a bit of hope in the fight against PA
jennylynn
Member Posts: 101
hi everyone,
its been a few weeks since i have posted so just trying to catch up on how everyone is doing. I hope i find you all well on this cloudy saturday afternoon.
ticking away nicely at the moment, the clinical trial drug seems to be making a huge difference, no longer taking cocodamol and to be honest, not needed any anti-inflammatories for a week or so. Still getting some stiffness but overall seems to be (touch wood) improving! i just hope other people receiving the drug report the same, i'll be devastated if they dont roll this out as a new drug for all of us :-( not having another treatment until april (still taking the meth) so its possible my stiffness will come back full force but fingers crossed!
Oh! and i got my exam results back yesterday and passed my 1st semester (even managed 84% on one of my exams!!). only 12 months to go and i'll be a qualified dental therapist :-)
Anyway i wont bore you all anymore! i wanted to share this because i feel really strongly that this drug is making a huge difference and my intention is to offer maybe a bit of hope that we PA sufferers might just get some relief. I hope it doesnt feel like i'm bragging that i'm feeling well at the moment, i'll apologise if it does. I know i am lucky to be doing this trial, and i've agreed for the rheumatologist running the trial to sample my DNA in order to try and establish a genetic link to PA.
Thinking of everyone and hoping that old arthur is behaving at the moment.
Jennyx
its been a few weeks since i have posted so just trying to catch up on how everyone is doing. I hope i find you all well on this cloudy saturday afternoon.
ticking away nicely at the moment, the clinical trial drug seems to be making a huge difference, no longer taking cocodamol and to be honest, not needed any anti-inflammatories for a week or so. Still getting some stiffness but overall seems to be (touch wood) improving! i just hope other people receiving the drug report the same, i'll be devastated if they dont roll this out as a new drug for all of us :-( not having another treatment until april (still taking the meth) so its possible my stiffness will come back full force but fingers crossed!
Oh! and i got my exam results back yesterday and passed my 1st semester (even managed 84% on one of my exams!!). only 12 months to go and i'll be a qualified dental therapist :-)
Anyway i wont bore you all anymore! i wanted to share this because i feel really strongly that this drug is making a huge difference and my intention is to offer maybe a bit of hope that we PA sufferers might just get some relief. I hope it doesnt feel like i'm bragging that i'm feeling well at the moment, i'll apologise if it does. I know i am lucky to be doing this trial, and i've agreed for the rheumatologist running the trial to sample my DNA in order to try and establish a genetic link to PA.
Thinking of everyone and hoping that old arthur is behaving at the moment.
Jennyx
Jennyx
0
Comments
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Hi Jenny,
Nice to see how its going for you and really pleased it does seem to be helping.
Keep us posted please and so hope it does better for you yet as well. Cris x0 -
It's good to hear that it seems to be working for you - let's hope that lasts, and lasts for a good long while. Good luck with the rest of your studies. DDHave you got the despatches? No, I always walk like this. Eddie Braben0
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hi, its heartning for mw to hear that someone is being helped so much by the medication - gives me hope x0
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Jenny
that is brilliant news! I am so very pleased for you
and as for the exam results - well - you have done brilliantly
Love
Toni xx0
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