Infliximab

chrissykk
chrissykk Member Posts: 10
edited 19. Nov 2010, 08:43 in Living with Arthritis archive
STARTING ON iNFLIXIMAB anyone any advice ?

Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    That is not an easy question to answer - what do you want to know? I had it years ago, it's given by infusion which is a dream, one sits there in comfort sipping tea and eating bikkies, reading or whatever: I suffered no side effects and neither did it work for that long. I cannot remember now if I had three or four infusions before I produced antibodies - either way it wasn't long before I was taken off it and so began my disappointing journey with anti TNFs. I hope it works much, much better for you. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • chrissykk
    chrissykk Member Posts: 10
    edited 30. Nov -0001, 00:00
    Hi DD, really thought this was the next step after anti tnf
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Infliximab is an anti TNF. Other popular ones are enbrel and humira (adalimumab). DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • chrissykk
    chrissykk Member Posts: 10
    edited 30. Nov -0001, 00:00
    ok thanks i have already add the other 2 u mentioned , so Infliximab is still an anti tnf but given a different way
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Yup, same dog, different bit of string, as my dad used to say! I hope it works for you. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • chrissykk
    chrissykk Member Posts: 10
    edited 30. Nov -0001, 00:00
    thank DD me 2 lol
  • Wonkylegs
    Wonkylegs Member Posts: 3,504
    edited 30. Nov -0001, 00:00
    HI Chrissy

    I am due to start having Infliximab by infusion - I have my first on December 13th and the second on Dec 29th.

    This will be my first foray into Anti-TNF treatment, following having to stop taking Leflunomide (which was working :roll: ) because I had an allergic reaction to it. :x :x

    I, like you , have been worried about starting it, but I am reassured that we are closely monitored during and immediately after the infusion in case of any problems.

    In my area I have been told I go to the Medical Day unit, where I will be given the infusion over roughly 2 hours, then wait another hour being monitored, and then I go home. It sounds fairly relaxed, and to be honest although I am not keen on hospitals I do feel reassured that I will be closely monitored if there are any problems.

    Do you know how long you will have to wait before your treatment begins? I had rather a long wait because of the drug reaction over the summer :roll: :roll:

    Good luck! & maybe we can compare notes on how it works (or doesn't) for us both.

    it's tough having to wait and see though isn't it!

    WONKy
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi Chrissy,

    Can't help you flower but anted to say hi and nice to meet you as well as wish you good luck. Cris x

    Hey Wonky,

    You will be fine! Slurs, mud and ((( ))) xx

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