latest appointment

nanasue
nanasue Member Posts: 465
edited 17. Feb 2011, 17:24 in Living with Arthritis archive
Hello all,
hope you're all as good as can be. Had my latest appt: yestrerday, good and bad. I don't have sjorgrens syndrome although I do have problems with a dry mouth, so that's the good news, the bad is, I have another chest infection, so on anti-biotics, feel slightly sick and have dodgy tummy. The other news is, they are thinking of putting me on anti-TNF, Enbrel, don't know if this is good or bad, would appreciate anyone's views, good or bad about enbrel. By the way, I forgot, am having a flare which I got a steroid injection for, it seems to have helped a bit. I know you're thinking "How could she forget she's having a flare", but with the chest infection (and cold) and all the info bombarded at me yesterday as well as having a chest x-ray and being at the hospital for 3 hours when I was really tired (and still am, that's why I didn't post yesterday, I couldn't type straight or think straight, still having problems now!!! ) believe it or not it wasn't the main thing on my mind, even though I was in pain. I think I'll fifnish now because I'm loosing the plot!!!!!!!!!!!!!!!!!!!


Sue x

Comments

  • caterina57
    caterina57 Member Posts: 1,424
    edited 30. Nov -1, 00:00
    Hi Sue,
    My you are in the wars aren't you, well all I can say is look after yourself and I hope that the chest infection, cold and flare all clear soon.I can't help re the Enebril as I have no experience of it. hope that you are well soon
    Cath
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    So, no syndrome, good, cold/tummy problems bad (join the club, me too). Unlike your doc mine refused to give me anything, so I am snuffling/squitting my way thro it. Wot larks, Pip, wot larks.

    I had Enbrel in 2006. It tried to explode my liver (I didn't feel a thing and that is why you do the blood tests) so I wasn't that impressed. Needless to say it didn't touch the arthritis. delboy is on Enbrel and doing v well on it (for the most part). You won't know until you try. I really hope you find yourself in del's camp and not mine. I am slowly coming to the conclusion that most people are in better camps than me, so you stand a fighting chance! :smile:
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Sue
    You poor thing, good news that you dont have SS sorry cant spell it....but having a chest infection and a flare, I really do hope that things improve for you very soon.
    You keep warm and get some rest.
    Please let us know how you are.
    Barbara x
    Love
    Barbara
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi Barbara
    I do hope things are a little better for you today.
    Take care and rest if you can.
    Get well soon
    Juliepf x.
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi Sue

    sorry I missed thsi yesterday

    I do hope you are feeling a wee bit better today? Colds and bad chests are no joke.

    I have no personal experience of enbrel yet, but tend to think read up on it ask this lot (the experts) and my family then if you are ready give it a go.

    Lets hope it is a good one for you.

    Love

    toni xx
  • nanasue
    nanasue Member Posts: 465
    edited 30. Nov -1, 00:00
    Thanks everyone for your messages, I am feeling slightly better today. Chest is feeling a bit better and flare has eased thanks to steroid jab. I went to bed at 9.30 last night and got up at 9.30 this morning so I reckon I probably got 9 - 10 hours sleep, how good is that, I definitely needed it, had 3 early mornings at my daughters last weekend (where I stayed) 'cos the 3 kids all get up by 7am. Having a nice easy day and a long soak in the bath, I can still just about get in and out. Got a friend coming round for tea and cake and Mr Nanasue bought me a new coat/jacket and cardigan, what a love, I think that deserves some pampering, he's easily pleased I'll just make him a cake.

    Sue x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Wash your mouth out. NOW. 9-10 hours of whaaaaaaaaat? I can feel a tantrum coming on, I really can. She's got meds for what we both have and she's SLEEPING? The rank unfairness of life gets my goat sometimes (and also my gerbil, goldfish and gnu).

    Seriously, I am glad you are feeling brighter. That is definitely a good thing, nanasue. I have just sneezed a gloriously, wet sneeze and my keyboard is glinting. Oooooops. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Nana sue

    I have just been reading back and oh my I called you barbara :oops: :lol:

    Don't know what happened there. I am sorry. Must be the meds.

    Any way hope you are ok today.

    Juliepf x I have answered your other post about starting a new med. (it was you wasn't it :lol: )

    I think I will have to go and rest :lol:
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi Sue,
    I do hope the steroid injection is continuing to help with the flare. The AB’s can give you stomach upsets but the hanging about for three hours will not have helped.
    Sorry I cannot help you with the TNF’s but it is good news that Sjorgrens has been eliminated.
    I hope you had a lovely tea with your friend and got to parade your new clothes. Now if there is any cake going??? :lol:

    Glad you are feeling so much better in yourself.
    Lv, Ix

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