can't reduce steroids any more .....

Wonkylegs

because the nasty rash was being kept at bay by them and is now coming back :roll: :roll: I am sick of itching :roll: :roll:

so .... will have to stay on 5mg and hope that the leflunomide gets out of my system sooner rather than later

HOpefully I'll get some help from the Infliximab when I start it, but who knows :roll: it's always a waiting game with arthur meds, and it gets a bit trying at times. :roll: :roll:

hope you all have a good weekend
hugs
WOnky

skezier

Hi Wonky,

Oh flower that's the problem with these drugs they take time to get out the system......

I so hope it will soon and you stop feeling like you are just now.

Its all a waiting game but hopefully the Infliximab will work ell for you.

Leaving a bucket of anti-itch, some fortitude, some leflunomide get out potion and a slurp from the mud monster. (((()))) and so many hopes it will all get easier for you. Cris xxx

scattered

Hi Wonky,
It might be worth ringing the rheumatology team and telling them as there is a special wash out drug they can give you which gets rid of the leflunomide in about 3 days.

Sorry the rash has reared its ugly head again.

Scat.

julie47

Hi wonky

Sorry to hear about the blooming rash again.

I hope when the leflunomide is out of system it clears up

Good luck with your new meds, I hope they work for you

Will keep my fingers crossed.

Juliepf x

salamander

Hello Wonky, sorry to hear you are having problems again. Yes, I agree with you, the meds are very trying. I'm waiting for another assessment and dropping down steroids, which of course is flaring up my joints. Seems the hydroxy is out of my system though as the rash has gone but I was only on it for 3 weeks so not much to get rid of.

Are you getting bath stuff and cream from your doctor for the itching? I had itchy skin and use all that stuff now and it helps.
xx

chris7

Hi Wonky

Sorry you having a bad time there at the moment, and now the rash back too. Hope things settle down again for you soon. Just leaving some hugs. (((( ))))
take care
love
Chris

annie_mial

Hi Wonky, sorry you've got problems with arther and the meds!

It's such a sneaky devil, always turns round and bites where you least expect it.........hope the rash goes soon.

Love
Annie

dorcas

Hi Wonky

Oh I'm so sorry you're having to cope with the itch again :roll: (did it ever disappear completely?)

This awful arther is hard enough to fight, and having the meds causing your system to react adds 'insult to injury'.

If the 5mg steroids keep it at bay, and rheummy is happy with that, then maybe reducing it will have to wait until after you see some benefits from the infliximab.

Fingers crossed the itch eases.... and of course that the anti tnf is effective for you.

(((hugs)))

Iris xxx

ironic

Hi Wonky,
I was hoping that the rash was well on its way out of your system by now. I am so disappointed for you.
Can you go back to your Dr or speak to your rheumy nurse next week? Hope you have enough cream left to get through the weekend.
Lv, Ix

Wonkylegs

scattered wrote:

Hi Wonky,
It might be worth ringing the rheumatology team and telling them as there is a special wash out drug they can give you which gets rid of the leflunomide in about 3 days.

Sorry the rash has reared its ugly head again.

Scat.

:shock: :shock: :shock: Thanks Scattered! no-one has mentioned that :shock: :shock: wich I had been so lucky!

believe me they do know about it in rheumatology ...... but all they did was get the dermatology lot to took at it. Once the reaction was diagnosed I started with all manner of lotions and potions to deal with the rash, plus the steroids.

Trouble is, the steroids don't do me much good mood& anxiety wise :roll: so we started to reduce them.

Not any more .... sticking at 5mg (unless the consultant says different when the rheumy nurse talks to him) and that is that .......... different places must react to things very differently :roll: or maybe it's because the rash was diagnosed as a 'mild skin reaction' ...... but then they don't have to live with the itching do they :roll: :roll: :roll:

forgive me for not replying to eveyone individually, but I do appreciate your replies.

feeling quite low with one thing and another just now, so not posting quite as much.

got a busy week this week, so might be a bit scarce

hugs to everyone
WONky xx

chris7

Hi Wonky

Feeling low and energy depleted goes with the territory we do understand that love, add to that an annoying rash and you have my sincere sympathy. Just leaving some hugs for you and hope you soon feel a little brighter. (((( )))) Rest up when you can.
love
Chris xx

Wonkylegs

thanks Chris

hugs right back to you (((((((()))))))))))

hope tomorrow is ok for you and not horrendously busy
WOnky xxxx

mp1952

Hi Wonky

Only just seen your post....

Just to say hope that things get sorted out for you soon.. you seem to have been struggling with this for ages now ...

keeping my fingers crossed for the infliximab for you..

take care

Marion x

dreamdaisy

'And the understatement of the year award for 2010 goes to . . . Wonkylegs, for her 'it all gets a bit trying at times' remark!' (cue applause, whooops and cheers from AC members) Yes, wonky, it does all get a bit trying at times, and you are facing one of those times, yes? I hope that the steroid dose will be sufficient to keep the itching at bay but that it won't be high enough to disturb your equilibrium. It is a tricky tightrope to walk, that I do know. I wish you well and I hope the lef does disappear sooner rather than later. DD

Wonkylegs

dreamdaisy wrote:

'And the understatement of the year award for 2010 goes to . . . Wonkylegs, for her 'it all gets a bit trying at times' remark!' (cue applause, whooops and cheers from AC members) Yes, wonky, it does all get a bit trying at times, and you are facing one of those times, yes? I hope that the steroid dose will be sufficient to keep the itching at bay but that it won't be high enough to disturb your equilibrium. It is a tricky tightrope to walk, that I do know. I wish you well and I hope the lef does disappear sooner rather than later. DD

thanks for my best laugh of the day DD - and just when I needed it !

as for the tightrope walking .... we get good at it after a while don't we, with all these meds to try out :roll: but there are always the wobbles along the way, which never help.

thanks everyone for all the support ..... I'll get there ..... somehow, and with the support on here I know I can deal with most things so thaks folks

hugs
WOnky