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handsy
handsy Member Posts: 209
edited 11. Nov 2010, 08:56 in Living with Arthritis archive
Hi gang i have had some trouble logging in, and a bit to tell you. As you may know i have beentold to stop taking MTX and sulfa. About 3 weeks ago during this time i have become steadly more and more ill. so tomorrow I am going to call my consultant and get some answers.

For years I have had trouble with my throat, becomeing hoarse swollen pain and whathave you. only to discover this is part of RA. feeling really low at the moment am going to see my therapist on saturday which is good. more info to follow.

Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Hi handsy, I am glad you found us again. Quite a few people have been having trouble with the new site, you are not alone in that! I am sorry you are struggling with it all at the moment, but I guess with no meds that was going to happen. How is the new grandchild? Thriving, I hope! Keep in touch. I wish you well. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • salamander
    salamander Member Posts: 1,906
    edited 30. Nov -1, 00:00
    Hi Handsy, nice to see you back here. Hope you get some answers from your consultant. I'm in a similar position, just been told to stop Hydroxy and am having assessment for anti tnf tomorrow but peeps on here say it takes weeks to get onto it.
    Good luck tomorrow. Let us know how you get on.
    xx
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi John,
    Hope you get some answers tomorrow. You must be suffering without the medication and I am sorry about that. Good luck with your Saturday appointment too.
    I have been having problems getting back on here also so you are not alone in that. :?
    Lv, Ix
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi handsy

    Glad you were able to get back on the forum

    Just to wish you luck today with the doctor and hope you do get some answers, and give you something else to help with your pain.
    Also wish you luck for friday.

    Juliepf x
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi Handsy
    Glad you got back eventually....I think most of us had problems.
    Just to say good luck with your appointment

    Love
    Hileena
  • frogmorton
    frogmorton Member Posts: 29,773
    edited 30. Nov -1, 00:00
    Hi John

    there are still people out there 'missing' :(

    I hope we all get back in soon.

    Sorry you still have no help - you must chase it or you will continue to suffer.

    Glad you are seeing the therapist though

    Love

    Toni xx
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -1, 00:00
    Hi John :D

    good that you've caught up with us all on the new forum. :wink:

    wondered if you managed to speak to your consultant today?

    sorry this is such a 'low' time for you John. :roll: keep in touch. even if we can't change anything for you, we can at least share in what's happening and support you as best we can.

    Iris xxxxx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hello John
    I am glad to see you back with us, a lot of people had probs so dont worry about it.
    I do hope that things went well for you today, when you feel up to it, let us know how you got on.
    Barbara x
    Love
    Barbara
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Hi John

    Sorry you are suffering but I guess the lack of mtx and sulfa is going to impact on you.
    I also have problems with the throat but it has improved, along with a lot of other symptoms, since going on Humira. I used to have to sleep bolt upright, propped up with pillows and have my own mini-bar next to the bed as this helped to alleviate the throat symptoms. Of course this led to problems with needing the loo at night. You can never win.

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
    Hi, Just to say I hope things soon settle down and you begin to feel much better :wink: Love Sue