Silver gloves and socks re Reynauds

tweedie

Hi,
Has anyone tried socks and gloves with silver in them ? I have Reynauds so off course need to keep warm, my fingers are now permanently damaged because of the reynauds also my thumbs are in a bad way due to the arthritis , so now I have to wear thumbs splints, the OT mentioned these socks and gloves with silver in them BUT they are quite expensive to buy , but I thought maybe someone would know ???
Thank you
Joanna
(Tweedie)

frogmorton

HI Joanna

Just bumping this back up as l'm not sure if anyone has seen it. I ahve no experience of them, but would be pretty sure they must be good if the OT recommended them??

Could you not ask if they are available on the NHS??

Love

Toni xx

julie47

sorry I can't help but I hope someone comes along who can.

Juliepf x

elnafinn

Hi Joanna

I am surprised more peeps have not replied because there are quite a few on here with Raynaud's. The site is not so busy though for some reason or other I had a look on the RSA site (Raynauds & Scleroderma Asociation) and the short, long socks and fingerless and ordinary gloves were mentioned on there. There were also a few threads about them on a Raynauds forum and people that had used them thought they were good. The short socks were very comfortable and someone was going to try the long socks as they bruise and cut easily.The socks kept feet drier and regulate temperature. Silver is also anti microbial . Apparently the socks are German made and are classed as a medical product there. They get a private health fund rebate for them.Unfortunately that does not help you. They do not run out of heat as they use the static charge that your body creates.

I am sure you will be able to find this information if you google silver socks raynauds, which is what I did.

As your OT has recommended them too as well as the RSA they are two good recommendations. Shame your OT cannot let you try a pair to see if they suit you.

Elna x

Starburst

It sounds like Elna knows her stuff and I'm afraid I know very little about Raynaud's. However, I just wanted to say to check ebay because they do sell stuff quite cheaply on there.

tweedie

Hi To You All,
Thank you for your help , I think I will try some then I will let you know how I go on with them , I go back to OT next week , you never know , she may let me try some , but this is the NEW NHS !!! where you can look but not touch , too expensive !!! but then she has given me a thumb splint !!!!!!!!!!!! :roll: Oh the joys of having arthritis :!:
Carry on creaking
Joanna
AKA Tweedie
xxxx

skezier

Hi Joanna

Sorry I am late flower.

have tried these, got 2 pairs of them but really for me they are not so good. I finds decent thermals are better.

I have raynaud's as a secondary so it might work for the raynaud's alone better?

Silver in coats and things does seem to help in animals just the socks and gloves and me didn't really find much improvement.

We need someone else to come and say how they were for them so we get a balance and it might be you will only know by trying them. I still think you can't beat a really good pair of thermal socks or gloves through. the ones beginning with T are quite good as gloves and not too expensive either.

Hope you can find something cus the cold hand thing is horrible eh? Nice to see you by the way. Cris x

tweedie

skezier wrote:

Hi Joanna

Sorry I am late flower.

have tried these, got 2 pairs of them but really for me they are not so good. I finds decent thermals are better.

I have raynaud's as a secondary so it might work for the raynaud's alone better?

Silver in coats and things does seem to help in animals just the socks and gloves and me didn't really find much improvement.

We need someone else to come and say how they were for them so we get a balance and it might be you will only know by trying them. I still think you can't beat a really good pair of thermal socks or gloves through. the ones beginning with T are quite good as gloves and not too expensive either.

Hope you can find something cus the cold hand thing is horrible eh? Nice to see you by the way. Cris x

Hi Cris,
My Reynauds is secondary too , like you I think good old thermals will be best , I will try and wheedle a pair of these gloves out of OT next week when I go for my thumb splints checking, my fingers are now quite badly damaged so need something to help , I already take Nifedepine and have done for a few years , but good news on my horizon is that I will have a new Rhumy soon and from talking to other patients of his He is very pro active AND maybe will have some new ways of helping me with this , I have both OA and RA and dear old arfur just seems to be adding more nasty surprises all the time,
Thanks for all your help
Joanna
xx

skezier

Hi Joanna,

I have Iloprost every 4 months instead of the Nifedepine. Its unpleasant but does the job and can for some do it so well its only needed once or twice a year. Might be worth asking about? Its singular unpleasant mind flower but only 6 hours a day 5 days.....

Tell you what i did find this last winter. Them gel things that you boil up and if you then put them inside gloves over the arteries or in your pocket over the femorals they really do help. Just they start off very hot and I don't feel heat too well now so have to be careful and they only stay hot for a few hours.

Warmer weather helps but even that's not a cure is it Really hope the rumo can come up with some good help before next winter cus for me the older I get the worse its getting even with out all the snow and ice. Let us know how you get on could you please? Cris x

tweedie

skezier wrote:

Hi Joanna,

I have Iloprost every 4 months instead of the Nifedepine. Its unpleasant but does the job and can for some do it so well its only needed once or twice a year. Might be worth asking about? Its singular unpleasant mind flower but only 6 hours a day 5 days.....

Tell you what i did find this last winter. Them gel things that you boil up and if you then put them inside gloves over the arteries or in your pocket over the femorals they really do help. Just they start off very hot and I don't feel heat too well now so have to be careful and they only stay hot for a few hours.

Warmer weather helps but even that's not a cure is it Really hope the rumo can come up with some good help before next winter cus for me the older I get the worse its getting even with out all the snow and ice. Let us know how you get on could you please? Cris x

Hi Cris,
OT was on about Iloprost , so you never know New Rhumy may try it for me :???: , You can spot me in the summer I am the one in gloves and winter woolies :roll: my GP thinks I look like Michael Jackson as I often wear fingerless gloves , as he said this shortly after the singers death ,I did ask if he thought I looked dead , I will keep intouch but I don't see the Rhumy until august . Like you I am finding that as I get older the reynauds is getting worse -- as I say I need a new body , then when I get that I will only need a new brain Some my fingers are now badly affected , I also have Sjorgren disease too and I have read that this often goes hand in hand with Reynauds AS WELL as of course with R Arthritis -- We will battle on , even if only to annoy this :evil Government :!:
Thanks
Joanna
xx

skezier

Hi Joanna,

Its a good drug but it can effect you. I didn't have the Nifedepine so don't know what it does to you Did have it as a combo with the iloprost but be honest that's not a good way to find out what it does as the I is the one I tend to have a bit of trouble with.

if they do put you on it there is an easier way to get through it and that's sleep as much as you can after the first 4 hours and keep walking about a bit for the first 4..... apart from anything else the 6 hours drag some and sleeping makes it go quicker

they do tablets but I have been told they wouldn't be strong enough and they now hit me with the full whack of drug and what doesn't tissue goes in... I can never get a good line in and they never hold for the full 6 hours.

Its not nice some days and ok the others.... I really think it comes down to a state of mind..... I been having it since 2000 and be honest it really helps me.

Snap.. the shivering and going cynosed and blue in 86 degrees eh?!

Will never catch on

Joanna the gel pads you biol up over the main arteries honestly help. Be careful though cus they also mean chilblains if your as stupid as me :roll:

Raynaud's is linked to a few of the arthritic things and rumo;s can help it quite a bit though as yet there is nothing stronger than the Iloprost.... I kinda wish there was now a days.

The raynaud's for me is secondary to the acrocyanosis and that's secondary to the fact the circulation system I was born with is juts too small..... I bump into a few people who have it and they have one or two infusions a year and it works. the winter one being the more important one for raynaud's. i think they try and do it October/ November and it last a few months and some only need it once a year so don't let the side effects put you off.

I hope we get a better and warmer summer cus at least that helps a bit and the fingerless gloves, you can't beat them but the gel pads inside them is even better

Joanna if they do give you the tablets could you let me know how the monitor them please? It might be them and the Nifedepine would be enough but I don't know how bad the Nifedepine makes you feel as I was put straight on the Iloprost. hang in there flower. A ((( ))) and a spare gel pad Cris xx

tweedie

Hi Cris,
I will let you know how things go but like I said i don't see the new Rhumy until early august , Nifedipine causes my hands feet and NOSE to go red :roll: , I have to have nose drops as I can't breath through my nose after I have taken them , which is 3 times aday lol , it also is supposed to affect your blood pressure , but I already now have high blood pressure ( really must stop watching the news and reading newspaper re blasted government !) , when I started on nifedipine it gave me bad headaches so the dose was lowered but have a feeling my GP will want to increase the dose back up as maybe this will bring down the rising BP and maybe also help with the wonderful reynauds ????
Its been really hot here on Yorkshire Coast AND no cool wind , so haven't done my traffic light impression today but have to wander around wearing sweatshirt of course AND factor 50 as now burn to a frazzle thanks to the sjorgrens , I will get the heat thingys but am going to try and weedle out somethings from the OT on tuesday as all this stuff adds up -- and the lovely government thinks we spend our incap and dla on plasma tv's :roll: I wish !!!! I have a very nice GP who may advise me about the Illoprost but doubt he will give it me as he rarely interferes with my arthritis type drugs as my old rhumy told him to keep out in no uncertain terms , temp here has dropped at least a degree so thick shirt has gone on now and fingers changing colours oh such fun, never mind when I did get hot earlier it did give me an added boost from my morphine patch :P :P oh well lovely cuppa will warm my cold little hands,I hope things pick up for you too and that all your animals are keeping you on your toes ,
from this mad house of 1 cocker spaniel (Tweedy) 3 budgies and a cockateil AND
Joanna & BOB
xx

skezier

Hi Joanna,

Fairly sure gp's can't prescribe Iloprost, they might the tablets though.... that's something I would be seeing if you find out. You need monitoring but a friend of mine did bump into someone in a doc surgery being monitored with the tablet Ilopst.....

I get the fall hit and sometimes it isn't so good, the last one lasted a short time though i am still bleeding if i am cut and the blood is still the bright orange colour so it is still doing a bit just the older i get the less elastic the blood vessels are so the quicker they go small....

We were in the wrong cue for blood eh?!

I will come back to this in the morning cus my head rally is 90% fog and tablet induced haze flower. Hope you had a good night. ((( ))) Cris xx

tiggernut

Hi Joanna,
I have tried these years ago and found them useless. Then again nothing keeps my feet warm! The only thing that worked for me was electric socks and gloves but 20 years ago when I had them they were quite bulky.
Anita.

tweedie

Hi Cris and Anita,
Thank you both so much , looks like you have both saved me wasting money on silver gloves etc , I will discuss this with the OT and see what happens.
Cris I hope you are back from orbit !!!aren't our meds brilliant -- not , but they are all we've got !!!!!
I will keep you updated re iloprost and things , the people on this forum are , as usual FANTASTIC
Joanna
xxxx