good forum but so sad

oneday

Just noticed this new forum and what a good idea. Although seeing the big number of posts makes me feel so sad for the poor kids with arthur, having to manage growing up and its changes and arthur as well.
Parents-youre kids are lucky to have you.

lindseyhall

Hi, I'm a mum too. Matthew was 18months when he was diagnosed. Please check out my Facebook forum. We really do keep in touch on here and I'm sure you'll find much of what you experience as a family is in common with many of our stories. Bets wishes. Lindsey X
http://www.facebook.com/permalink.php?story_fbid=10150112588442884&id=12131682883#!/group.php?gid=12131682883

oneday

sorry, not looked on this part of the forum for a while.......

anita01

Recently we have (on facebook ) been saying where we are from geographically, Many parents are looking for local contacts so please have a look, x