Steriods

clifton

:eek: Hi I am new here this is my first post. Looking for some advice I have RA tried Sulzine MTX Anti Inflams due to various reasons these were all stopped,now on steroids. These are begining to afect my sleep only slept 15 hours out of last 72 hours, cant think straight cant concentrate feel terrible. Please does anyone know if this is normal my 3rd weak on them now, does this last or does it get any better the longer I take them? 10mgs daily also Hydroxy started yesterday 400mg daily. Sorry :P for any mistakes. Thank You

dreamdaisy

Hi. You sound as tho you are having a rough time, I am so sorry. I am on 12.5 gms of daily steroids: they affect my sleep inasmuch as I get wonderful sweats from them (and the other junk too) so I don't get a good night's sleep. For your sleep to be this disturbed tho does not sound good. I think you should contact your GP and talk it through with him. Who put you on the steroids? They could be interacting with the hydroxy - I have never taken that so I don't know if that is possibility. We all react differently to these medications, which is part of the problem! I wish you well. DD

clifton

Hi DD thanks for reply Consultant put me on them when all else failed no good telling my GP he wont interfere with what my Consultant says, I rang my Rheu Nurse she said it is just one of the many side efects and as my pain has got worse by none of the other meds working I must stay on them. Just wonder if it gets any better given more time, and as I only started on the Hydroxy yesterday I wont know about side effects with that yet. I have read on here some people are on Hyroxy maybe someone will be on here later and read my post. Thanks again

dreamdaisy

I adore my steroids, they are the only things that 'work' with me, ie they give me the illusion that I am better and that I can cope. This is why I am devoting this year to coming off them - long-term they are not good meds at all. I also take humira, meth and sulphasalazine, I have PA (it's similar to RA but with the added bonus of psoriasis.) I still think you need to contact someone about the sleep problem: 10mgs is not a huge dose and this side effect does seem somewhat extreme. What time of the day are you taking them? DD

traluvie

Hi Clifton..

I had perisidone november but did not help so had depo mendrone injection.. that has helped me alot, so i haven't reallly suffered side effects from them..

Hydroxy .. i started that tue.. 400mg like you.. so like you i am just starting it.. the pharmacist had a good talk to me, she told me that the tablets kind of shut down the immune system making you more sceptible for colds and viruses.. she said if i do catch a cold or virus i will need to contact GP.. the main side effects she told me to watcg out for was dry eyes and a rash... i did wake up this morning with my face all puffy and blotchy, but i thibk that is side effect from steroids... for more info though you could type the drug hydroxy in search box at top of page and see what info comes up, or you could ring the helpline at the top of page for info...

Keep us posted on how you are getting on, but like DD said if you are suffering you need to see GP and maybe they can prescribe you something to help you sleep.. i'm on amtriptyline 20 mg.. they help me sleep better than i used to lol..

Wish you well

clifton

Hi Tracy Well we will have to wait and see how we get on with our Hydroxy I will post on here if I have any side effects. Sorry but I hate taking meds to make me sleep, and I know my steroids is a low dose maybe my Body is not used to them yet it is early days. I take them as soon as I get up between 6-00and 7-00am. I had a flare up before I started the steroids and had injection in my shoulder on the 2nd Feb at least I can use my arm and hands more now and the pain is not as bad. I cant type for long as this starts my wrist and shoulder off again, better come off here now back tomorrow. Thank you for all the help and advice glad I joined this site now.

Pat

dreamdaisy

Right, the good news is you are taking them at the right time as that mimics the body's own production of steroid (I learned that useful fact from scattered, another forum member) but I now wonder if it is the steroids that is affecting your sleep so badly. Could it just be pain/stress etc? The disappointment of meds not working fuels the stress of this whoe miserable business, add in the stress of not sleeping well and the general pressures of life and it all adds up to not that good a recipe for a good night's doze. I am not a doc, I don't know you or your situation, but you do sound under some stress and I can empathise with that. Be kind to yourself, relax as much as you can during the day, keep in touch with us to let us know how you are doing and between us all we will see if we can get to the bottom of this. I wish you well. DD

frogmorton

Hi Pat

I am sorry to hear you are so rough :sad:

I ahve been on hydroxy for a few years now and find it fine. It seems to be pretty well doing the job, but I do take it alongside arcoxia (anti-inflam) and lanzoprazole to protect my belly!) colchicine and amitriptyline at night. I also have bu-trans patches for pain.

I have to say it seem to be a good combination for me. The hydroxy do take a hwile to kick in, but that's nothing new is it and definitely affected my appetite for a while. Overall really no side effects and l am very pleased.

I do hope they help you and hope that you have pain releif as well to be going on with. I know l would be like you and couldn't tolerate lack of sleep above all else.

Love

Toni xx

julie47

Hi clifton
welcome to forum

I have been taking hydroxy for about 18 months now, along with celecoxib, leflunomide, and methotrexate and I have found the introduction of it has really helped me.

Hope it helps you too
juliepf x