End of the road for me and Infliximab

skezier

Sorry Lynn juts nicked the roses...... xx
Hi Iris,

Hope you got a decent night and feel ok and more normal again. Leaving you a (((((((((( )))))))))) and a missing baaa or two Love Cris xxx

skezier

Oh alright then Lynn.... if I have to Hope your ok and maybe I should leave Iris one or two....... now which ones don't I like Love Cris who ate her evil pill xxx

barbara12

Hello Iris
I am just popping in to see how you are feeling, a little better I hope.
Sending you lots of very warming hugs (((((()))))
Love
Barbara xx

bertyboy

Hi Iris i know how scary that must have been , i hope you are feeling better about it all , and some thing else can be fount to help you xxx

dreamdaisy

Morning dorcas, I hope you slept well last night and are feeling better today. That was a scary reaction, wasn't it? Hopefully things are now settled and you can pass a pleasant Sunday. Take care. DD

dorcas

Hi DD, Barbara, Berty, Fayann, Chris, Elna, Ironic, Lynn (thanks for the roses), Cris (who now owes me roses), Wonky (thank hubby for the choc which Cris hasn't managed to nick )

Thank you all for your kind messages, hugs and support it means so much to me...especially as I know you all have your own health and other worries to contend with.

I've had plenty of rest and am feeling much my old self now.

I have been thinking since having that 'scare' on Friday and now when I look back, if I'm honest with myself, pretty much from the start of the Infliximab infusions there were signs that it really wasn't the drug for me.
I was just holding on to hope... as we do...that this anti tnf would work for me. I'm not sure what alternatives there are for me but no doubt will find out on 1st Dec.

Lynn I don't now if it's a funding issue about the way PA tends to be behind RA in getting drug approval, I'll ask my rheummy if he knows and let you know.

love and thanks to all,

Iris xxx

speedalong

Hi Iris, glad you are feeling more yourself.

I wonder if new meds are approved quicker for RA because it is more prevalent than PA?

In general does what works for RA work for the "A" part of PA?

Speedy

skezier

hi Iris,

What roses.... I don't know anything about any roses.....must have been sleep walking Would have had Wonky's but she had left an anti-cris trap cus she knew....

Glad your feeling a bit better and you never know what you might find when you start asking cus a lot is unlicensed for pa but still used so hang in there flower. ((((( ))))) and a hope Love Cris xxx

dorcas

thanks Speedy and Cris

Speedy,
I really don't understand why drugs are licensed first for RA.. but it may well be that you're right and it's to do with prevalence of the condition. There are a huge number of sero-negative inflammatory arthers though, which includes PA. confusing isn't it!
The rheummy's do treat them very much the same, though they are different and their effects (pattern, bone damage) quite distinct.
Even our lovely AC talk mostly in terms of RA in their statements, press releases and responses to government. :? but I guess they'd have to produce a pretty long list if they wanted to include every type of arther... and that just wouldn't be practical.

Cris,
sleep walking? I think not..sweet walking more like
remember the diet??..think of all those cyber calories. :shock:

I'm definitely going to be doing more research into what's available for PA ers at the moment (cause even that seems to vary depending on where you live :roll: ) and I will remember to check on what new anti tnfs / biologics are 'out there'.

hope you both are having an ok day. :?:
(((hugs)))

Iris xxxx

angel1

Iris, so good to have you back in "I`ll sort the bugg**s mode"........in your own inimitable way, of course!

Seriously, I was really worried, because even the strongest people get floored sometimes, and these episodes can play on your mind, and kick off the "what if`s".

You haven`t let it, so good on you girl.......Much love......Ange.x.

ironic

Hi Iris,

Glad to see you up and about and feeling more positive. Good luck with the research and I have no doubt you will have compiled a list of questions by the 1st.

Well I must say all this roses snaffling is getting out of hand. Hey do you think if I get all these wrappers together they would make some nice Xmas tree decorations.

Or maybe a rosette for pony’s?

Woops might have given out some clues there.

Hugs,
Ix

tillytop

Evening Iris

I am so glad that you are recovering from your nasty experience and starting to feel a bit better. I have been thinking of you.

Lots love Tilly xxx

skezier

Hi Iris,

Cyber or real what diet :roll: I got to shed 2 stone before January's teat though....

Hope you had a good night flower and I was sleep walking.... and know nothing about any roses except sheep like them.......

Leaving you some saffron and a (((( )))) and a hope as well as good luck with the research... I really hope you find something before your next appointment. Love Cris who really liked the orange one xxx

Hey I,

What clues were they then

Hope your dong ok and hows the mtx going flower? (((( )))) xxx

frogmorton

Hi iris

I haven't managed to get on much the last couple of days and I just wanted to let you know how sad I am that this is not a go-er for you

Woeful sigh.......

At least Cris has been letting me know that you are ok by text so I was aware that life has been shift for you.

I think the clues were there weren't they? and they were there for us if we had read between the lines.

At the end of the day, (who is it who hates that??), I am just glad you are ok.

Love and hugs and some choccy too

Toni xx