I saw the rheumatologist for the first time 3 weeks ago and have to go back in another 3 weeks for the results.
She did various prod/poke tests while I was laying down and I realised how much my joints actually hurt. I explained how I felt and the supports etc I have to use to walk, and she said most of what I said made sense (which I said I was glad to hear). She said it's not rheumatic... yet (her actual words and pause!).
She sent me for various blood tests and an xray, and also gave me a two page questionnaire for ankylosing spondylitis to see how much pain I have and how I manage with different situations. Not sure if she suspects this is what I have but if so it's not the only thing since I have problems with practically all my other joints! I do seize up though and have to do exercises to get moving in the morning.
I am due to see the physio on the same day as the rheumy appointment, and have also been referred to the podiatrist. I have flat feet and already have NHS orthotics but she thinks a lot of my lower limb problems are caused by this so more advanced ones should help.
No point in my trying to surmise really but I am very worried that I have AS, I can deal with pain but not lack of mobility. I hate having to walk with sticks, I feel everyone is looking at me, and I miss holding my hubby's hand when walking (my mum had osteo and she said the same). The only upside is that I always get a seat on the bus! (although I occasionally have to ask for someone to move)
To be honest just putting all this down in writing helps, although I am also getting myself upset a bit at the same time. I keep my fingers and toes crossed that I can be treated relatively easily... and keep remembering that I've had problems with my joints for years and I have managed fine until now. It just doesn't seem fair on top of all my other health problems. I am glad I can share this with others though who know what I'm going through, it does help.