my update

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03darhum
03darhum Member Posts: 72
edited 17. Jan 2011, 14:36 in Community Chit-chat archive
hi everyone :grin:
seen my rumy today and actuly it isnt ra but is called seronegative spondyloarthropathy with sacroiliitis does anyone know what that means :?: i just got it wrong thinking he said ra when actully he was decribing this as ra but without the rumatuied factor, i am starting pysco again on the 14th of feb and seeing a foot specilits on the 1st. also why do i have to keep having blood test when i am on sulfzaline?

thanks all hope you all doing great hope to hear from you soon
:smile:

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  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    Hi Darren, it might be an idea to post again on the helpline forum, this sounds more like a topic for there. I think I know the answer to the blood test query: you need regular tests as sulpha is an immune-system suppressant drug, it is cleared from the body via the liver (or is it the kidneys? or both? I cannot remember) and they have to monitor your reactions to it to make sure you are tolerating it. I had fortnightly tests for years, you get used to them. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
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    Hi Darren
    Like DD says put a post on lwa, there are quite a few on here with the same......sorry cant spell it sero something...good luck with meds..and let us know how you get on
    Barbara x
    Love
    Barbara
  • PamieAFC1903
    PamieAFC1903 Member Posts: 899
    edited 30. Nov -1, 00:00
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    I could ask my mum if she has heard of it if you like?
    I ♥ Runrig.

    I live, sleep, eat and breathe Runrig!!!!!.
  • 03darhum
    03darhum Member Posts: 72
    edited 30. Nov -1, 00:00
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    thanks dd and babara 12
    and yes please and thanks pamie
  • 03darhum
    03darhum Member Posts: 72
    edited 30. Nov -1, 00:00
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    thanks dd and babara 12
    and yes please and thanks pamie
  • PamieAFC1903
    PamieAFC1903 Member Posts: 899
    edited 30. Nov -1, 00:00
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    She is at work just now, will ask her when she comes in tonight or maybe tomorrow morning depending on her mood.
    I ♥ Runrig.

    I live, sleep, eat and breathe Runrig!!!!!.
  • traluvie
    traluvie Member Posts: 2,579
    edited 30. Nov -1, 00:00
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    Hi Darren,

    I'm glad you had some answers today, even if they weren't what you were expecting...
    Least you can be treated correctly though now and receieve the help and support you need,
    Keep us posted..
    Take care

    Tracy
    xxxx
    th_tn_TisFORTIGGER.jpgxxTracyxx