rosiepurves Member Posts: 18
edited 8. Jan 2011, 15:18 in Living with Arthritis archive
Hi all
I've not been on here for a long time as I have been working hard at trying raising awareness of RA and trying to help people in my local area, it's amazing how many sufferers are out there!!! I've started a Facebook group today called RA support UK, I did this because the only ones I found on there were based in America and treatment over there can be very different depending not their insurance etc, so feel free to join me or add as a friend, sending pain free thoughts
Rosie Purves x


  • cathhankin
    cathhankin Member Posts: 28
    edited 30. Nov -1, 00:00
    Have just searched for the group but nothing is coming up - just one in America ? x
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Well done you....I've got OA not RA so I wont look for it but I know what you mean. I'm a volunteer for Arthritis Care and when we do stalls and things like that as you say its amazing how mnay people out there have arthritis and how many have never heard of us and some of the ideas they man said to me he wished he had a blue badge it would make life easier....I said apply and told him who to get in touch with.....he said but I dont get DLA,,,that doesnt matter....he was really surprised

  • rosiepurves
    rosiepurves Member Posts: 18
    edited 8. Jan 2011, 16:05
    It's RA support UK Ive tried to post a link but It just goes to facebook home page argh!
    OA, RA or any kind of arthritis sufferers are welcome I'm trying to cover issues such as pain, fatigue, relationships etc and they effect us all x
  • frogmorton
    frogmorton Member Posts: 29,506
    edited 30. Nov -1, 00:00
    Well done you rosie being so proacvtive - i wish you lots of success.

    toni xx
  • speedalong
    speedalong Member Posts: 3,315
    edited 30. Nov -1, 00:00
    Great that you have been so proactive. Hope your RA is behaving.

    I have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.
  • [Deleted User]
    [Deleted User] Posts: 3,635
    edited 30. Nov -1, 00:00
    Rosie, you may want to remove your name from the post or you could be targetted by spammers. Suggest you ask people
    to PM you for details