Leeds University was involved in the trials of it a few years ago and they got good results..

    Let us know how you get on.

    Marion
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -1, 00:00
    Hi Alan :D

    There is someone else on the forum on Tocilizumab ... but I can't remember who. Hopefully they'll see you thread and respond. :wink:

    As carola says there is info about tociliz. on the Arthritis Research UK website... so might be worth a look?

    Good luck Alan and I hope this drug helps you beat arther. :!:

    let us know please how you get on with it.

    Iris x
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