Help please ................need to pick your brains

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jilly
jilly Member Posts: 503
edited 15. Jan 2011, 15:32 in Living with Arthritis archive
Hi Again in need of help, some of you know i have a problem with pain and feeling ill all the time . Just to put you in the picture i have OA and an underactive thyroid. As i still feel ill my doctor thinks it may be another auto immune problem called sjorgen sydrome , i wondered if anyone on the site as this has my doctor said people with RA get this as well.
Just hoped someone could say if my dry mouth , dry eyes , pain in the neck and shoulders plus feeling hot and sweating all the time is likely to be this.
I am so fedup with feeling ill and being in pain daily, so any help would be so helpful. hoping someone can help......jilly :sad:

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  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    This syndrome has cropped up before: if you try a search on its name (the search option is at the top of the forum board, click on it whilst on the LWA forum and follow the instructions) the various threads should pop up and you can see what has been said. I know that there are a few on here with it but I cannot remember who! I don't have it so cannot offer any information, sorry. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • jilly
    jilly Member Posts: 503
    edited 30. Nov -1, 00:00
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    dreamdaisy wrote:
    This syndrome has cropped up before: if you try a search on its name (the search option is at the top of the forum board, click on it whilst on the LWA forum and follow the instructions) the various threads should pop up and you can see what has been said. I know that there are a few on here with it but I cannot remember who! I don't have it so cannot offer any information, sorry. DD


    Thanks DD I'll have a go . i seem to have been asking for help all lot ... jilly
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    That's one of the reasons we are here, and why this forum exists. Ask away, girl, if anyone can help they will. I am a very old hand at this arthritis malarkey, but a very new one at this forum business! DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • magenta
    magenta Member Posts: 1,604
    edited 30. Nov -1, 00:00
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    Hi Jilly!
    Guess what? I've been tested recently for that too! I've not heard anything back yet but I go back to rhuemy in March, so maybe I'll find out then. I have the dry mouth, very sore/dry eyes and all the neck 'n' shoulder pain too.
    Hopefully you'll find out soon and let us know how you get on,
    Eileen x
  • jilly
    jilly Member Posts: 503
    edited 30. Nov -1, 00:00
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    Hi Eileen , how strange we are very alike with the problems and the not getting any answers . I will let you know what they say if i get the answers. .........sandra x
    should of said i see him at the end of the month then the ENT . I have seen them both before about my voice you never know i may find something out x
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
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    Hi Sandra,

    Sorry your feeling shift just now. Some of that could be you thyroid as I remember but some sounds like its a combination to reaction to the drugs and the arthritis its self I think.....

    When do you next see someone flower? You may have sad but my eye sight is garbage.

    I get huge neck pain, collar bones feel grazed if touched, eve by a t0-shirt and the sternum and ribs also hurt. My lot is all down to the arthritis.

    I had a dry mouth on the sulfa but I have had less trouble with that since changing to the mtx. Hope you get a good night and feel better soon. Cris x
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
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    Hi Jilly

    Sjogrens is, I believe, commonly seen as secondary to RA. I too have dry eyes and dry mouth, which I think is likely to be Sjogrens, although never officially diagnosed. As to the shoulder pain and overheating, I have both those too but I had assumed that the shoulder pain is RA and the overheating hormonal.

    On a practical note, I have found that Biotene dry mouth toothpaste and mouthwash help hugely (expensive, but you might be able to get them on prescription if Sjogrens is diagnosed) and I also carry around a Boots Dry Mouth spray which is helpful as a quick fix in the night or when out and about. For dry eyes, the doc can prescribe eye drops known as "artificial tears" and sometimes cream to put in your eyes at night to prevent the eyelids sticking to your eyeball and causing scratches etc.

    I am so sorry you are feeling so rough at the moment. As most, if not all of us here, know from experience feeling unwell all the time is very hard to cope with but hopfully by sharing on here you will know that you are not alone with this.

    Thinking of you.

    Love Tillyxxx
  • tweedie
    tweedie Member Posts: 70
    edited 30. Nov -1, 00:00
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    Hiya,
    Sjorgrens -- yes I have it , arthritis does throw some things at us :evil , I have eye drops for during the day to rehydrate my eyes and ointment to put in before sleeping to stop my eyes , well it feels like my eyelids sticking to my eyes :???: , all these are on prescription , also I was advised to tell my dentist as there can be problems as our mouths dry out , drinking of course helps ( afraid not alchohol though or only for fun :P ) and I was advised to chew sugar free chewing gum , but I don't like that , our eyes can be damaged as they dry out , also we become more prone to eye infections, regular eye examinations of course are recommended , I also find bright light painful and blinding :roll: , I think also our skin is dryer too , its problem really , not life threatening BUT uncomfortable YES , my eye specialist really recommends eye drops with no preservatives which as I said are on prescription , as to the pain , well I don't know , as flare ups can come at anytime and hurt anywhere, this is really just another symptom of arthritis , my own sjorgrens was diagnosed at eye clinic for something else and initially involved my having bits of paper stuck in my eyes then it was checked to see how much my eyes had watered :lol: :roll: and of course they hadn't watered so hey presto that was that , hopes this helps.
    Joanna
    (tweedie)