Good Luck Wonky

Wonkylegs

OH you lot are the best really you are

thank you all so much, for the messages and for the pocket-dwelling. It really does help .... and boy did I need you all a few times today. I hope the smelly food brigade didn't mind the window sill, but you had more air than we did anyway I did get you all safely back into pockets before I left, though I didn't count you all out and count you all back, which maybe is a good job with all these powered skate-boards around :shock:

please forgive me if I single out Cris, because she has done sterling work as PA today despite health, employer, dongle and weather issues. Cris my love, it is really appreciated and I couldn't honestly have done it without you, but next time I'll be better prepared - honest!

Well left home at 7.30 ... got train and bus ok .... arrived at hospital at 8.45 ......... finally hooked up to infusion at 10.30 :roll: (they had to weigh me then work out the dose then go and get a signature from the doctor before we could start!) and would have been out at 2.30 but had a few issues which needed a few more obs then was ok to leave about 3. Got home about 5 and crashed out for 3 hours.

Can't say I was thrilled with the ward cos they have sooo much heat there ...... made me laugh when she said if you start to feel hot or itchy please tell us straight away .... I had to be honest and say well I'm like that already and we haven't started (I still have my rash at the mo) so however will I know

there was something good tonight though ..... discovered hubby can cook :shock: so guess who will be cooking more often now

poor man is fast asleep now he's been so busy - what a day off for him! He'll be here in the morning then has to go to work at lunchtime, so I'll be looked after again and no dog walking which is a blessing

thank you all so much for the support - means heaps to me.

love and hugs ((((((((()))))))))))
WOnky xxxx

skezier

Hi Wonky,

My pleasure flower. Look how any times you have been there for me so its kinda payback or even might be a better word

Be with you next time as I kinda find you can' really prepare for theses infusions :roll:

Glad OH has given himself away and leaving you ((( ))) and slurps as I must go get milk. Love Cris ... oh when is the next one flower? I know you said but I got a head like a colander....... xxx

Wonkylegs

Hope you got the milk Cris and the paddington sandwich I sent you

next one 29th Dec, then 4 weeks after that - Jan 26 I think.
all early starts but hubby will be home anyway next time, and for Jan will just have to take the day off to look after her majesty oh and to cook me some tea

please get some good sleep tonight

leaving you a bucket (or even a tanker) full of pain draught and 'good sleep with no fatigue' thrown in.

Wonky xxxx

skezier

Hi Wonky,

Well flower I shall be with you each time and the paddington sarnies

The anti-fatigue tanker is so needed.... it keeps getting e in waves as you know :roll: I shall stay awake now to get the milk as I got a bit of deadmau5 in the ears......

You get a good night and I so hope this drug will work for you.

Hey I get my own room cus I get so sick and its kinder to both me and other patients and no matter h cold I have the window open a bit... see some compensation to being ill every time Slurps from thew frost monster cross puddle dweller (he learn he can break ice today ) and ((( )))'s from me. Cris who really is off to get milk.... xxx

frogmorton

Hi Wonky

well done you eh?

Think the girl dun good and 'Longlegs' dun even better!! Well done him )

That is so what you need when you feel rough isnt it?

Let us hope now that it does some good.

Lots of love and hugs

toni xx

julie47

Morning wonky
Hope you had a goodnights sleep and that you are feeling ok this morning after yesterday.
Glad your OH is at home this morning to look after you.
Take care and rest if you can.
Juliepf x

skezier

Hi Wonky,

Hoe u got a good night and are not feeling too wished today? Iris has the sheep to nurse her so you got him... not sure who got the worst deal there Leaving you ((((( ))))) and hopes. Cris xxx

Morning Julie xx

whalewatcher

Hi Wonky
Glad the infusion went well & hope it works for you. Take it easy & give yourself plenty of time to recover.
Love
Val

dreamdaisy

Morning wonky, how goes it today? I hope you are feeling better/brighter than you were. DD

chris7

Hi Wonky x:D

Glad to see you managed to call in and it all went ahead for you. Hope you are regaining some energy there and that this is a positive start for you with the infusions..
I may not be about much now as I am hoping to go away Monday if the weather and trains allow, :? but I will try and look in sometimes while I am there. I leave several buckets of hugs in advance I know Cris will distribute them if needed bless her as you say. AND wow hubby can cook eh! x
You take care ((( )))
love
Chris xx

Wonkylegs

HI Chris, DD, Val, Cris, TOni, Julie, Del & anyone else I might have missed

Sorry didn't get on much yesterday or today.

Yesterday it was mainly because I was sleeping :roll: but today it has been because I have been busy :shock: and working hard trying not to overdo things, since I've been feeling really quite good!

I know it is too early to tell whether this is a 'good' day after several days of rest, or the result of the drip ....... but tonight I was able to walk up the stairs without needing to use the banister rails to haul myself up, and in the words of my beloved :roll: 'did I just see you walking up like normal rather than grunting and groaning after the effort of each step you take? ' :roll: .... nothing like telling it how it is eh?

so ... I'm trying to be very good and take things steady, but it's not easy at this time of year is it?

thanks for all your messages, and I really do appreciate every one of them.

hugs to you all and i hope that everyone manages to have some good days even in this horrid weather.

WOnky

PS - CHris - hope you do get away ok. fingers crossed for you!

bertyboy

Hi Wonky pleased that all seams to be working hope it gives you a lovely christmas , just dont over do it xx

tillytop

Hello Wonky

I was so very pleased to read that your infusion went well and that you have been seeing some signs of improvement already!

I do so hope it works for you - it was a "life-changing" drug for me for 5 years and I hope the same goes for you.

Based on my experience of Infliximab just wanted to say please don't despair if you feel the improvement is temporary. I hobbled into my first infusion appt and came out walking almost normally but was most distressed when it didn't last. But after the first few infusions I saw a sustained improvement, which lasted for the whole 5 years I had the drug. I miss it hugely now but wouldn't have passed up on the opportunity to have it.

I know it doesn't work for everyone but hope you are one of the lucky ones like I was.

Love TIlly xxx

oneday

hope everything works out okay,wonky,take care x

Wonkylegs

Thanks everyone

today I have gone and overdone it :roll:

I was trying to keep warm and so kept on doing stuff, and now it is coming back to bit me :roll: :roll:
So, tomorrow I will have to keep warm and yet balance things better.

FIngers crossed I get the balance better and that the heating gets sorted

thanks again
WOnky