I'm joining the steroid reduction gang !

Wonkylegs

HI all

well I know we had a thread about reducing steroid tablets (prednisolone) but I can't find it :oops: so I've had to start a new one.

I have been on 5mg since the middle of November, having started to reduce from 10mg.

Today I have been given the go-ahead to try reducing again - by 1mg a month. SOunds like it should be easy ..... but experience of postings on here tells me it might be anything but :roll: :roll:

So .... fingers are crossed that I don't :-

start a huge joint flare,
start itching again (from the leflunomide rash)
Experience worse side effects from the Infliximab.

:?: why am I celebrating this joyous news :?: :roll: :roll:

how's everyone else getting on with the joyous reduction plans?

Wonky xxxx

tjt6768

Hi Wonks, I don't have experience with this but wanted to wish you good luck, I think I remember reading something about getting below the 5mg being the toughest bit so we will all be here to support you I'm sure

Wonkylegs

Thanks Tony

I did look for the other thread, but thought I'd maybe imagined it, so I'm glad you remember reading about the 5mg bit!

Hope you're keeping ok right now & not aching too much in this cold & windy weather?

take care
WOnky

tjt6768

I'm not too bad thanks, bloody horrible and cold though eh?


Just logging off..

I'm sure someone with more knowledge than me will be along at some point to advise..

Goodnight Wonks.... Sleep well

Wonkylegs

might Tony - hope we're both still here in the morning and not been blown away :shock: :roll:

Wonky

chris7

Hi Wonky

Sorry I can't help with this as you know, but I really hope all goes well for you. However I do like a bit of a challenge especially at this hour. Why I am still up?? :roll: I ran out of spoons days ago!!!

The thread you were looking for was by dreamdaisy called Steroid reduction plan. Sadly it is so busy on here, it has dropped a few pages. Last used on 21st Jan. I will bump it up tomorrow if you can't find it as there may be some info from both DD and others which can help. Am sure people will call in here when they see you and hopefully DD will let us know how she is doing too?

Hope the tummy a bit better at the mo. Hope you do get some sleep. Take care
Gentle hugs ((( ))))
love
Chris

Wonkylegs

bless you Chris - and yes, why are you up at this time? .... though I think tomorrow is a duvet day? if so you're allowed a late pass (or should that be an early morning pass )

I must have missed the thread with this colour change again - did go back for most of Jan I thought ..... began to think I'd imagined it!!!

Hope you're not too achey after working, and that you enjoy your duvet day.

THe tum is fine now thanks, though probably because I've halved the Naproxen, which is ok for the short term ...... am only going to use the 500 when I absolutely have to .......... & we'll see how it goes.

right, I'd better think about going to bed soon ..... not sure I'll sleep though, with the howling wind we have at the moment :roll: :roll:

hugs & I really will get round to emailing you properly soon!

Wonky xxx

skezier

Hi Wonky,

Oh I got everything crossed for you and just remember I was on 35 a day and came off them relatively quickly so..... mind they didn't agree with me but did do the job....

Leaving you an anti- problem steroid reduction draft and a huge ((((( ))))) and a hope your asleep..... I know who has the lump hammer and she ain't afraid to use it

Really hope it will all go smoothly and you get off them with no problems flower. Love Cris xxx

julie47

Morning wonky
just want to wish you luck in your steroid reduction plan.
Yes it is dd who is trying to do the same.
Fingers crossed for you both
juliepf x

dreamdaisy

I think the thread you are referring to was mine - it was around the beginnning of the year, do you want me to dig it up for you? Don't assume the worst - a nice,slow steady reduction should (hopefully) result in a fairly smooth journey, but I think I am right in saying that the lower the dose the harder it can be for the body to adjust. You may well find yourself alternating doses for a while, until your body gets used to the idea that it should be making this stuff for itself (oh you can just hear it, can't you? 'Whaddaya mean? I gotta go it? Me? YOU ARE 'AVIN A LARF. Just gimme the tablets, you silly moo.' Well, that's what mine says!) I will find it and PM you the details. DD (now on 13.5, and wondering whether to go to 12.5 or 13 on the next reduction date, which is next Wednesday - decisions, decisions, hell wonky, we knows how to live! )

Hey! You found it!