Interstitial Lung Disease

annic4363 · 2. Feb 2011, 07:44

Hi there

For those who know me I am sooo sorry not to have been online for so long. To say that last year continued to get worse would be to understate it somewhat!

Having lost my Mum in September and then having a serious accident in October I then lost my job. In December I went to see the specialist about my dislocating shoulder fully convinced that he was going to tell me to stop being such a baby and a bit of physio would sort it... oh no! It turns out I have broken my clavicle and torn all the ligaments. So this of course means surgery to repair the damage.

Well last week I went for my pre-op for that and things got more complicated. My heart was running at around 150 beats per minute which caused major panic! I ended up being admitted to hospital while they ran a bunch of tests - all inconclusive unfortunately.

So today I saw my Rheumy nurse to see if she had any ideas. They were suspicious of the Etranacept in particular but that looks like an unlikely cause.

They are now suspecting Interstital Lung disease which is apparently quite common for RA patients. I am now a bit freaked and waiting for a high res CT scan to confirm the diagnosis.

I am pretty scared by this as it sounds pretty serious so I would be so grateful if anyone who has any experience of this could let me know how worried I should be and what your experience is?

As always I really do appreciate all your help and support

Love Annie xxxx

frogmorton · 2. Feb 2011, 07:50

Hi Annie

I know nothing, but l do know you!

You have had a terrible time :sad: The loss of your Mum :sad: ( I have lost both of my parents so I understand) and the accident which I presume caused the clavical malarky :shock: Do you have a date for surgery?

having said l know nothing I looked it up on wikipedia and it looks treatable? Please do let us know when the test is and we will support you in any way we can.

So good to see you

Love

Toni xx

annic4363 · 2. Feb 2011, 07:57

Thank you so much! Its wonderful to come back here and get such great support.

The surgery is currently scheduled for 14th February but the anaesthetist is currently a bit freaked by me so I suspect he will want to get to the bottom of all this before he allows the op to go ahead.

I just want to get back to normal and so back to work.... Is that too much to ask?

Annie x

frogmorton · 2. Feb 2011, 08:05

Hi Annie

it IS a lovely place tobe here isn't it

Of course you want to get bac to normal - it is not too much to ask at all. The aneasthatist is probably covering him/herself to be honest so if the scan is before then on the lungs you may well be ok to go ahead.

They just might need to take extra precautions for a general.

Now don't disappear again will you? I dont know how much help we will be, but we will support you

LOve

Toni xx

annic4363 · 2. Feb 2011, 08:11

Thank you so much!

I will try and do better!

Annie xx

tjt6768 · 2. Feb 2011, 08:51

Hi Annie, we haven't met as such, but I just wanted to say how sorry I am that you are having such a rough time.. I hope that they can get things sorted so that you can have the op that you need..
I've only been on here a few months but it is a great place for support eh?

Best wishes hun

annic4363 · 2. Feb 2011, 08:57

Thats very kind! Thank you for taking the trouble to drop me a line.

I guess this just shows how long I have been away... :oops:

Thanks again!

Annie xxx

tjt6768 · 2. Feb 2011, 09:03

You are welcom Annie, if we can't support each other who else is gonna do it?

I am sorry to hear about your Mum too.. I lost my Father-Inlaw a year ago last August, we were very close.. It would have been his birthday last Monday... We still miss him a lot but it does get easier, bit of a cliche but a true one..

annic4363 · 2. Feb 2011, 09:10

I am sorry to hear that. It is hard isn't it? I lost my Dad nearly 10 years ago and I still go to phone him on the odd occasion!

A xx

daylily · 2. Feb 2011, 09:22

Annie you have had a dreadful time of it.!!!

Welcome back, as Tony says I do not know you but have found the forum a lifesaver lately.

Please keep us updated and good luck, that lung thing does sound scary- hopefully it's a long winded name for something simple.

Take care
xx

annic4363 · 2. Feb 2011, 09:24

Thank you!

I do hope so! Having a heart that feels like it wants to jump out of your chest is not funny!

Still the good guys are on the case so fingers crossed

Thanks again

A xx

annic4363 · 2. Feb 2011, 09:33

Thanks! I read all that and frightened myself half to death!!!

I was hoping for some personal reassurance I suppose..

Thanks again

Annie x

tjt6768 · 2. Feb 2011, 09:44

I know it is easy for me to say, but until you know all the facts etc try not to let yourself get upset by it all...

Look after yourself, catch you later on..

julie47 · 2. Feb 2011, 09:44

Hi annie
welcome back
I am so sorry that you have had a really rough few months and now you have yet another concern.
I can't help with your problem, but i hope it is sorted soon.
sending hugs ((((((((((())))))))
juliepf x

annic4363 · 3. Feb 2011, 08:21

Thank you! Interesting that no-one seems to have this complication.

Unique again?? Hey Ho!

Thanks for the support

Annie xx

dreamdaisy · 3. Feb 2011, 09:32

There are probably quite a few people that do, it's just that they don't belong to the forum, or perhaps like you, don't post that often so haven't seen your message. From what you have said it all sounds reparable, one way and another, so let's hope that proves to be the case and you will soon be feeling better in yourself. I wish you well. DD

frogmorton · 3. Feb 2011, 10:39

Hi Annie

I hope you are well today and am sorry no-one else has this complication, but we will still support you if we can at all.

I think we have to say you is 'special'

Do you have a date for the scan yet?

Love

toni xx

lavenderlady · 4. Feb 2011, 05:23

hi Annie so sorry about the past few months more added upset for you to cope with, as for the anesthatist I had my wrist replace on Nov 2nd last year like you I had a high heart rate as well as a very hig pulse so they did my op by a block and twilight sleep ( i did wake up and felt nothing but heard the surgeon talking about screws and felt him using the screwdriver lol ) the anesthatist asked if I wanted to drift off again which I did next thing I was back in bed
the block was injected into my neck again did not feel a thing, but would use this method again , once i woke up I felt fine the block also stopped any pain for around 24 to 48 hours,
hope you feel better soon x

Interstitial Lung Disease

Comments

Categories