Humira starting to work?...

Poppyg1rl

Hi everyone,
Well, I've had 2 shots of Humira so far, today I got up a lot less achy. :shock: The fingers on my left hand weren't as stiff or sore (although 2 will never straighten) the knee was not too sore and my elbows were suspiciously missing the never-ending drive you up the wall pain whenever you move them. I have not taken any pain relief!!!! I'm being extremely cautious, taken things slowly just to test the waters so to speak. But an hour ago I couldn't resist the lure of my sun filled garden and mowed the lawn I'm not exaggerating I couldn't do it last year as the pain in my fingers, wrists, elbows....the list goes on, was too much.
I'm still not sore, bit achy but nothing like what I usually feel.
So happy! I know it could be a blip, but I'll take it! So happy to feel normal and useful for once! Xxxx

keith1971

Congrats!

Long may it last!

x

Poppyg1rl

Thanks Keith,
Having tried Sulfasalazine and Methotrexate (still on them) for a year and on celebrex, tramadol etc, I was sceptical about anti TNF working. I can't put it down to anything else, I am on antibiotics for an ear infection, but I doubt that's got anything to do with this.
As you say long may it last! x

keith1971

Well Poppy, whatever it is that you're doing that's working.....keep doing it!

;-)

x

tillytop

Oh Poppy I am so thrilled for you! Really, really hope the improvement continues for you. Please do keep us posted.

Lots love Tilly xxx

Poppyg1rl

Thanks Tilly,
I'm still a bit 'freaked out' that I've got through the whole day in not nearly as much pain, and not having to take anything specially as I mowed the lawn, I'm almost waiting for the bubble to burst :???: i know the wrist break didnt help painwise, but i have been in continual flare since December! so far so good. :P
I'll update tomorrow but if this is the start of the Humira working...I will be ecstatic.

mp1952

Hi poppy

Oh, I do hope it's the humira that's working for you. I am due to start humira as soon as it's delivered to my home.. Hopefully any day now,,, so am interested in how you are getting on with it.

Marion

cythna

That's wonderful news Poppy, I'm so pleased for you. Um, however, does the hospital know you have an ear infecton and are on antibiotics? They usually make you stop treatment till you are better. The lectures I've had from the hospital on this subject!

Good luck anyway. Best wishes,

Susan

Poppyg1rl

Hi Marion and Susan,
Thanks for your kind words and advice, Marion if you would like to pm me re any 'Humira starting out' questions feel free! From one newbie to another it does help to hear other peoples stories, I'd have been lost without DD's help on that score
Susan, thankyou for the advice re hospital knowing about ear infection, I did phone and speak to my rheumatology dept who advised me to miss the methotrexate this week, but as I'd already taken the Humira last week I've to see how I am once anti biotics are finished with regard to next weeks Humira.
Another day of getting up and not having to swallow painkillers :shock: I'm tentatively grinning like a Cheshire cat got everything crossed that this is working.
Hope everyone is as painfree as possible Xxx

julie47

Poppy that is brilliant news

If I could I would jump up and down with you

You must feel as though you are in a dream eh? hope the dream lasts and lasts and lasts.

Take care and dont over do it.

Juliepf xx

frogmorton

Poppy

I am over the moon for you too!!!

Backing Keith up l say - LONG may it last!

Love and celebrations

Toni xx

PS thanks for the positive post sometimes we need them!

skezier

Wow Glitter girl that's good to see! I really hope it has done the trick for you

How did the scan go by the way? ((((( ))))) and you got any spare sparkle please xx

Poppyg1rl

Hi Julie, Toni and Cris,
I'm over the moon too! I can't describe it properly to my friends, one just popped a birthday card in for my middle son (he's 15 today) and I was excitedly telling her over tea that I'm not in any pain and look I can move around and pick things up easily etc, but she just looked at me like I was mad :roll: nevermind, hubby says its my own fault for hiding my difficulties so well
Cris, the scan went well, fabulous hospital more like a hotel, didn't want to leave the glitter needs updating although ive an MRI on 23rd so better wait till that's done before I invite my niece over to do another piece of artwork
Thankyou guys, I'm so happy and bit tearful :?: probably just a bit overcome Xxxx love to you all

tkachev

Poppy I think it is working. This sounds like me after 1 injection then it got better and better after each following injection. I have described it like being a flower which has been parched and then given a drink. You perk up. The elbow pain you describe sounds like me. I didn't notice it had gone as so much else was improving and then one day I thought 'blimey my elbows haven't hurt for a while'!
I am off MTX too due to another chest infection(it is worse this time) and waiting to hear if I need another x-ray. I am not yet on anti biotics but think I had better get some.
Glad you are feeling better! Humira seems to work in Hillingdon. We must get a good batch!

Elizabeth

Donna Mc

Great news Poppy, glad to hear you have relief.I'm on Enbrel for two months now and find it great so far as well.We may just enjoy it while it lasts and lets hope it lasts for a long time yet. The weather has been lovely..today is a bit cooler tho but we can't complain its only April.
Hope you keep well,
Donna x

tkachev

Poppy where did you have your scan? I was wondering if it was at Mount Vernon in the cancer centre?

Elizabeth

ironic

Hi Poppy,
That is great news and an excellent start. I can understand that you are still cautious and sort of still in disbelieve. I have everything crossed for you.
Thank you for the update as it does really help to know that meds work and it gives everyone a boost when we see a successes story.
Lots of hugs,
Lv, Ix

Poppyg1rl

Hi Elizabeth,
Yes the scan was at Mount Vernon, it's such a lovely hospital. I'm back there this morning 9.30am for physio hand therapy, think I may as well keep a camp bed at the hospital but looking forward to my hot wax treatment bliss Xxx hope you're chest infection is clearing :?: hugs xxx

Thanks Ironic, I'm a happy girl at the minute, for once taking the meds is not a chore, not when you get positive results sending hugs your way Xxx

julie47

Morning poppy

Hot wax treatment is lovely but a funny feeling isnt it,?
Do they hav you peeling it off and rolling it in a ball and squeezing it.
It is years and years ago that i went, but i remember it well.

I can imagine your excitement to your friend as you started showing her things you can do again I can also imagine your friends too

Have a lovely day, but don't do too much.......(oh heck , if you feel like it why not?...I would if I could )

juliepf xx

tkachev

Poppyg1rl wrote:

Hi Elizabeth,
Yes the scan was at Mount Vernon, it's such a lovely hospital. I'm back there this morning 9.30am for physio hand therapy, think I may as well keep a camp bed at the hospital but looking forward to my hot wax treatment bliss Xxx hope you're chest infection is clearing :?: hugs xxx

Thanks Ironic, I'm a happy girl at the minute, for once taking the meds is not a chore, not when you get positive results sending hugs your way Xxx

It is a lovely hospital and also has a lovely coffee shop but a bit expensive.I had my THR at Hillingdon but was transferred to Mount Vernon half way through. Shame the physio is upstairs though!

Elizabeth