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Cold weather and play time

illihorillihor Member Posts: 283
edited 6. Dec 2010, 05:45 in My Child Has Arthritis
What are your opinions on this cold weather and letting your kids out to play at break and lunch times. I told school this morning that if it kept being this cold and if the wind picks up she's not to go out. I got a very icy reception to that I must say. We've not had any snow down here but it's been cold which doesn't seem to be doing her any good especially as her knees have been hurting lately.

Just so happened that as I picked the kids up from school her consultant rang me. I have booked a physio appointment on Thursday for her due to knees and mentioned this to her. She fired a few questions at me then said depending on how physio feels she will see her next week or if she feels she's ok then wait till Jan 10th when Bristol consultant comes down.

I then mentioned the cold and how I've asked the school not to let her out but if she wants to let her but no more than 10 mins she agreed with me but also said that's a tough call as to what to do obviously want her to have fun and join in but equally not let her get to cold and stiff up her joints.

We haven't been using the wheelchair for a bit but i'm starting to use it again more now :( she can't do very long distances still which concerns me as I would have thought she could have gotten to school and back. There are some days that she will walk all the way home but she suffers big time for it. With this cold spell I've been driving them to school especially as been busy going meetings and then trying to sort out christmas etc.

The MTX and Enbrel seem to be doing a great job but as the consultant pointed out it's been exactly 4 months since the steroid joint injections and the pain in her knees could possibly be that wearing off :( I hope not as I had hoped and thought that those two meds were helping her.

Michelle

Comments

  • lucysmumlucysmum Member Posts: 24
    edited 30. Nov -1, 00:00
    I know exactly how it feels hun, we are having snow problems here and i have not allowed lucy to play out in it. The school has been closed for 3 days so it has helpped. Lucy's school is the same regarding break. There have been a few times when she has aparently asked to stay in and because it would mean a member of staff would have to supervise her they made her go out!!! It drives me mad, they don't seem to grasp the fact that just because one day she can and wants to go out and play des not mean that she can do it every day!!!!!! I wish they would get a clue!!!
  • butterflywingsbutterflywings Member Posts: 25
    edited 30. Nov -1, 00:00
    Hi

    My daughter has alot of problems at school with playtime. Some days she wants to play and others it is just too cold. Alot of the time the teachers make her go out because of health and safety !!! I have to tell her teacher at the beginning of the day whether she is allowed out or not but even that doesn't guarantee her staying in.

    My daughter's knees get very bad in this cold weather and I told the school that she's to keep warm etc but I really don't think they listen half the time.

    So it sounds as though it's across the board really with school and playtime unless you're one of the lucky ones.
    x
  • illihorillihor Member Posts: 283
    edited 30. Nov -1, 00:00
    thanks everyone. I spoke to the teacher again today and she said it's a staffing issue she has to go out grrr really wound me up it has. We haven't had the snow but it was bitter here today was still -1 round the back where her playground is then the wind set in and it was even worse :(

    They then said oh none of our children went out today but she tells me differently. I'll be speaking with physio tomorrow and seeing what she has to say about it all. I felt like asking the teachers if you were in an OAP's home would you force them all out to get "air" on a day like today especially those with arthritis i bet they wouldn't a child is no different, ok the drugs often make her look like nothing is wrong but they don't see the agony I do at the end of the day because she's done to much arghhh.

    Michelle xxx
  • dreamdaisydreamdaisy Member Posts: 31,567
    edited 30. Nov -1, 00:00
    I despair of my profession, I really do. The sheeer STUPIDITY, MULE-HEADEDNESS AND SELFSIHNESS of these so-called 'professionals' is astonishing. I like the point about shoving a bunch of OAPs out from their care home but the staff won't see the relevance of that analogy. I suppose they are reluctant to leave her alone in a room in case something goes wrong, thus leaving them open to your suing them - I was routinely left alone in classrooms, from the age of 5 and thro-out my childhood, nobody thought anything of it way back in the dark ages known as the early 60s! Why couldn't she go and sit with a book in a corner of the staff room, or with the school secretary or summat like? Too much bother, I suppose. Far better to cause the child pain and distress. Grrrrrrrrrrrrr.

    Regarding the pain in her knees, despite my not being a doc I think the consultant is on the right track: steroids last for up to three months then they start to fail so I think that is the likely culprit. Oh for a magic wand, one wave and it all goes. I wish her well. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • illihorillihor Member Posts: 283
    edited 30. Nov -1, 00:00
    thanks DD the thing that really annoys me is we have a foundation unit in our school which consists of one huge play room with 4 classrooms off to the side (nursery, quiet zone, and 2 reception classes) totalling a capacity of 90+ children. During lunch time the unit is not empty as you have the lunch time nursery children maximum of 14 children that remain in the main play room area. To have her in with them surely isn't that much of a hardship considering they all play together anyway. They are going out to play in the light dusting of snow this morning I overheard one teacher as I was walking away I so hope they don't let her out for too long, I know she will go out in the snow can't deny her that but it better not be for to long, dread to think of the state of her hands after touching snow for a bit even with gloves on :(
  • dreamdaisydreamdaisy Member Posts: 31,567
    edited 30. Nov -1, 00:00
    It's tough being a sick child. You can't do what the others do with such abandon and yet you really want to join in. I hope she does get the chance to muck about in it, if only briefly. As an adult I can deal with the concept of payback, but as a child? How the hell does one explain that? Thinking of you and her, and I hope those idiot people sort their ideas out. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • illihorillihor Member Posts: 283
    edited 30. Nov -1, 00:00
    Physio went well this afternoon. Was discussing with her about school and how best to go about it etc. She has suggested giving her leg warmers to put to try and help protect her knees. She said we put on coats, hats, gloves, scarves can do an extra pair of socks but we forget about the legs (which I do :( ) So I think I'll be off to shops tomorrow once her Enbrel has been delivered and buy some 11-12 year old ones or something bigger than the 5-6 years she wears/fits so they can go up the whole length of leg and cover her knees. This should at least help her keep warmer. She has ski gloves for at home but I seriously don't trust the school enough to let her have them there (they loose a LOT of things including my 6 year olds coat not happy at that one).

    School said she was making snow angels today and was able to get up off the floor from doing it (we only had a dusting rofl) but her gloves are soaking wet but she won't tell me how her hands felt afterwards and school said she never came and complained but that's the problem she won't tell you she will sit, go quiet or play out of site so as not to be noticed and as it's an open policy they do 25% structured learning and 75% play they aren't going to notice either. Next term it's 50/50 then in terms 5&6 it goes 75% learning 25% play.
  • speedalongspeedalong Member Posts: 3,347
    edited 30. Nov -1, 00:00
    Hi Michelle,
    It will be down to staffing - there will be a rota for staff to cover the playground and other class staff will be on breaks/preparing for the next session etc

    I think it is worth raising the issue with the Senco/head teacher etc as they can look at it from a whole school perspective. Perhaps she and a friend could curl up on a bean bag with some books in the secretaries room/head's office or a communal area such as the library.

    Speedy
    I have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.
  • littlemummy2littlemummy2 Member Posts: 91
    edited 30. Nov -1, 00:00
    Hi, I always ask phoebe's teacher(s) to keep her in when it gets like this. The cold affects them even if everything seems fine. I get sore in this weather so can imagine what kids with arthirits must be going through.

    Michelle
  • WonkylegsWonkylegs Member Posts: 3,504
    edited 30. Nov -1, 00:00
    I am so sorry that you are having this added worry about playtimes at this time of year.

    I can understand your frustration when your wishes have been seemingly overlooked.

    As someone has already suggested, it might be an idea to ask to have a chat with the head and/or senco, as they should be made aware of the issue, and also of what the consequences for your daughter if she does stay out too long or get too cold and stiff. If your daughter has an individual education plan (she may not need one I don't know) then you can ask for her specific breaktime needs to be added onto it.

    As a teacher (not currently working) with arthritis I can certainly empathise with the problem for her - cold damp days on playground duty were torture for me.

    I had a child in my class who had similar problems, and even though we had only a very small staff, we always managed to make arrangements so that she could stay in when necessary. It just takes some advance planning and a little lateral thinking :wink:

    best of luck
    WONky
  • skezierskezier Member Posts: 12,150
    edited 30. Nov -1, 00:00
    Hi Michelle,

    I am so sorry your having this problem and agree with the others talk to the head and maybe you could get a back up letter from the gp? It would be quicker than asking a rumo to do one I think.

    I have circulatory issues from birth and the cold at playtime was so hard to recover from but I never said a word to anyone.

    My parents knew I guess and it was more complicated that my mother was the head teacher but your little one has you in her corner and I am sure you can make them understand .... even if you point out if being sen out in the cold could make her unwell and if it does you will sue... I don't often advocate that line ( it might make them think a bit further than they are though) but bless her I can;t take the wind that's been hitting me and even if you have a decent coat you still have hands, legs and feet.

    I so hope you can get it resolved and wish I knew what to say to help. Cris x
  • raddersradders Member Posts: 42
    edited 6. Dec 2010, 06:10
    Hi all - am in the middle of writing an update on Bet's condition on Word - but felt compelled to respond to this thread.

    My son wanted to do a cake sale at school to raise some money for a charity that would benefit children like his little sister - so we emailed Arthritis Care for some information for Jamie to take into school. They sent a brilliant publication called Information for Teachers - which really helped (me even) get a picture of what Bet must be going through.

    Bet had a really rough summer term and while her teacher was very empathetic (husband with RA) I wasn't sure how much the Head was understanding what all the time off/ indoor play/me coming in regularly to administer steroids was all about. So I gave him the book and specifically asked him to read it. That same week he said he'd read it and was passing it to the SENCO (more on what she's done (lovely lady) will put in another thread).

    Anyway, ask Arthritis Care for a copy of the book, it gives a really good picture of what the sufferer is going through - how they will really make the effort to join in with things that they enjoy, so "appear" to be pain free - because they do so want to be included.

    Maybe this would help the teacher be more empathetic to Kayleigh especially in this dreadfully cold weather. She doesn't have to read the whole book immediately, just pick out the relevant stuff with a post it note.

    Hth
    Kath x
  • raddersradders Member Posts: 42
    edited 30. Nov -1, 00:00
    To find the booklet put "Chat 2 Teachers" in the search engine on the Arthritis Care homepage...

    K
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