Fibromyalgia confirmed

annie_mial
annie_mial Member Posts: 5,614
edited 5. Nov 2010, 14:23 in Living with Arthritis archive
....at my Rheumy visit today. Also have severe tendonitis in heels and elbows.......have been referred to Podiatry (elbows?).

A good appointment really, nothing I wasn't expecting. No new meds atm as I'm having an issue with the MTX and mouth ulcers/mouth soreness. I need dental work done, which I currently can't face, so the MTX is being dropped to 20mg weekly in the hope that they will clear up enough.........I have enough mouth washes etc to stock a chemist's and none of them seem to work.

Other meds rearranged somewhat and I will see him again in the New Year for a review. Oh, I'm told the doc's will get a slap on the wrist as they put me on bi-monthly bloods when he had told them to keep me on monthly tests!

Annie

Comments

  • nanasue
    nanasue Member Posts: 465
    edited 30. Nov -1, 00:00
    Hello Annie
    Sorry to hear you've just been diagnosed, I was too 4 weeks ago. With regard to the MTX I used to have a lot of problems with sore mouth, ulcers etc. Between the doctor and me we've realised the only way to keep it at bay is to take folic acid every day except on MTX day, so I take 1, 5mg 6 times a week and I don't very often have a problem now. I find the difflam mouthwash works best for me, corsodyl is too strong. Hope this helps in some way.

    Sue x
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Annie,

    I am sorry I missed your pockets thread but I hope you know Rowan and I automatically are in them.

    I am sorry there is something else and so hope the tendinitis goes soon. Do they treat that at all? I guess they do exercises and manipulation? Sorry I am rambling.....

    Leaving you a giant smelly foal infested ((((((((((((((((((( ))))))))))))))))))) and a huge hope that your mouth will heal up and you will feel much better. Love Cris xx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Oh annie, it's tough. I am so sorry, I haven't really taken it all in as under the cosh myself. Will catch up properly on Friday, forums willing! Take care. Thinking of you. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • salamander
    salamander Member Posts: 1,906
    edited 30. Nov -1, 00:00
    Hi Annie, things sound tough at the moment. I hope you can get your mouth ulcers cleared up - ouch! Tendiitis sounds painful too.
    Hope things settle down soon.
    xx
  • Wonkylegs
    Wonkylegs Member Posts: 3,504
    edited 30. Nov -1, 00:00
    OH Annie

    :(:(:(:(:(:(:(:(:( sorry that is the case.

    sending you healing hugs and lots of love
    WONky
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi annie

    Hope you are quite well today and that the mouth ulcers are not too painful. I hope the lower dose of mtx helps to get rid of them.

    Sending hugs ((((()))))

    juliepf x
  • ritwren
    ritwren Member Posts: 928
    edited 30. Nov -1, 00:00
    Sorry to hear you've got FM as well as everything else Annie. Have they offered to put you on anything specifically for it like Lyrica or Amitriptyline?
    I hope the reduced dose of MX helps with the mouth ulcers. Are you taking folic acid? might it be worth increasing it?
    Hope things get on the up for you soon, meanwhile big hugs from me.
    rita
  • Starburst
    Starburst Member Posts: 2,546
    edited 30. Nov -1, 00:00
    Oh Annie, I really feel for you. :( I especially understand the mouth ulcer pain. How much folic acid are you on? I was only on it once a week and now I take it 6 days a week. I'm sorry to hear you've been diagnosed with FM too.

    **Gentle hugs**
  • frogmorton
    frogmorton Member Posts: 30,086
    edited 30. Nov -1, 00:00
    Hi annie

    Good to see you :)

    Not good the rest of it though....mouth ulcers are vile and dentists are scary :shock:

    I avoid them at all cost. No serioulsy i do go and I hope the reduction in mtx helps solve the ulcer issues.

    Podiatry - is that for your feet? the tendonitis business? Hope it gets sorted very soon.

    Love

    toni xx
  • annie_mial
    annie_mial Member Posts: 5,614
    edited 30. Nov -1, 00:00
    Thank you for all your good wishes, I'm currently having a problem finding the right text colour.

    To answer a few of the questions - I'm already on Amytrip, Rita - he put me on it last time and it has helped a lot, he's now put up the dose, which hopefully will help more once I get used to it.

    I take folic acid 1 x 5 days a week but that's because I take a split dose of the MTX. Will just wait and see how it goes, Princess.......I might revert back to once a week so that I can take it 6 days.

    Toni, I am terrified of dentists........but have found one who specialises in 'nervous patients'. I'm hoping he can help one who sits there shaking like a jelly - the last one had a job because I couldn't keep still! I need to go before I get toothache, though........have lost a filling.

    Thanks again
    Annie
  • chris7
    chris7 Bots Posts: 2,696
    edited 30. Nov -1, 00:00
    Hi Annie

    Just trying to find my way round this new forum and have only just seen this. Sorry you are having a bad time there and you do have my sympathy re the dentist, I am the same. :?
    Just leaving some hugs and hoping you feel better soon. ((((( ))))
    love
    Chris x

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