wish I hadnt

spacey

I was tempted by google last night to do something I knew I shouldnt have. I spent a good few hours looking at my future with ankylosing spondilitis and completely freaked myself out. It is only now that this highly likely diagnosis has hit me and I feel devestated. I am 34 years old with 2 young children and like everyone here I am sure, fear so much for my future. Will this get any easier to accept?

valval

do not suffer with that but you will come to terms with what you must we will be here to help you no two people suffer the same so do not get your self into to much of a state you could be one of the lucky ones just try to stay positive hugs val

frogmorton

Spacey

We have all done what you just did (well maybe some are more sensible) but I certainly did and I had myself immobile within a year in my mind :oops:

Thing is that you know what you have now and you are doing something about it. Getting treatment and looking after yourself I expect.

All I can say is this panic will subside and it is so likley that you will find things way better than you feared.

The kids will keep you going too.

Love

toni xx

barbara12

Hi Spacey
Like the others have said, try to stay positive...I know its not easy when you have read all that stuff.
Everyone's different ...you have to keep those muscles strong...it will make such a difference, ask can you see a physio they will give you the right exercises to do.
Good Luck
Barbara x

katie5

hi spacey

Scarey stuff! please don't panic - you will cope outstandingly well because you have your family to support you. i too have spondylosis and my hubby and kiddies make everyday bearable. this afternoon i was soo bad i was in bed (which i never do ) i started crying and then the next thing my hubby and daughter were both cuddled up next me - we stayed there for awhile then i pulled myself together and have chilled out this evening.

sorry it turned to into a moan myself - meant to be cheering you up! I'm pants at this

take care of yourself you're stronger than you think - and don't look too far into the future just take one day at a time.

big hugs

Katie x

valval

katie5 wrote:

hi spacey

Scarey stuff! please don't panic - you will cope outstandingly well because you have your family to support you. i too have spondylosis and my hubby and kiddies make everyday bearable. this afternoon i was soo bad i was in bed (which i never do ) i started crying and then the next thing my hubby and daughter were both cuddled up next me - we stayed there for awhile then i pulled myself together and have chilled out this evening.

sorry it turned to into a moan myself - meant to be cheering you up! I'm pants at this

take care of yourself you're stronger than you think - and don't look too far into the future just take one day at a time.

big hugs

Katie x

i think you did very well. we all get like this from time to time and you discribed it so well and you show the positive of having family to help lift a bad day val

spacey

thanks everyone so much - my other condition ended in a fairly radical surgery after many many years of awfullness and I refused to ever let it get me down and tried to always find a slightly brighter side, so I will endevour to do the same this time. Your all right I have a very supportive family, a fab lovely husband and children, much to be grateful for and will keep on smiling !!!!!and drinking gin ( ha ha)x

Katie, I hope you are feeling better today xx

frogmorton

Hi Katie

Glad you are feeling a wee bit better today



Not toot much gin I hope, but here's one on me

Love

Toni xx

lupin15

Chin up everyone is different. As for side effects and what is suppose or could happen. I have been on various drug over the last 5 years to do with my cancer ALL which are suppose to make you put weight on....No they haven't with me. Try to stay positive it will help you and days that you feel bad it is Ok to be self indulgent and feel sorry for yourself. We all do that.
Hope that you are feeling better today. Loads of hugs. XXXXXXXX

dreamdaisy

One of the things I have learned from this forum is just how different we all are. Yes, we all share the umbrella terms of OA, RA, PA, AS etc but none of us are alike in how we are affected either by the disease or the meds. None of us know what the future holds, how our disease will develop, how fast, how slow, or how we will cope. It may not be anywhere near as bad as you fear or as tinterweb portrays. Non of us knows what the future holds - and that is a good thing. DD

katie5

hi spacey

hope your having a good day.

thanks all for your lovely comments - i had a really bad weekend not felt this bad for a long time but back on track now hopefully - time to switch GP i think and get exercise plan sorted - fed up with moaning and not doing enough to help myself.

must say i feel much more in control since i joined here feel like I've got support all the time.

thanks everyone

Katie x

frogmorton

[must say i feel much more in control since i joined here feel like I've got support all the time.

thanks everyone

Katie x[/quote]

Good to hear

That is TRUE isn't it? you feel so much less alone and so much less frightening isn't it all of it?


Love

toni xx