Rheumy appointment yesterday-update!

janie68
janie68 Member Posts: 1,186
edited 12. Dec 2010, 09:13 in Living with Arthritis archive
Hello everyone

Some of you may know, the Rituximab infusion that I started in August has not worked. I saw Consultant on 28th October who told me this. So I went to see the biologics Nurse yesterday. After my DAS score which is 6.86 last month and even worse this month, we have decided to start a new one called Cimzia. It is a fortnightly injection done at home and I hope to start it before Christmas.

Does anyone have any experience of Cimzia? I know that it can be very good for longstanding RA (16 years now for me). I think this could be plan K now for me!

Thanks for your help everyone and have a pain free day if at all possible!

Janie xx x:))

Comments

  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi Janie,

    Haven't got any experience of it flower cus I am still doing the 3fail thing but wanted to just say I really hope it helps you.

    I read somewhere its meant to be good so will keep y fingers crossed for you there. Stay warm and really hope someone who does know comes along soon. Cris x
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -0001, 00:00
    Hi Janie
    Sorry I cant help with your question, but I just want to send my support, and I will have everything crossed for you my love.
    Please let us know how you get on with it.
    Love
    Barbara xx
    Love
    Barbara
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -0001, 00:00
    Hello Janie

    I was sorry to learn that the Rituximab didn't work for you, but pleased that you have an alternative.

    I don't have any experience of Cimzia but I really that you are able to start it before Christmas and that it does work for you.

    Will keep everything crossed for you.

    Love Tilly xxx
  • janie68
    janie68 Member Posts: 1,186
    edited 30. Nov -0001, 00:00
    Thanks everyone. I'm also having bloods done to check things out as well. Because the nurse said depending on those, it might be better to start another one instead, Tociz something. But Cimzia is the one I will probably be having. Not sure what she means but I have faith in her. She is a very experienced nurse.

    Janie xx
  • theresa4
    theresa4 Member Posts: 696
    edited 30. Nov -0001, 00:00
    Hi Janie
    Im on cimzia at the mo and it has improved things a bit but not loads I still ahve alot of bad days so all in all a fail but I have failed on 3 other biologics before. Im sero- which is why cimzia was expected to work as it was originally for other sero- conditions. I know alot of others who it has given a new lease of life to so good luck to you xx
    Theresa
    There are many things in life that will catch your eye, but only a few will catch your heart...pursue those. --Michael Nolan



    Theresa xxx
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -0001, 00:00
    Hi Janie x:)

    so glad to hear that you're getting another anti-tnf :!:

    Hope that the Cimzia /or Tocilizumab works for you and that you soon feel the benefits.

    getting started before Xmas is great!

    best of luck Janie... please let us know when you get your first delivery. x:wink:

    Iris xxx
  • janie68
    janie68 Member Posts: 1,186
    edited 30. Nov -0001, 00:00
    Thank you Iris

    I'm getting a bit despondant with it all, I suppose as I've tried a few and they havent' worked... How are you? I hope the Consultant gets you sorted soon and reads your letter.

    The positive with Cimzia is you do 3 loading does to get it going quicker, 2 doses every 2 weeks for 3 weeks then 1 dose fortnightly after that.

    I will update when I get my delivery

    Janie xx :)

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