ANT ONE OUT THERE

paddyw
paddyw Member Posts: 93
edited 3. Nov 2010, 09:29 in Living with Arthritis archive
HI AM NEW AND DONT THINK I CAN GET THE HAND ON HOW TO POST IN THE RIGHT PLACE.SO I SHALL TRY HERE AND THEN I GIVE UP IHAVE R A AND DONT WANT TO TAKE THE MEDS DONT THINK I WOULD HAVE A NIGHTS SLEEP IF I SWALLOWED ANY OF THOSE TABS!SO SCARED.NOW MY DR SAYS I HAVR TO MUCH PROTEIN IN MY BLOOD MORE TESTS. CAN ANY ONE HELP? IT TAKES SOME UNDRSTANDING THANK YOU FOR TAKING THE TIME TO READ MY NOTE PAT (PADDY)

Comments

  • paddyw
    paddyw Member Posts: 93
    edited 30. Nov -1, 00:00
    Hi Lynn, Thank you for your words of encouragement all to take on board.let you know.Hope you see this may be getting there Regards Pat
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi Paddy,
    Welcome to the forum. Well done for finding where to post. We have all been there!!
    It is a terrible shock that you have had; coming to terms with the RA diagnosis will take time. Please keep to the official sites when doing any research. I didn’t and managed to frightened myself to death.
    Can you go back to your doctor and tell them how you feel about taking medication?
    I think you need time to come to terms with your condition. I fully understand your reluctance to taking some of these meds. I resisted for a long time.

    Please keep posting and ask questions we are all in the same boat and will try to support you.
    Lv, Ix
  • annie_mial
    annie_mial Member Posts: 5,614
    edited 30. Nov -1, 00:00
    Hi Paddy and well done you for finding the right place.

    I think you will find a lot of us were very reluctant to take the meds initially.......a year ago I was terrified I would explode or something!

    I did find the courage to take the methotrexate and it has given me the best year for several years. I've had a wonderful summer and am lucky that it has worked for me.

    Do let your doctors know how you feel about the meds.......they won't know unless you tell them and unless they know they can't do anything.........

    Annie
    xx
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -1, 00:00
    Hi Paddy and welcome to the forum :D

    I have PA (psoriatic arthritis) which is another inflammatory arthritis but is treated pretty much in the same way as RA.

    I too was very reluctant to take the anti inflammatories when I was first diagnosed, but as others have said over time you realise that it may be the only realistic way of trying to control the condition.

    take your time and ask your doc any questions you might have about the meds and also about your condition too. that way any decisions you make will be with his/ her support and the benefit of the doc's knowledge and experience of treating RA.

    we also have a really good helpline team; so you could consider phoning them too? the number's at the top of the page.

    hope you continue to post Paddy.. you'll soon get used to it!.

    Iris x
  • maggiemay
    maggiemay Member Posts: 122
    edited 30. Nov -1, 00:00
    Hi Paddy

    Welcome to the Forum,dont be afraid to post, everybody is as the start, but they are a great bunch on here, whether you want to vent your frustrations or just to have a natter.

    I have also found that if you need anything answered about the oul Arthritis thing, the Guys and Gals on here are good.

    Keep posting and everybody will help, if they can.
    Regards
    Mags
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    paddy, you really are getting the hang of this posting malarkey now! What makes you so reluctant to take the meds? They can be very effective, they can really help to reduce the symptoms and slow the progress of the disease. One of the major problems we all face, however, is that we each have our own version of arthritis and we each react so differently to the drugs. You never know until you try whether it will work or not.

    I went five years without treatment, not thro choice but because I wasn't diagnosed and no-one spotted what was going on. I do wonder now, if I had started methotrexate and/or sulphasalazine somewhere between 1997 (onset) and 2002 (first operation to remove solidified gunk from my left knee) whether I would be in a much better place in 2010 than where I actually am.

    Right, off to bed for me. I hope to see you about tomorrow. I hope you have a good night. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Pat,

    Glad you found the site s hey are a good lot here.

    I been taking the meds for a long tie now and just get add-ins every so often. I did used to have them as and when I needed them but with the ra tis vest that they hit it hard to prevent it fro doing damage.

    As DD said why don't you want to take them? They might really help you.

    Now with mine I have no choice but to take them if I want to stay mobile at all. I do remember bulking at some back along but now if they will or might help I just take them.

    You will soon get the measure of this posting thing and nice to meet you. Cris x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Morning paddy, I hope all is well with you today, or as well as it can be. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi paddy

    don't think we have met.

    Hope you are ok today.

    Just to say I too used to worry about taking meds and would if they introduced some more, but my quality of life is better with them so I take them,

    JuliePF x
  • frogmorton
    frogmorton Member Posts: 30,087
    edited 30. Nov -1, 00:00
    Hi paddy

    You know you did ok for your first post :wink:

    Not so bad at all :wink:

    Now you are in pain? and things are bad?

    A lot of us worry about meds - I 'look at' them for ages before I take one myself :lol:

    Having said that with RA not taking anything to stop the diesease might be not a good idea - giving the disease more chance to attack your joints.

    If you want to rty to take something that the doc prescribes put a thread on here and we would support you in taking them if you want? Some of us are bound to have tried whatever they want you to takes so i am sure we can help/

    The protein could mean something as simple as a wee infection. I do hope it is not anything serious.

    Love

    Toni xx

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