Article on polymyalgia rheumatica and wrist replacements

mp1952

Hi Folks

Just a quick message to say there is a very interesting article in today's Mail on Sunday health section about the Pan's People dancer, Babs (married to Robert Powell) who has suffered from PMR for 3 years.. She has been on methotrexate and steroids for it..

(I have also seen a very interesting article in the Mail online health website about a woman who had a wrist replacement )..

Hope you are coping OK with this weather.. I'm not looking forward to scraping the car tomorrow morning !!

Marion x

annie_mial

Thanks very much, Marion. Like most of the other arthers, PMR is pretty well unheard of ...........unless you've got it. Anything which will bring these 'hidden' conditions out of the dust and murk is so useful!

Annie

skezier

Hi Marion,

Its got to warm up at some point flower. Do your girls like it though?

Thanks for saying about the articles.

You take care, stay warm and stay safe! (((( )))) and some smacho's cus I haven't given them any for a while Cris xx

dreamdaisy

It was interesting, wasn't it? I hadn't realised that PMR was so common, you rarely hear of it. I wonder why she stopped the meth tho - did she say, I can't remember! I will re-read it later. I hope you are keeping OK, Marion. DD

dorcas

Hi Marion

interesting read about the PMR. The more coverage arther conditions get, hopefully, the more people will understand what it is like to live with this vicious disease.

interesting too to read of someone else's experience of wrist replacement... making comparisons along the way.

Iris xxx

hope you were able to get your car out this morn! the weather is atrocious.... yet more heavy snow here.

sharri

thanks for the info I've been diagnosed with suspected pmr since august this year this started off with my left shoulder freezing then a few months after the right shoulder froze I had been having a heavy feeling in my neck for quite a while before hand and had a very heavy cold which lasted for weeks, then one morning I ached all over and had to roll myself out of bed. My GP sent me to see an extendid scope practitioner and had steroid injections (as well as shoulders I have a left knee that has deteriorated and sever arthritis) however the steroid injections had no affect so was sent for a series of blood tests which showed very high ESR and CRP levels the consultant was a little puzzled because of my age (45) but seem to think I had polymalgia rheumatica as I dont have diabeties and said it's very rare for someone my age to have bialateral frozen shoulders I'm now on steroid tablets so my face has taken on a round shape, my hubby says I remind him of a hampster (he means well bless) I'm having regular blood checks I'm at the stage where both shoulders are completly frozen so very ristricted in movement and hips and neck ache, after reading the article was a little conserned as I've been getting a lot of severe migrains so think a trip to doctors is on the cards, I haven't found very much information about this condition so every bit is extremly useful, so thankyou

mp1952

Hi Sharri

Glad you found the article useful. My uncle was diagnosed with PMR a few years ago and had steroids for a while - I had never heard of it before then..

There are a few people on the Forum with PMR.

I identified with Babs Powell mentioning her jaw/difficulty in eating - as my RA causes intermittent problems with my jaws and sometimes I can't open my mouth..

Do let us know how you get on..

Marion x

sharri

thanks I shall book to see my doctor tomorrow am having bloods done again thursday, I am so happy that I've found this site thankyou all x

lavenderlady

as Iris says its always great to know of others who ahev ahd the same op as us TWR, I think even our comparrisions are fairly different to each other , I'm the only 1 on the island to have had TWR as far as I know and am always asked what I've done to my wrist as I still have to wear a dressing over the wound and then their mouths drop open whn I tell them, they all say I didn't know they could do that, everyones heard of knee and hip replacments but a wrist is all new ,
I also get jaw pain and have been told all my jopints rae affected by arther both sero neg and osteo and some like my consultant says I have more then just osteo as the damage has happeend so quickly in all my joints, think i inherited it from my nan, has anyone else inherited it ????