Uveitis again.

littlemummy2
littlemummy2 Member Posts: 91
edited 28. Nov 2010, 15:38 in My child has arthritis
Hi Phoebe had her usual eye check today but was found to have slight swelling in her left eye. So she is on eye drops now. Have phoned hospital because Dr wood said about maybe putting her back on medication if her eyes flared up. She had a joint injection on 21st october has complained of differnet joints hurting her on 28/10 it was her hips and sides, on 29/10 it was her back and on 30/10 it was the joint that had been injected. Thought she was going to be in remission but dosen't look like it now. :(

Hope everyone is alright and hopefully no joint pains for the kids.

Michelle A.

Comments

  • lare73
    lare73 Member Posts: 154
    edited 30. Nov -1, 00:00
    hi michelle,

    poor little girl, hope the drops work quickly.
    Are you with Dr Wood at the LGI??? we are also, saw him today, hes lovely.

    Have you heard about the workshop at leeds playhouse on the 18th dec??? i have organised a morning for all kids and their families, going to be a fun day, have some speakers, activities for the children, christmas raffle, refreshments, and leeds rhino (or 2 ) player coming along, LGI team are attending, going to be a great day, would be lovely to meet you. the invites are going to posted out with a quaestionnaire in the next weeks or 2, so hope you and your family will be coming along xxx
  • littlemummy2
    littlemummy2 Member Posts: 91
    edited 30. Nov -1, 00:00
    Would be nice to come, might leave eldest at home with husband and just take phoebe. Be nice to meet you in person. Took about 3 attempts to get drop to go in her eye. Eye dr said to get her to close her eyes and then to put drop on corner of her eye and then when she opened her eye the drop would go in.

    Michelle
  • lare73
    lare73 Member Posts: 154
    edited 30. Nov -1, 00:00
    aw michelle i feel for you, i hate eyes, i couldnt do it i admire you for doing it. as mums we have to do some pretty horrible things, the poor kids :(

    you take care x
  • illihor
    illihor Member Posts: 283
    edited 30. Nov -1, 00:00
    Oh hun hugs, it's horrible having to deal with this and follow up all the many appointments they have then to be told ok this is back or this has happened etc. We've got that check tomorrow and I'm livid as it's been 6 months yet when I mentioned it to Bristol hossie (wasn't dr clinch) they said oh she's been fine before I wouldn't worry about it. Hmmm if something does ever show up would they still feel the same way. grrrr

    Anyway detracting from your post here sorry hun, I hope the drops work and settles things hugs

    michelle xxx
  • littlemummy2
    littlemummy2 Member Posts: 91
    edited 30. Nov -1, 00:00
    I am struggling to give her the drops she's not keen on them, gonna give it a couple of days then phone LGI and speak to Dr wood. I don't think they relise just how difficult it is to put drops in a child that dosen't want them. When i spoke to a specialist yesterday who phoened me she said that if she hasn't cleared up when she goes back to eye clinic then they will prop put her back on methotrexate long term. She got up complaining of the middle of her spine hurting, have now started writing down when she complains of pain in her joints to give to specialist next time we go.

    Michelle
  • illihor
    illihor Member Posts: 283
    edited 30. Nov -1, 00:00
    How are things at the moment? Did you have to contact your hossie? I hope this chill in the air isn't hit them all too bad. hugs

    Michelle xxx
  • littlemummy2
    littlemummy2 Member Posts: 91
    edited 30. Nov -1, 00:00
    Hi sorry it's taken so long, didn't need to contact them eventually she let me give her the eye drops, come tuesday it's 4 week since they checked. Supposed to be going back 3-4 weeks so will be going back when she looks at you she seems to look really sleepy and squints at you.
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