Ankylosing Spondylitis, Anti-TNF (Humira) Treatment Soon

rafikgaffar

I have been living with AS for over 25 yrs or half my life. My mobility is very limited. My condition has worsened in the last year and in the past six months in particular .....being almost bed bound. I am unable to sit for long periods due to my sore bum, neither am I able to lie down..both my shoulders (top of) seriously sore. Had it not been for my better half..life would not be worth living. My weight ..particularly my stomach has ballooned ! My Rheumy is starting me on Humira (Anti-TNF) on the 14th Feb. I am hoping and praying this to work in order to have some life...it would be nice to have an occasional good sleep and feel rested in the mornings.

My muscle degeneration is at an alarmingly high rate and I wonder if I may have polymyositis (muscle wasting disorder) that my elder brother died of a few years ago. I am busy in my endeavors to get a referral with a Neurologist, however,the muscle weakness may also be due to inactivity due to pain and immobility..Any comments from readers with similar muscular pain problems most welcome. I do take amitryptoline (spelling ?) for a few days but apart from feeling dozy it does not seem to be doing anything else.

I wish all of you who are commencing Humira soon and look forward to reading your experiences with the treatment. I shall, of course post my review of the treatment soon. Reading about some peoples experiences with their breathing problems is a cause for concern.. I have breathing difficulties normally so keep my fingers crossed !

Good luck to all !