Ankylosing Spondylitis, Anti-TNF (Humira) Treatment Soon

rafikgaffar

I have been living with AS for over 25 yrs or half my life. My mobility is very limited. My condition has worsened in the last year and in the past six months in particular .....being almost bed bound. I am unable to sit for long periods due to my sore bum, neither am I able to lie down..both my shoulders (top of) seriously sore. Had it not been for my better half..life would not be worth living. My weight ..particularly my stomach has ballooned ! My Rheumy is starting me on Humira (Anti-TNF) on the 14th Feb. I am hoping and praying this to work in order to have some life...it would be nice to have an occasional good sleep and feel rested in the mornings.

My muscle degeneration is at an alarmingly high rate and I wonder if I may have polymyositis (muscle wasting disorder) that my elder brother died of a few years ago. I am busy in my endeavors to get a referral with a Neurologist, however,the muscle weakness may also be due to inactivity due to pain and immobility..Any comments from readers with similar muscular pain problems most welcome. I do take amitryptoline (spelling ?) for a few days but apart from feeling dozy it does not seem to be doing anything else.

I wish all of you who are commencing Humira soon and look forward to reading your experiences with the treatment. I shall, of course post my review of the treatment soon. Reading about some peoples experiences with their breathing problems is a cause for concern.. I have breathing difficulties normally so keep my fingers crossed !

Good luck to all !

tkachev

Good luck with the Humira. I hope it helps you,

Elizabeth

rafikgaffar

Thanks Liz.

barbara12

Hi
And welcome to the forum, I really do wish you well with your treatment, I do think you might be better posting this in Living with Arthur, you will get support of others that are on the same treatment.
Good Luck
Barbara x

tkachev

I wonder why it has got worse in the last six months. It can atch you by surprise so make sure you get to the GP and ask to be referred to rheumatology if not already done so. It is easy to forgotten otherwise.
Barbara is correct is suggesting you post this on Living With Arthritis as there will be others in a similar position and they will offer better advice,
Take care

Elizabeth

rafikgaffar

Thx LIZ & BARB...have moved to Living With Artritis. Your input was very much appreciated.God Bless .