Interstitial Lung Disease

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annic4363
annic4363 Member Posts: 67
edited 4. Feb 2011, 05:23 in Living with Arthritis archive
Hi there

For those who know me I am sooo sorry not to have been online for so long. To say that last year continued to get worse would be to understate it somewhat!

Having lost my Mum in September and then having a serious accident in October I then lost my job. In December I went to see the specialist about my dislocating shoulder fully convinced that he was going to tell me to stop being such a baby and a bit of physio would sort it... oh no! It turns out I have broken my clavicle and torn all the ligaments. So this of course means surgery to repair the damage.

Well last week I went for my pre-op for that and things got more complicated. My heart was running at around 150 beats per minute which caused major panic! I ended up being admitted to hospital while they ran a bunch of tests - all inconclusive unfortunately.

So today I saw my Rheumy nurse to see if she had any ideas. They were suspicious of the Etranacept in particular but that looks like an unlikely cause.

They are now suspecting Interstital Lung disease which is apparently quite common for RA patients. I am now a bit freaked and waiting for a high res CT scan to confirm the diagnosis.

I am pretty scared by this as it sounds pretty serious so I would be so grateful if anyone who has any experience of this could let me know how worried I should be and what your experience is?

As always I really do appreciate all your help and support

Love Annie xxxx

Comments

  • frogmorton
    frogmorton Member Posts: 29,493
    edited 30. Nov -1, 00:00
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    Hi Annie

    I know nothing, but l do know you!

    You have had a terrible time :sad: The loss of your Mum :sad: ( I have lost both of my parents so I understand) and the accident which I presume caused the clavical malarky :shock: Do you have a date for surgery?

    having said l know nothing I looked it up on wikipedia and it looks treatable? Please do let us know when the test is and we will support you in any way we can.

    So good to see you

    Love

    Toni xx
  • annic4363
    annic4363 Member Posts: 67
    edited 30. Nov -1, 00:00
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    Thank you so much! Its wonderful to come back here and get such great support.

    The surgery is currently scheduled for 14th February but the anaesthetist is currently a bit freaked by me so I suspect he will want to get to the bottom of all this before he allows the op to go ahead.

    I just want to get back to normal and so back to work.... Is that too much to ask?

    Annie x
  • frogmorton
    frogmorton Member Posts: 29,493
    edited 30. Nov -1, 00:00
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    Hi Annie

    it IS a lovely place tobe here isn't it :smile:

    Of course you want to get bac to normal - it is not too much to ask at all. The aneasthatist is probably covering him/herself to be honest so if the scan is before then on the lungs you may well be ok to go ahead.

    They just might need to take extra precautions for a general.

    Now don't disappear again will you? I dont know how much help we will be, but we will support you :smile:

    LOve

    Toni xx
  • annic4363
    annic4363 Member Posts: 67
    edited 30. Nov -1, 00:00
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    Thank you so much!

    I will try and do better!

    Annie xx
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
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    Hi Annie, we haven't met as such, but I just wanted to say how sorry I am that you are having such a rough time.. I hope that they can get things sorted so that you can have the op that you need..
    I've only been on here a few months but it is a great place for support eh?

    Best wishes hun
    :grin:
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • annic4363
    annic4363 Member Posts: 67
    edited 30. Nov -1, 00:00
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    Thats very kind! Thank you for taking the trouble to drop me a line.

    I guess this just shows how long I have been away... :oops:

    Thanks again!

    Annie xxx
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
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    You are welcom Annie, if we can't support each other who else is gonna do it?

    I am sorry to hear about your Mum too.. I lost my Father-Inlaw a year ago last August, we were very close.. It would have been his birthday last Monday... We still miss him a lot but it does get easier, bit of a cliche but a true one..

    :grin:
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • annic4363
    annic4363 Member Posts: 67
    edited 30. Nov -1, 00:00
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    I am sorry to hear that. It is hard isn't it? I lost my Dad nearly 10 years ago and I still go to phone him on the odd occasion!

    A xx
  • daylily
    daylily Member Posts: 619
    edited 30. Nov -1, 00:00
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    Annie you have had a dreadful time of it.!!!

    Welcome back, as Tony says I do not know you but have found the forum a lifesaver lately.

    Please keep us updated and good luck, that lung thing does sound scary- hopefully it's a long winded name for something simple.

    Take care
    xx
  • annic4363
    annic4363 Member Posts: 67
    edited 30. Nov -1, 00:00
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    Thank you!

    I do hope so! Having a heart that feels like it wants to jump out of your chest is not funny!

    Still the good guys are on the case so fingers crossed

    Thanks again

    A xx
  • annic4363
    annic4363 Member Posts: 67
    edited 30. Nov -1, 00:00
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    Thanks! I read all that and frightened myself half to death!!!

    I was hoping for some personal reassurance I suppose..

    Thanks again

    Annie x
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
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    I know it is easy for me to say, but until you know all the facts etc try not to let yourself get upset by it all...

    Look after yourself, catch you later on..

    :grin:
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
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    Hi annie
    welcome back
    I am so sorry that you have had a really rough few months and now you have yet another concern.
    I can't help with your problem, but i hope it is sorted soon.
    sending hugs ((((((((((())))))))
    juliepf x
  • annic4363
    annic4363 Member Posts: 67
    edited 30. Nov -1, 00:00
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    Thank you! Interesting that no-one seems to have this complication.

    Unique again?? Hey Ho!

    Thanks for the support

    Annie xx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    There are probably quite a few people that do, it's just that they don't belong to the forum, or perhaps like you, don't post that often so haven't seen your message. From what you have said it all sounds reparable, one way and another, so let's hope that proves to be the case and you will soon be feeling better in yourself. I wish you well. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • frogmorton
    frogmorton Member Posts: 29,493
    edited 30. Nov -1, 00:00
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    Hi Annie

    I hope you are well today and am sorry no-one else has this complication, but we will still support you if we can at all.

    I think we have to say you is 'special' :wink:

    Do you have a date for the scan yet?

    Love

    toni xx
  • lavenderlady
    lavenderlady Member Posts: 409
    edited 30. Nov -1, 00:00
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    hi Annie so sorry about the past few months more added upset for you to cope with, as for the anesthatist I had my wrist replace on Nov 2nd last year like you I had a high heart rate as well as a very hig pulse so they did my op by a block and twilight sleep ( i did wake up and felt nothing but heard the surgeon talking about screws and felt him using the screwdriver lol ) the anesthatist asked if I wanted to drift off again which I did next thing I was back in bed
    the block was injected into my neck again did not feel a thing, but would use this method again , once i woke up I felt fine the block also stopped any pain for around 24 to 48 hours,
    hope you feel better soon x